BEN IS A FIGHTER 5K

Benjamin has a genetic disorder called Neurofibromatosis Type 1 (NF1). This disorder affects multiple systems within the body and increases the tendency for tumor formation.

Benjamin was first diagnosed with NF1 in 2015 just after his second birthday. MRI studies revealed an inoperable brain tumor on his optic nerve for which he received frequent chemotherapy treatments for more than a year to improve his vision. With the tumor size unchanged, his parents continue to work with multiple healthcare providers to address physical and learning disabilities, while monitoring for additional effects from NF1.

Benjamin continues to learn and play with his brothers Johnathan (8) and Nicholas (6). As a military family, they are presented with unique challenges and are separated from our family support.

I am coordinating a 5K Run/Walk in October 13, 2018, in Lake Worth, FL.  If you are not a runner and would like to donate without running/walking, please donate here.  Your donation will help with the cost for the 5K.  This means more support for Benjamin.

For more information on NF1, please visit www.ctf.org 
To find out more about the 5K, please visit www.active.org and search Ben Is A Fighter 5K.

Thank you!