Hope4tylerandluke
Donation protected
Later Gator... Luke and Tyler Extremely Rare, Gaining awareness to open research!
Tyler and Luke have an extremely rare genetic defect that has caused global developmental delay. Tyler and Luke are dependent for all of their needs. We feed them, toilet them, bath them, position them... we do it all. They are unable to do for themselves but they both have a smile that lights up the world :) Their condition is a newly diagnosed disorder. It is known as Med 23 gene defect. They are the second confirmed case worldwide. We are continuing our fundraising and awareness mission. The needs of the boys are ongoing and we are presently trying to begin hyperbaric o2 treatments and installation of the lift system. We also need to continue to save for the wheelchair van. We have one getting us by but it lacks some very necessary functions and is older. Please consider contributing! Any support is appreciated. If you are unable to contribute financially, please LIKE our facebook page and SHARE with others to raise awareness of this newly recognized disorder! Thank you and God Bless.
www.facebook.com/hope4tylerandluke
Tyler and Luke have an extremely rare genetic defect that has caused global developmental delay. Tyler and Luke are dependent for all of their needs. We feed them, toilet them, bath them, position them... we do it all. They are unable to do for themselves but they both have a smile that lights up the world :) Their condition is a newly diagnosed disorder. It is known as Med 23 gene defect. They are the second confirmed case worldwide. We are continuing our fundraising and awareness mission. The needs of the boys are ongoing and we are presently trying to begin hyperbaric o2 treatments and installation of the lift system. We also need to continue to save for the wheelchair van. We have one getting us by but it lacks some very necessary functions and is older. Please consider contributing! Any support is appreciated. If you are unable to contribute financially, please LIKE our facebook page and SHARE with others to raise awareness of this newly recognized disorder! Thank you and God Bless.
www.facebook.com/hope4tylerandluke
Organizer
Jillian Popelas-Clegg
Organizer
Belle Vernon, PA
