Jayla's Wish
Donation protected
This is my Godsend Jayla ~ Loren Agbonlahor , 9years old
Jayla has become very poorly ....currently in birmingham children’s hospital fighting for the right plan , she’s very malnourished and in and out of sleep ,they say she’s deteriorating but I can’t take that ..there must be someone out there who can help , I’m trying everything I can baby girl , always will , never give up,
She has an undiagnosed degenerative brain disorder , She cannot walk or talk , she cannot eat she cannot drink , she gets fed through her stomache through a tube and requires oxygen and suction frequently to keep her alive when having seizures she stops breathing goes blue and have to save her life , she's had thousands of seizures Godbless her , now becoming very poorly with her gut & bowel causing her to be very malnourished & so so skinny her lil bones are sticking out , currently in & out of birmingham children’s hospital & under great ormand street ,
Lately things have been getting worse, & Jayla is becoming more sick more frequently, finding it very difficult to feed her , & becoming more weak .I’m trying all I can to get the right plan & treatments , everything’s taking so long they say she is Deteriorating & they will be only be so much they can do ...I just can’t accept that , there must be someone out there that can help , & not write out special angels off , we will never give up. We need to make you stronger baby girl and I will keep fighting for the right plan and treatment for you always will ,
I just wish I knew what to do ...ceing ur baby suffer is the most soul destroying thing you could ever go through ...I just wish I could help you more baby ....you’ve got so much things left to do...I wish I could show u the world ....
When Jayla’s seizures start , sometimes they don't stop and they have to drug her up to try put her brain to sleep , she fights so much ,
doctors told me she will pass away in childhood :( it’s getting more scarier each day .
A couple of years back Jayla had a cardiac arrest on the hospital table and had to be pumped 30 times and they breathed for her for 5 days , Watching her so lifeless has damaged me inside. And has inspired me to do more ....
jayla has spent most of her life in & out of hospital she needs a break......
Life has touched me in so many ways, I am so more determined to do more now for my baby n others I will never stop ,
As a mother , I would do anything in my power to show her the world , and just hold on to every single memory or any little thing I can do to make her life worth living , if u cin her smile at you it would melt your heart. She is truly amazing my godsend ,
I have many dreams for my baby , I wish I could show her the world , I strive to make as many trips & magical experiences as possible she deserves the world .like all the other special babies.
Next stop Disney Land ...Next stop the moon
If there was one thing I could do for my baby , is making as many beautiful memories I can for her & anything she needs , lets make sum beautiful memories & pray that jayla is healthy n well & continues to smile & touch people's hearts
May Godbless you all too
Love Jayla's mommy
Louise
&
family xxxx
Jayla has become very poorly ....currently in birmingham children’s hospital fighting for the right plan , she’s very malnourished and in and out of sleep ,they say she’s deteriorating but I can’t take that ..there must be someone out there who can help , I’m trying everything I can baby girl , always will , never give up,
She has an undiagnosed degenerative brain disorder , She cannot walk or talk , she cannot eat she cannot drink , she gets fed through her stomache through a tube and requires oxygen and suction frequently to keep her alive when having seizures she stops breathing goes blue and have to save her life , she's had thousands of seizures Godbless her , now becoming very poorly with her gut & bowel causing her to be very malnourished & so so skinny her lil bones are sticking out , currently in & out of birmingham children’s hospital & under great ormand street ,
Lately things have been getting worse, & Jayla is becoming more sick more frequently, finding it very difficult to feed her , & becoming more weak .I’m trying all I can to get the right plan & treatments , everything’s taking so long they say she is Deteriorating & they will be only be so much they can do ...I just can’t accept that , there must be someone out there that can help , & not write out special angels off , we will never give up. We need to make you stronger baby girl and I will keep fighting for the right plan and treatment for you always will ,
I just wish I knew what to do ...ceing ur baby suffer is the most soul destroying thing you could ever go through ...I just wish I could help you more baby ....you’ve got so much things left to do...I wish I could show u the world ....
When Jayla’s seizures start , sometimes they don't stop and they have to drug her up to try put her brain to sleep , she fights so much ,
doctors told me she will pass away in childhood :( it’s getting more scarier each day .
A couple of years back Jayla had a cardiac arrest on the hospital table and had to be pumped 30 times and they breathed for her for 5 days , Watching her so lifeless has damaged me inside. And has inspired me to do more ....
jayla has spent most of her life in & out of hospital she needs a break......
Life has touched me in so many ways, I am so more determined to do more now for my baby n others I will never stop ,
As a mother , I would do anything in my power to show her the world , and just hold on to every single memory or any little thing I can do to make her life worth living , if u cin her smile at you it would melt your heart. She is truly amazing my godsend ,
I have many dreams for my baby , I wish I could show her the world , I strive to make as many trips & magical experiences as possible she deserves the world .like all the other special babies.
Next stop Disney Land ...Next stop the moon
If there was one thing I could do for my baby , is making as many beautiful memories I can for her & anything she needs , lets make sum beautiful memories & pray that jayla is healthy n well & continues to smile & touch people's hearts
May Godbless you all too
Love Jayla's mommy
Louise
&
family xxxx
Organizer
Louise Victoria Bostock
Organizer
