Help alexia walk

£80,109 of £85,000 goal

Raised by 281 people in 45 months
Alexia rose was born at 28weeks and 2days. We spent just under 2 months in scbu (special care baby unit) and over the last year have been in and out of hospital. Alexia is under lots of consultants  after being confirmed with quadriplegic spastic cerebral palsy at 8 months old.  Alexia is nearly 2 and a half years old and has next to no control over her arms or legs she is unable to sit up unaided, crawl, feed herself, play with toys, walk on her feet, balance, she has no coordination, her eyes have a stigmatism which affects her sight and what she can see, the list is endless. Alexia can't have the sdr operation on the nhs as although they've started funding it, its not funded for children like Alexia with cerebral palsy in their arms and legs. We have managed to raise enough money for a hydrotherapy pool for alexia which is going to make a huge difference to not only her core strength but her pain she gets from muscle spasms every single night and will also help with her movement. She currently has weekly physio which comes at quite a cost but we are trying to help alexia to build as much core strength as possible to get her prepared to the best of her ability for the sdr operation.
without the operation alexia will be wheelchair bound forever.
The operation also comes at quite a cost....the actual operation ranges between £29650 and £38493 this includes physio, professional fees, hospital charges, all patients are required for 3 weeks intense physio before being discharged to return home. Then once home the physio ranges between £25000-28000 but will need to speak to private physio for the exact price and then they've asked us to allow £10000 for flight. Hotels for the month etc.
After raising for the hydropool it's such another huge amount to raise and we want to thank everyone who's already donated to help alexia walk and come to her events.
We are aiming to get the operation when alexia hits 4 years of age. Alexia is so lucky, there's not many children who get lots of Hydrotherapy and physio before and after her op. The hydro pool is going to help her rehab tremendously.
If for any reason alexia cannot have the operation the money will be spent on private physio and equipment. 
Thank you for taking the time to read her page and thank you xxx

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Hi all, Just thought we would send an update to every one who has kindly donated to our little girl.

WE GOT THE GO AHEAD AND ARE AWAITING OUR DATE FOR AMERICA TO SEE THE BEST SURGEON IN THE WORLD TO OPERATE ON OUR LITTLE GIRLS SPINE.

Our little lady is finally strong enough after 3 years of physio, hydro, horse riding and alot of hard work. Only downside is that 2 weeks after the SDR they are going to do a second operation called Percs (which is lengthening her leg muscles where they are so tight). It will be the icing on the cake for her to learn to walk but at an extra £9000 / $12000 So we have moved the goalpost and have planned a couple more events to try and cover as much of this cost as we can.

Thank you so much for all your support and helping make this happen for her.

THANK YOU THANK YOU THANK YOU FROM THE BOTTOM OF OUR HEARTS XXXX
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Hi all, just a quick update to say thank you to every single one of you for your continued support.

Alexia is doing great and still having intense private physio along with daily hydrotherapy.

We are off to addenbrookes in a couple of weeks where alexia is about to under go a double hip reconstruction and have her abductors cut and botox put into her arms and legs. The hips have dislocated and not formed properly all due to the cerebral palsy and mega tight muscles that have pulled them out.

Once the op is over and the casts are all off the intense rehab will re-start and she will be working towards getting her strength back to what it is now . We will then be re-applying for the SDR in America. After the SDR the hard work will really start.Thank you for all your help and support in helping us on this journey. We really do appreciate it.
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Hi everyone, just a quick message to say thank you so much, we are over half way towards our total. Alexia is working hard at physio to get stronger in preparation for the SDR, although we are awaiting on both alexias hips to be reconstructed at addenbrookes before we can reapply to America, which has set us back.

Alexia's epilepsy has also been playing havoc the last few months but she's on new medication to help control it. We have also started her on muscle relaxant to ease the pain her tight muscles are causing.

Many thanks for your constant support, we really appreciate it xxxxxx
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Happy new year to you all and thank you so much for your continued support in 2016!! 2015 was a fantastic year in people wanting to help alexia, we can't thank you all enough and 2016 is going to be a great year too. Hopefully alexia will be booked in for her operation before the end of 2016 :) we started 2016 with a fantastic physio session, lots of appointments and alexia talking more than ever before :) thank you so much for all your donations and support lots of love from alexia-rose and her mummy and daddy xxxxx
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Rose Forrest
22 months ago

7.00 from fight klub charity event xx

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£80,109 of £85,000 goal

Raised by 281 people in 45 months
Created September 13, 2015
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MB
£80
madeline burgess
13 days ago

Happy Birthday Alexia. We send you love, Auntie Madeline your 3rd cousin Philippa

KF
£20
Kristine Fitzjohn
24 days ago
CB
£10
Claire Bolden
5 months ago
LH
£30
Laura Harris
5 months ago

In lieu of sending christmas cards this year. Merry Christmas Alexia and family All our love Laura, Stewart, Oliver and Lewis your SDR buddy xxx

£20
Tcy Brown
5 months ago
MB
£50
Michelle Burford
5 months ago

Love from little munchkins

HC
£64
HILLTOP GARDEN CENTRE
6 months ago (Offline Donation)

£64.46p from the collection Tin at Hilltop Nurseries. Many thanks to everyone who added to it.

SS
£22
SPS POOL AND SPAS
6 months ago (Offline Donation)

£22.10p donated from the late night shopping :)

MB
£100
madeline burgess
6 months ago

I promised I would

JB
£100
Jan Brown
6 months ago (Offline Donation)

From Sponsored swim and table top xx

Rose Forrest
22 months ago

7.00 from fight klub charity event xx

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