Ian was born with multiple congenital heart defects. His first openheart surgery was performed at 4 days old and 3 additional before he was 3. He has also had several other surgeries related to his condition. His heart function has recently declined. He has begun the process for being placed on the heart transplant list. This process will require several trips to the hospital. We found out that he is only compatible with a small percentage of the population which means he could be waiting a substantial amount of time for a transplant. Ian is also autistic and needs his family by his side. We appreciate any and all donations as they ensure he has everything he needs during this stressful time. You can also make donations via PayPal at firstname.lastname@example.org.+ Read More
Little guy gets exhausted from simple things. Since my last post Ian was hospitalized again. We are still waiting for that phone call. The call that will allow him to play without turning purple. The call that will give him the energy to take a flight of stairs and not be completely out of breath. The call that will let him grow tall and strong and have a better quality of life. It’s been 3 1/2 months since he was placed on the list. I’m sure we’ll be waiting many more.
Another hospital stay. That’s twice in less than 2 months. He is officially on the transplant list. It will be a long wait due to his limited compatibility status. The goal is to keep him as strong and healthy as possible in the mean time.
Ian’s compatibility tests were not good. He’s only compatible with a small percentage of the population. As a result, it could be a long time before he’s offered a new heart. Please continue to pray for our family as this is going to be a very long journey for us.