Help us save Vera Zvanko - SMA
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Please read Maria Zvanko's story below:
My daughter, Vera, was diagnosed with a disease called Spinal Muscular Atrophy Type II, which affects her ability to move, enjoy this world, and live a normal life, and which can eventually kill Vera if she does not receive proper treatment. There is a cure for this condition, but unfortunately it is not available for us.
We live in the Republic of Belarus that used to be part of the Soviet Union. The Belarusian health system does not help children with SMA because it is believed that such patients ‘lack in prospects,’ and denies the fact that the vaccine called ‘Spinraza,’ which has been approved in 30 developed countries, makes an amazing difference for SMA patients and helps them progress.
Vera is a bright lively girl. The disease did not affect her intelligence. She is very friendly and smart. Now she begins to realize that she cannot play like other children since she has already lost her ability to walk. However, she still asks to bring her to the playground just to watch how other kids are playing. It makes her happy, but my heart is bleeding. I wish one day she can walk and run again.
Since we do not receive any financial help from our government, I am appealing to you to help my daughter. ‘Spinraza’ costs $125K per injection according to the scheme: 6 injections in the first year of treatment. It is an unimaginable sum of money for me, and there is no way I can afford this much. I believe, however, that with the help of ‘Spinraza’ Vera will be able to walk, so I am kindly asking you to please help her do it!
Please give my daughter a chance! Thank you and may God bless you!
My name is Alena Rusak. I started this campaign on behalf of my friend - Maria Zvanko. She lives in Belarus and at this time GoFundMe payment processors don't support this country.
I opened a checking account to keep donations separately from my income. I will be withdrawing funds into this account and after that transferring them into Maria's charitable accounts below:
My daughter, Vera, was diagnosed with a disease called Spinal Muscular Atrophy Type II, which affects her ability to move, enjoy this world, and live a normal life, and which can eventually kill Vera if she does not receive proper treatment. There is a cure for this condition, but unfortunately it is not available for us.
We live in the Republic of Belarus that used to be part of the Soviet Union. The Belarusian health system does not help children with SMA because it is believed that such patients ‘lack in prospects,’ and denies the fact that the vaccine called ‘Spinraza,’ which has been approved in 30 developed countries, makes an amazing difference for SMA patients and helps them progress.
Vera is a bright lively girl. The disease did not affect her intelligence. She is very friendly and smart. Now she begins to realize that she cannot play like other children since she has already lost her ability to walk. However, she still asks to bring her to the playground just to watch how other kids are playing. It makes her happy, but my heart is bleeding. I wish one day she can walk and run again.
Since we do not receive any financial help from our government, I am appealing to you to help my daughter. ‘Spinraza’ costs $125K per injection according to the scheme: 6 injections in the first year of treatment. It is an unimaginable sum of money for me, and there is no way I can afford this much. I believe, however, that with the help of ‘Spinraza’ Vera will be able to walk, so I am kindly asking you to please help her do it!
Please give my daughter a chance! Thank you and may God bless you!
My name is Alena Rusak. I started this campaign on behalf of my friend - Maria Zvanko. She lives in Belarus and at this time GoFundMe payment processors don't support this country.
I opened a checking account to keep donations separately from my income. I will be withdrawing funds into this account and after that transferring them into Maria's charitable accounts below:
Organizer
Alena Rusak
Organizer
Rolling Meadows, IL
