Help fund Elease's Medical Bills
￼I have never been one to ask for help. My wife was hospitalized back on September 6 from what seemed to be stroke like symptoms. After 3 neurologist confirmed it wasn't a stroke, she's been diagnosed with Dystonia which left her in this condition. After 6 doctor's have deemed her disabled, the disability as you all know are dragging their feet. She has to go to treatments every week just to try and keep it maintained. Because insurance is not paying for her treatments, nor her medicine's, I am reaching out to you for help. We travel back and forth to NC for her treatments and it's going to be a very long process. I'm trying to keep us a float, but with only 1 income, and the tremendous cost of her treatments, medical bills and medications, I would appreciate anything you could give. Please help us if only a dollar, so she can continue to receive her treatments and medicine. Here is a little more info on what she has. What is Dystonia? Dystonia is a movement disorder. Dystonia is characterized by persistent or intermittent muscle contractions causing abnormal, often repetitive, movements, postures, or both. The movements are usually patterned and twisting, and may resemble a tremor. Dystonia is often initiated or worsened by voluntary movements, and symptoms may “overflow” into adjacent muscles. Dystonia is classified by: 1. clinical characteristics (including age of onset, body distribution, nature of the symptoms, and associated features such as additional movement disorders or neurological symptoms) and 2. Cause (which includes changes or damage to the nervous system and inheritance). Doctors use these classifications to guide diagnosis and treatment. There are multiple forms of dystonia, and dozens of diseases and conditions may include dystonia as a symptom. Dystonia may affect a single body area or be generalized throughout multiple muscle groups. Dystonia affects men, women, and children of all ages and backgrounds. Estimates suggest that no fewer than 300,000 people are affected in the United States and Canada alone. Dystonia causes varying degrees of disability and pain, from mild to severe. There is not yet a cure, but multiple treatment options exist and scientists around the world are actively pursuing research toward new therapies. Although there are several forms of dystonia and the symptoms may outwardly appear quite different, the element that all forms share is the repetitive, patterned, and often twisting involuntary muscle contractions. Dystonia is a chronic disorder, but the vast majority of dystonias do not impact cognition, intelligence, or shorten a person's life span.+ Read More
I wanted to give everyone an update on Elease. On Wednesday of last week, Elease was hospitalized for a very bad Dystonia attack. While there they also found out she had pneumonia. She has been sent to a research center upstate that has a DR. that specializes in this disease. He is working to regulate her medications to better control the Dystonia attacks. She is about 2 1/2 hours away. This is going to be expensive treatment but it is worth every penny if it makes her better. If you can donate to help with the cost it would be greatly appreciated. She has still been denied disability benefits and we have no idea when or if she will ever be approved. She has been out of work for over a year now and the medical bills are piling up. I am praying that this DR can help her and she can get back to somewhat of a normal life. Right now she has Dystonia attacks daily. Thank you to everyone who have helped us and thank you to everyone who will. God bless you all.
Elease has had some pretty bad days and has to end up at the er for dystonic storms which is like seizures, but are not seizures. It locks up her entire body sometimes for hours. We have an appointment with a dystonia specialist on April 3rd, at Wake Forest Baptist Hospital. We are expected to stay a few days for testing to see if we can get these storms under control. If you can find it in your heart to help in any way for traveling, medical bills, and medicine's please give what you can. Anything will help and please continue to keep her in your prayers.
Had to take Elease back to the emergency room today. She had a very, very bad attack today. They are referring us back to Duke to see another Neurologist. Please keep her in your prayers that we can find something that will work to keep this terrible disease under control. Thank you for your donations and please share. We need all the help she can get.