Lexi Beachy needs your help
Donation protected
This is the story of Lexi Beachy, the daughter of Wendel & Liz Beachy, granddaughter of Chip & Belinda Merriman, Marvin & Carolyn Beachy, Kevin & Stephanie Leeman and how she ended up here.
Soon after her third birthday in October of 2013, our sweet little Lexi woke up with a sore leg and puffy face and was in a lot of pain. After going to the hospital to receive fluids, over night she continued declining in health. After reviewing blood tests, the doctors said her kidneys were failing. What planned to be an overnight stay turned into Lexi being transferred to Riley Children’s Hospital for 36 days of treatment. After spending the majority of her stay nursing her kidneys, the doctors did a biopsy to determine the reason for the kidneys shutting down in the first place.The results showed that Lexi has Focal Segmental Glomerulo Sclerosis(FSGS). FSGS is a kidney disease that causes scarring on the kidney’s filtering system, ultimately causing complete kidney failure. With FSGS it is only a matter of time before the kidneys completely shut down. Once the doctors sense kidneys are shutting down, the patient is usually put on dialysis. Dialysis is then able to take over the kidney’s role in the body until a kidney transplant is available. Often transplants are taken over by the disease causing some patients to be on lifelong dialysis.
Over the last 2 years, Lexi has spent countless hours in the hospital and doctors offices having infusions, treatments, tests, having her medication adjusted and readjusted and she has been such a trooper through it all. Lexi always has a sweet smile and ready hug.
Unfortunately, Lexi’s kidneys are no longer responding to the treatments and she will be having both her kidneys removed and will remain on dialysis until the doctors decide the feasibility of a transplant. October 30, 2015 will mark 2 years since Lexi first got sick. Since then that has pretty much been our life. In early 2014 she was doing very well and the disease appeared to be heading towards remission. We were only going to the clinic 1 time every 10 days and she was doing great. At that time she was maintaining an albumin (protein level) of 2.9-3.2 normal range is around 4.0. In February 2014 she contracted a virus which again activated the disease. We spent another week at Riley and then when released were back to 3 infusions a week. She slowly recovered and eventually was able to sustain with only 1 infusion a week. In August of last year we switched doctors and started doctoring with a Doctor here at Cincinnati Children's Hospital. In June of this year she again contracted a virus and the disease came back. She was admitted again for several days to receive daily infusions. Since then she has been on a steady but slow decline and we were not able to get it turned around. She continued to get worse so the last 2 months we have been taking her in 3 times a week for infusions. Her Doctor increased her medications but she still continued to decline. Last week she was no longer able to maintain with 3 infusions a week so this week we went to every day. She is currently only maintaining a 1.1-1.8 albumin level. So here we are 2 years, over 200 human albumin infusions and 3 Doctors later......:-)Surgery is scheduled for Tues Oct 27th.
As Lexi’s parents we are thankful to God for all he has done for Lexi. We are thankful for our family and friends for all their love and support. We are grateful that we get to be a part of Lexi’s story that Jesus is writing for her. She is such a blessing to us and as we continue to pray for her healing, we remember all of the ways God’s been walking with us through this storm and we are so thankful. We pray that he is made known to many through our sweet daughter, Lexi’s life.
As you can imagine the medical expenses are astronomical. Any contribution towards Lexi’s treatment and medical expenses would be greatly appreciated. Please keep Lexi in your prayers. Thank you for your continued prayers and support.
Soon after her third birthday in October of 2013, our sweet little Lexi woke up with a sore leg and puffy face and was in a lot of pain. After going to the hospital to receive fluids, over night she continued declining in health. After reviewing blood tests, the doctors said her kidneys were failing. What planned to be an overnight stay turned into Lexi being transferred to Riley Children’s Hospital for 36 days of treatment. After spending the majority of her stay nursing her kidneys, the doctors did a biopsy to determine the reason for the kidneys shutting down in the first place.The results showed that Lexi has Focal Segmental Glomerulo Sclerosis(FSGS). FSGS is a kidney disease that causes scarring on the kidney’s filtering system, ultimately causing complete kidney failure. With FSGS it is only a matter of time before the kidneys completely shut down. Once the doctors sense kidneys are shutting down, the patient is usually put on dialysis. Dialysis is then able to take over the kidney’s role in the body until a kidney transplant is available. Often transplants are taken over by the disease causing some patients to be on lifelong dialysis.Over the last 2 years, Lexi has spent countless hours in the hospital and doctors offices having infusions, treatments, tests, having her medication adjusted and readjusted and she has been such a trooper through it all. Lexi always has a sweet smile and ready hug.
Unfortunately, Lexi’s kidneys are no longer responding to the treatments and she will be having both her kidneys removed and will remain on dialysis until the doctors decide the feasibility of a transplant. October 30, 2015 will mark 2 years since Lexi first got sick. Since then that has pretty much been our life. In early 2014 she was doing very well and the disease appeared to be heading towards remission. We were only going to the clinic 1 time every 10 days and she was doing great. At that time she was maintaining an albumin (protein level) of 2.9-3.2 normal range is around 4.0. In February 2014 she contracted a virus which again activated the disease. We spent another week at Riley and then when released were back to 3 infusions a week. She slowly recovered and eventually was able to sustain with only 1 infusion a week. In August of last year we switched doctors and started doctoring with a Doctor here at Cincinnati Children's Hospital. In June of this year she again contracted a virus and the disease came back. She was admitted again for several days to receive daily infusions. Since then she has been on a steady but slow decline and we were not able to get it turned around. She continued to get worse so the last 2 months we have been taking her in 3 times a week for infusions. Her Doctor increased her medications but she still continued to decline. Last week she was no longer able to maintain with 3 infusions a week so this week we went to every day. She is currently only maintaining a 1.1-1.8 albumin level. So here we are 2 years, over 200 human albumin infusions and 3 Doctors later......:-)Surgery is scheduled for Tues Oct 27th.
As Lexi’s parents we are thankful to God for all he has done for Lexi. We are thankful for our family and friends for all their love and support. We are grateful that we get to be a part of Lexi’s story that Jesus is writing for her. She is such a blessing to us and as we continue to pray for her healing, we remember all of the ways God’s been walking with us through this storm and we are so thankful. We pray that he is made known to many through our sweet daughter, Lexi’s life.
As you can imagine the medical expenses are astronomical. Any contribution towards Lexi’s treatment and medical expenses would be greatly appreciated. Please keep Lexi in your prayers. Thank you for your continued prayers and support.
Organizer and beneficiary
Mike Browning
Organizer
Peru, IN
Belinda Merriman
Beneficiary
