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Help my daddy, Damon, recover.

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Aloha everyone, at this time my sister and I would like to ask for your help in helping our dad, Damon Remmers, recover from a rare brain tumor.

From January to November of this year (2017), our dad experienced difficulty swallowing, unintentional extreme weight loss in a short amount of time, motion sickness, constant ringing in his ear, loss of balance, loss of sensation in his fingers, and numbness in his legs. After being misdiagnosed twice, on November 08 a MRI was finally ordered and our dad was told that "You have a mass really close to your spinal cord, compressing your brain stem". His MRI was sent to multiple Doctors throughout the islands of Hawaii, and we were told that not one doctor wanted to take his case. Which led us to search elsewhere. Weeks later Dr. Nader Sanai of Barrow Neurological Institute in Arizona took our dad's case. We flew to Arizona to meet Dr. Sanai on Dec. 11 and found out our dad would be needing a craniotomy (brain surgery). Two more MRIs was done on his brain and spine to ensure he only had one mass, then his Craniotomy was performed on Dec. 20th. After 6 hours of surgery, Dr. Sanai and his team was able to remove all of the tumor. But due to the type (Ependymoma) and the aggression level of his tumor, we were told "he has a long road of recovery ahead of him".

When our dad woke up, he wasn't able to see, talk, walk, or swallow. Although our dad is working with Physical, Occupational, Speech, and Vision therapy to relearn how to do all these things again. From his difficulty with swallowing he is left with a feeding tube in his stomach, but remains humble and is working hard to get back on track. He is aweing the nurses, therapists, and Doctors with his kind heart and perseverance to reign all of his Physical short comings.

After recovering our dad will need 6 weeks of radiation. Without radiation the tumor will be back in 5 years.

So given that, here we are asking for your kokua (HELP) in helping our dad recover fully. All donations will be put toward medical and living expenses. MAHALO NUI!!! Maekayla and Ma'alahi.




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Donations 

  • Ryan Mojica
    • $100 
    • 6 yrs
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Organizer

Ma'alahi Remmers
Organizer
Hilo, HI

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