Jan Nitti's Stem Cell Transplant
After exhausting basically all medications to relieve the symptoms and/or to try to suppress the progression of the disease, I started to research new and experimental treatments that could give me my life back. Stem cell transplant was brought to my attention and although the mortality rate is high, it showed amazing results! Skin softening, diminished lung fibrosis and and basically putting the disease to bed was what I was hearing. So here I am 14 years later and determined to fight back once again and be one of the pioneers in stem cell transplant therapy. However, the cost for stem cell transplant therapy is expensive and my insurance will not cover the entire costs involved, which is why I am trying to raise money not only for medical expenses but for short term care.
My first appointment is scheduled for May 22nd which my hope is to have the transplant by the end of the summer. My life depends on it and if it's successful I will be able to go back to work in the medical field where I can help and advocate for people with chronic illnesses.
Any support you can give will not only help reach my goal for the transplant but will also help me give back to others that may need help too.
Thank you, Jan
I wanted to give you an update as to my progress 3 1/2 months post transplant. I went to my rheumatologist last week and he told me that he doesn't hear the cracking in my lungs anymore. Woohoo! My skin continues to soften and my blood levels are almost normal. I do have some painful ulcers on a few fingers but overall I am doing great. I wish you a healthy and a "Happy New Year" and want to express my gratitude once again to all of you for helping me. I am excited and feel so blessed this Christmas season because of all of you.
I wanted to give an update on how I am doing since it has been 2 months post transplant. I want to first thank you for reaching out after transplant and checking up on me.
I have just a few complications post transplant but overall I am doing very good. My blood count is almost back to normal and my inflammation has decreased. My friends tell me they can see a change in my skin getting softer. And my podiatrist told me yesterday that my feet look really good.
I am doing a lot of physical and occupational therapy in the hopes that it will help my skin loosen up.
My hair is growing back and I kinda like this short haired gig; so easy....
I am still on a lot of medications, but after 6 months I can get off some of the real strong ones.
I will be going back to Chicago in Feb. to check my lungs and heart and I expect to see many positive changes before then.
Thanks again for continuing to support me and for the many prayers.
The support and encouragement that everyone has given me has helped in more ways that I could have ever imagined.
Great news, Jan! Prayers are still being offered for you:)
Jan, so glad to hear this latest update! Continued prayers.
I am so glad to hear that this has proved positive for you. I wish you all the best in your recovery. My prayers are with you always!! Huggs!! Jenine
Happy to hear the news about your stem cells!
Jan, fight on! You will overcome. Channeling positive thoughts your way!
So happy for you. Prayers, positive thoughts, fingers crossed...
Jan, I sent my Angels to stay by your side and ensure the success of what you are going through. Please know that Dennis and I hold you in our prayers every day....love you xoxoxoxox -Sue&Dennis
You got this Nit, sending hugs and prayers ❤️
Good Luck Jan - always thinking of you !