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Help My Mom Feel Like Herself Again

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Last year, my mom decided to take me on a trip across the country from Charlotte, North Carolina to Portland, Oregon for my high school graduation. My mom had been on planes before, so we didn't think much of it. Eventually, we got home from the trip and my mom began complaining of dizziness, and she was unable to balance herself like she could before we left. As time went on, these symptoms grew increasingly worse. After many visits and co-pays to chiropractors, vestibular therapists, 3 MRI's, 2 ENT's, orthopedic surgeons, neurologists, neurosurgeons and a diagnosis of cervical spine stenosis, doctors confirmed that she is suffering from a rare neurological disease called Mal de debarquement Syndrome (MdDS). This condition occurs after going on a cruise or airplane, and the main symptom is feeling consistently dizzy. It has been over a year and my mom's symptoms have only worsened. The part of the brain which is “broken” or not working correctly is the entorhinal cortex . . . it is in a deep part of the brain which controls our memory and perception of time, navigation and knowing where space is around a person. When on an airplane or cruise ship, for example, it was in such a slow motion for a long period of time that the brain has been triggered into believing that it is supposed to stay like that. My mom’s brain is still on the airplane. One’s mood effects MdDS, since the part of the brain where the mood is affected, is NEXT to the entorhinal cortex so being upset, sad or having any type of anxiety makes a person’s swaying and rocking feel worse.  My mom feels continuous swaying and rocking 24/7 until she falls asleep. This condition has strained the quality of my mom's life and she is unable to live content with this disease. My mom has been a teacher for over 20 years, and this past school year she has missed more days than any school year combined due to the severity of her illness. Since this condition is so rare, only one facility in the United States offers treatment for MdDs, Mount Sinai in New York City. My mom was recently accepted into this program and we are raising donations to help pay for her treatment and travel expenses. The treatment at this facility is not covered by insurance at all, and this is the only option we have left to salvage my mom's brain. Any donations will help and are greatly appreciated. My mom has not been the same person ever since she developed MdDS, and I just want her to be healthy again. Thank you.
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Donations 

  • Anonymous
    • $25 
    • 5 yrs
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Organizer

Juliet Rose
Organizer
Huntersville, NC

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