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Hope for Angelo

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My name is Angelo Jason De Jesus and this is my story. I was born in the year 2013 with a medical condition called Griscelli Syndrome Type 2. At the age of 29 days old, I was also diagnosed with Hemophagocytic Lymphohistiocytosis, also known as HLH. I was transferred to Children's Hospital Los Angeles to continue my care and treatment. For the next 6 months, I stayed in the hospital for my treatment for the HLH. When my treatment was complete I needed to be placed in a home. When I was now 8 months of age and was in remission from my HLH I was then transferred to a medical facility awaiting for foster placement or possible adoption. My medical conditions and care required extract work and attention. It was at the age of 1 year and 10 days that I was placed with my mom and siblings.  Although it was difficult at times my mom loved me no matter what. She believes that everyone deserves to have a loving family.  So I became part of her family.  I go to the hospital a lot so they can take care of my health. Recently I relapsed and this time it went to my brain. The doctors are working hard to get me back into remission so I can get a Bone Marrow Transplant.  I need to find a match so if you have never registered please consider doing so because the life you save might be mine. You can register at Join.bethematch.org/HopeForAngelo  I have been in the ICU for 3 weeks now. The damage to my brain requires that I  have a tube in my throat so I can breath (trach) and a feeding tube in my belly (Mic-Key). My mom never leaves me alone unless it is necessary.  She needs help to continue to be by my side while I go through this tough time. 
My journey on earth has come to an end. My family now needs help to bury me.

Organizer and beneficiary

Angelo De Jesus
Organizer
Los Angeles, CA
Nishmeth De Jesus
Beneficiary

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