Hope for Maddie (Medical expenses/care)
An individual very close to me was diagnosed with an extremely rare cancer by a team of doctors at University Hospital in Cleveland, Ohio. It took them awhile to figure it out, but the treatment received is the best. Praying for healing.
I want you to check with a dermatologist about Photodermatitis. It is rare. I was in the hospital with a mistaken diagnosis of flesh eating bacteria. Turns out I spilled lime juice on myself from a summer drink, and the sun reacted with the lime creating what looked like a burn rash. Mine made 2nd degree blisters. This was Phytophotodermatitis. However, Photodermatitis can be caused by a sun/ UV allergy. It causes scars....I still have mine. That rash and swelling looks like it. I was working with an infectious disease doctor. He had never seen it and was convinced it was bacterial. It took a random doctor walking into my room to see the "girl with the blisters all over her leg." to figure it out. He happened to see it in a text book his wife was reading.
This is something totally different from the other posts. It looks like what a friend of mine suffered from for years, and she had been to tons of doctors including Mayo Clinic 3 times, Duke and Johns Hopkins. Finally an allergist tested her for candida, and it popped up immediately. It's an easy skin test. Candida is a build-up of bad bacteria in the digestive system and has symptoms like Maddie. She needs to get off antibiotics, if she is on any, which ill off the good bacteria and start with things like kefir that has many good probiotics.
link w/ other conditions w/ symptoms you gave you might want to explore http://www.freemd.com/s2/0051/body-rash-nose-bleed.htm
Her rash kind of looks like that of little girls in link shared here who has idiopathic thrombocytopenic purpura symptoms include rash as well as nosebleeds etc. http://aapredbook.aappublications.org/content/1/SEC131/SEC241/F1547.large.jpg
Definitely an allergic response. Good suggestions in the other comments. There's an all natural product called Protandim that heals the body from the cellular level and they have a skin care product as well that has amazing results for many skin conditions. They have a website. Worth a try if you keep searching with no answers. Praying for a healing soon!
If your daught er has used topical steroid creams she may be going through Topical Steroid Withdrawal. I had all the same symptoms. Have a read of my blog here at http://withdrawalofsteroidcreams.blogspot.com.au and I have set up a Facebook support page where you may get answers there too. https://www.facebook.com/groups/212642132257327/ I do hope you read this. It was a very frustrating journey to find out what was wrong with me too. Please contact me if you need too . Regards Megan xo
Have you heard of topical. Steroid addiction withdrawal...aka red skin syndrome. I don't know of Maddir has been on steroids or not but it looks like what my son is suffering from red skin syndrome. Google itsan.org and see what you think. Poor girl! I hope her suffering end soon! Xoxoxo klines mom , Loren http://klinestopicalsteroidhell.blogspot.com/?m=1
This looks and sounds like Red Skin Syndrome. Go to itsan.org. There is a 100% cure rate, but it is a long tough road. There's a support group on itsan and hundreds of people recovering.
Please take a look at itsan.organization - it may not be that, but consider topical steroid addiction. ♡
Please take a look at ITSAN.org. You may be dealing with Topical Steroid Addiction. There is a Facebook page called Eczema & Topical Steroid Withdrawal/Red Skin Syndrome. It looks similar to many postings there.
II pray you will find answers soon and all will be well. I also had a strange rash on my face. My eyelids would crack and bleed. 5 doctors had no idea. It turned out to be allergy triggered excema. I control it now with Zyrtec. Such an easy solution after years of suffering...I will always be grateful for those who shared their experiences on the internet. Otherwise I would probably still be going from doctor to doctor with no relief. Best wishes!
I copied the following from another comment I saw. I'm posting in hopes that it will help. "I wish I knew what it's called, They need to check her Red and White Cell count. My granddaughter has this and it took them up till last year to figure it out in Portland, OR. It's has something to do with the Red Cells eat up her White Cells or the other way around, but she looked like this from the time she was 3 months old. "
Linnette is in Melbourne, FL, where they have 17 pulsed microwave radars in addition to all of the cell towers. She lectures in the dangers of electromagnetic/microwave radiation Linnette M. Beck AP, DOM, Dipl. Ac. (NCCAOM) Beck Natural Medicine LLC 497 N. Harbor City Blvd Melbourne, FL 32935 tel: 321-259-9090 fax: 321-259-9089 www.BeckNaturalMedicine.com
She may be sensitive to RF/electromagnetic radiation. Get a microwave meter that measures 0-8 GHz radiation. New Kent County has a VERY powerful microwave radar installation: Radar/Call Sign ROTHR – Virginia Model AN/TPS-71 ROTHR Max Pulsed Power (Watts) 1,000,000 Gain (dBi) 100.0 Maximum ERP 100,000,000 Frequency (MHz) 30 Latitude 37.56543 Longitude -77.02465 FIPS 51127 County New Kent State VA Comments/Source http://fas.org/nuke/guide/usa/airdef/an-tps-71.htm. If EMR is the problem you need to move her to a country area without a lot of radars(weather, FAA and military) and minimize wifi/cell tower radiation near her. Research @ darkmattersalot
Tri-Life Health in Fort Collins, CO might be a resource. I know you have probably heard this before, but have you ruled out Lyme Disease or Celiac Disease/other food allergies or intolerances? I have had experience with both, with VERY atypical symptoms. Oh, I'm praying you find help for your little girl, and that it will come soon. Sending caring thoughts...
There is an amazing allergist/immunologist in Charlottesville at UVA Medical Center... Dr. Platts-Mill... he is amazing! I think he might be able to help.
It seems like you have been to a lot of doctors has she been on antibiotic steroid my friends son had a rash looking like this they said it was extreme exzema that could bleed it was so bad. The baby also had swollen lymph nodes. I would also be concerned it is allergy related. This might all sound stupid as I do not know your full story' . I pray there is a cure soon for your baby.