Ian Cogley’s medical
Donation protected
Hello everyone! I am the sister of Michael Cogley (the father of Ian). Let me start by saying Alyssa and Michael are great parents who love their children more than the world. Ian is going to be 2 on July 11th. He started having symptoms by passing out. He was taken to the doctors and they were told he was just tuckering himself out. Alyssa and Mikey felt something was not right so they took him again. The amazing doctor who saw him was immediately concerned and said they needed an appointment with a neurologist. They got an appointment the same week and took him in. While Ian was there for his appointment he began having more serious seizures to where his arms and legs were shaking. He was admitted into children’s on Wednesday July 3rd. That day he had a total of three seizures. Since he was admitted he has had multiple MRIs that shows about 6 lesions on his brain. They had him on medicine to help with his seizures which seems to be working. Ian was discharged today. He will be getting surgery next week on one of the two large lesions on his brain so it can be biopsied. He will have to stay in the hospital again after his surgery. The total recovery time is going to take months to heal from. Mikey and Alyssa will have to take time off of work on top of the medical expenses. Our family doesn’t like to ask for help so I’m asking for them. Even if you are unable to donate if you could pray for Ian he could use the prayers. No two year old should have to go through this. Ian, his sister Gabby, and Mikey and Alyssa is everyone’s top concern right now. I will update everyone as time goes on. Thank you for everyone who is already praying! We love everyone who has taken time out of their day to pray or ask how he is doing.
Update:
We truly cannot believe the amount of support everyone has given in the last 24 hours to Ian’s Go Fund Me. My brother and sister in law are speechless over how generous everyone has been. All we can say is thank you from the bottom of our hearts. Mikey and Alyssa didn't and still don’t expect any type of donations but are so grateful to what has already been achieved. Finances were something that they were stressing about yesterday and all of you took some of that burden from them. They do keep asking for prayers so please don’t forget to pray for Ian!
#PrayerChooChooForIan
Update: Ian got surgery yesterday. They took 30 samples of the large brain lesion behind his eye. It is going to take weeks to get the results from the biopsy. The surgery went well with no complications. Please keep praying!
Update from Alyssa:
We had another follow up appointment with neurosurgery and oncology today so here is the latest update for Ian:
Ian has what is commonly known as DNET brain tumors, which is what they've been suspecting. We went in today to talk to the doctors about what this means and what our next steps are. DNET tumors are typically benign tumors that grow only in the brain and spinal cord. They cannot go to other parts of the body. However, even though they are considered benign, Ian has MULTIPLE of them, which is rare. This makes it what is called multifocal tumors. DNET tumors are slow growing, so the plan is still just to monitor their growth. The hope is that Ian's brain will grow faster than the tumors, and he will hopefully not need any additional treatments. Should the tumors present rapid growth at any point, we will do chemotherapy. These kinds of tumors typically are just removed, but we have already discussed that is not an option in his case because of where they are located. We will follow up for his seizures in September, his MRI will be in October, and a CT scan in January to make sure his bone fused back together from his surgery for his biopsy.
If you are reading this, it probably means you have been keeping up to date with us. Mike and I would like to thank you for caring so much about our family. We cannot express our gratitude for everyone's help this last month. We have needed, and I for one will continue to need, the emotional support. Everyone who checked in, offered to visit, offered us a break, or even just an ear to listen, we are so grateful. We had a lot of days of wanting to just break down, especially when we had no idea what was wrong with our baby, but you all helped us through it. Also, for anyone who donated money, we could not have gotten through this month without you. You allowed us to be able to have this time with our son without having to worry about if we would be able to pay for our bills. We cannot express our gratitude enough, and we are planning to pay it forward once things here settle down a little bit more. Some of you were complete strangers to us, so if any of our friends and family know of someone who donated, but won't see this, please tell them we said thank you from the bottom of our hearts ❤
Our next steps now are to adapt to our new normal. I think I'm having a harder time than Mike is, so please keep us in your thoughts as I try to sort out all my thousands of feelings. Thank you all again, and we love you ❤
Update:
We truly cannot believe the amount of support everyone has given in the last 24 hours to Ian’s Go Fund Me. My brother and sister in law are speechless over how generous everyone has been. All we can say is thank you from the bottom of our hearts. Mikey and Alyssa didn't and still don’t expect any type of donations but are so grateful to what has already been achieved. Finances were something that they were stressing about yesterday and all of you took some of that burden from them. They do keep asking for prayers so please don’t forget to pray for Ian!
#PrayerChooChooForIan
Update: Ian got surgery yesterday. They took 30 samples of the large brain lesion behind his eye. It is going to take weeks to get the results from the biopsy. The surgery went well with no complications. Please keep praying!
Update from Alyssa:
We had another follow up appointment with neurosurgery and oncology today so here is the latest update for Ian:
Ian has what is commonly known as DNET brain tumors, which is what they've been suspecting. We went in today to talk to the doctors about what this means and what our next steps are. DNET tumors are typically benign tumors that grow only in the brain and spinal cord. They cannot go to other parts of the body. However, even though they are considered benign, Ian has MULTIPLE of them, which is rare. This makes it what is called multifocal tumors. DNET tumors are slow growing, so the plan is still just to monitor their growth. The hope is that Ian's brain will grow faster than the tumors, and he will hopefully not need any additional treatments. Should the tumors present rapid growth at any point, we will do chemotherapy. These kinds of tumors typically are just removed, but we have already discussed that is not an option in his case because of where they are located. We will follow up for his seizures in September, his MRI will be in October, and a CT scan in January to make sure his bone fused back together from his surgery for his biopsy.
If you are reading this, it probably means you have been keeping up to date with us. Mike and I would like to thank you for caring so much about our family. We cannot express our gratitude for everyone's help this last month. We have needed, and I for one will continue to need, the emotional support. Everyone who checked in, offered to visit, offered us a break, or even just an ear to listen, we are so grateful. We had a lot of days of wanting to just break down, especially when we had no idea what was wrong with our baby, but you all helped us through it. Also, for anyone who donated money, we could not have gotten through this month without you. You allowed us to be able to have this time with our son without having to worry about if we would be able to pay for our bills. We cannot express our gratitude enough, and we are planning to pay it forward once things here settle down a little bit more. Some of you were complete strangers to us, so if any of our friends and family know of someone who donated, but won't see this, please tell them we said thank you from the bottom of our hearts ❤
Our next steps now are to adapt to our new normal. I think I'm having a harder time than Mike is, so please keep us in your thoughts as I try to sort out all my thousands of feelings. Thank you all again, and we love you ❤
Organizer and beneficiary
Sarah Louise
Organizer
Elizabeth Township, PA
Michael Cogley
Beneficiary
