Helping Terence Kick Leukemia

$11,471 of $36,000 goal

Raised by 121 people in 11 months
Terence is a 13 year old ray of sunshine that was diagnosed with CML Leukemia in August 2016.
Medication and Great Medical Care are imperative to his fight and victory. We want to see Terence live a long normal life and that may mean medication for life. Please help us raise enough money to ensure he won't have to go without. We are starting by trying to raise enough money to cover the copay for his medication (disatinib) for the next 5 years, as well as some of his other medical expenses. Thank you for your help.
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T started a new medication last month just a couple days after Christmas. This is now the 3rd medication (oral chemotherapy drug) that we are trying.
We are very hopeful that this is the one that will get his numbers where they need to be for maintenance and avoid the whole bone marrow transplant
thing https://www.us.tasigna.com/about-the-disease/understanding-cml?site=43700014308112707&source=01030&irmasrc=AM7WB24190
We went in for testing this week and should have results sometime next week.
Thank you for all of your prayers and Please send Lots of positive energy and good thoughts!
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Sorry it has been so long since my last update. It has been a very overwhelming couple of months.

Terence was put on the list for a bone marrow donor and they did not find him a match. This could be a blessing in disguise because I have not lost faith in the medicine yet.
I started doing research on nutrition and foods that feed cancer and foods that heal. We have now seen a homeopathic naturopath and he confirmed that the lifestyle changes I have made in regards to T’s nutrition plan should be very helpful.
This, however, requires me staying very close and monitoring every moment of Ter’s diet. We are currently juicing organic vegetables and fruits 4 times a day. Juicing allows the body to take in mass quantities of vitamins and minerals that kill cancer cells and provide his system a strong foundation to work with the medication.
Bother sugar and Animal protein are known to feed cancer so he is now on a sugar-free plant-based diet and I am doing this with him to support and live a healthier life -trying to pave the way and lead by example.
As you can imagine, it is very expensive to juice. But I have to trust and believe that God will provide what we need.
The hardest piece to all of this is that in order for me to be able to manage and monitor Ter’s new diet, I have had to take time off of work and the financial burden of that is very scary. I have had to take a FMLA from my full-time job and now going back even part-time is proving to be very difficult between corporate policy and also the distance I have to travel to be there. Please pray that Gods will be done in terms of my job and what is best for my family. My health insurance is through this job and cancer treatment without health insurance is not something I can wrap my head around.

The hope with this new diet is that his medication will start to work again and God willing, he won’t need a bone marrow transplant.
Please pray with me that this is the case.
Thank you all for your continued support and prayers.
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What we learned at CHOP yesterday:
It was a lot of information and basically not even half we’re going to learn the next time we go back it’s going to be much longer and more in-depth explanation but we did learn was all very scary and of course it’s all pending the results of this last bone marrow test he had on Wednesday which we will get the results from on Monday.
Basically there’s a bunch of stuff they have to do before we would even go in for a transplant -Number one being finding a donor which is not going to be an easy task because of his ethnicity and so on.
At this point after year of treatment they’re concerned with him going into “blast phase” and that would be really bad and more of an emergency situation also they have not done a bone marrow transplant on a CML kid in many years because of the new medications so it’s not common anymore.
It is not like any other kind of transplant where they have a surgery and open you up and take something out and put something else back in its place -it’s more like a blood transfusion that entails chemotherapy where he will lose his hair and it’s more like draining his blood, killing the leukemia cells and replacing it with someone else’s blood/ platelets and then hoping that his body accepts them and begins to grow them on their own. It will require him being quarantined for several weeks after the transplant process where he cannot be around any germs of any kind as he will have no immune system and a simple cold could kill him. Also it means he will be out of school for 6 to 8 months and they want him to stay near the hospital for at least two months so it would mean he and I would have to be in some kind of temporary housing for a couple months in Philly like the Ronald McDonald house. And as if all of that wasn’t enough it is not a 100% guaranteed procedure because the CML could still come back it can be two days later or 10 years later. And of course the most terrifying part of it is that she (The Dr.) said most people survive the transplant but there are several complications that can occur. Her number one concern is infection and something else that is a disease that has to do with his body potentially rejecting the donors some kind of platelets or something in which case he could break out in a rash all over his body and then they would have to treat that.
That is the short of the long and apparently only a fraction of the information.
If he hasn’t had some dramatic drop in his numbers that shows up in this last test, he is at serious risk and the “blast phase” could start anytime or not not for a year but apparently it is a much more critical and emergency and unplanned scenario if he is already in blast.
So it is a gamble either way, weather we go ahead and get the transplant process under weigh or if we decide to wait and “see what happens” .
We need a miracle. Please help us pray for one.
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Also- I just wanted to share this incredible side-by-side these two pictures are from Terence's first day of school last year and his first day of school this year. Even though the treatments are not working as a medical professionals had hoped, I am still so grateful for modern medicine and these pictures really speak volumes to that. Thank you Jesus.
Last year
This year
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$11,471 of $36,000 goal

Raised by 121 people in 11 months
Created March 2, 2017
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$200
Anonymous
5 days ago
PM
$50
Patty McClain-Evans
29 days ago

You are in our thoughts & prayers. Praying more for a good outcome on new medication

$100
Anonymous
1 month ago
$20
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1 month ago
$100
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1 month ago
AH
$50
Amy Hockinson
2 months ago

We are praying for Terence's healing. Lifting you all up in prayer.

$100
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2 months ago
$100
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2 months ago
$100
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2 months ago
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