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Help for Jaxon and Axel

$12,955 of $30,000 goal

Raised by 90 people in 3 months
Created September 6, 2018
This fund is set up to help my nephew Chris and his wife Michelle, the parents of twins Axel and Jaxon, who were delivered April 26 at 27 weeks gestation, due to complications of a TTTS (Twin to Twin Transfusion Syndrome) pregnancy.  Both had Grade 4 brain bleeds, ROP (an eye condition which could affect their vision), hydrocephalus and Jaxon has hypertonia and may have cerebral palsy.   The NICU at Children's Hospital has been home since shortly after birth but after many surgeries and complications, it is looking like they will finally be going home soon.  Due to their many complex conditions, it will require both Michelle and Chris to look after them full-time, at least for the foreseeable future.  Chris has made the difficult decision to take a leave from work so that the twins can be given the best possible start in life.  In addition to the loss of income this will bring, there will be many additional  expenses that aren't covered.  First time parenthood should be a joyous and exciting experience, not a roller-coaster ride of uncertainty.  Please donate so that Chris and Michelle do not have the additional stress of worrying about their bills.   They have both been incredibly strong through all of this and no one is more deserving of help.  They are an incredible couple who I know would not ask for help but I have chosen to start this fund because I know how much they need the help and how grateful their whole family will be.  For more information on the struggles they have faced, see Michelle's blog:  the fightingirishmartins.com.  No amount is too small!
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Our miracle twins made the news again!
https://www.facebook.com/570769704/posts/10156641610644705/
Please keep sharing and spreading the word!
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This is an example of a day in the life of Chris and Michelle taking care of Axel and Jaxon. Please continue to spread the word.
https://thefightingirishmartins.com/tube-feeding-twins/
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I am sharing Michelle’s latest Facebook update to let everyone know what this family is dealing with on a daily basis. At the risk of repeating myself, please continue to share so we can keep the donations coming in!

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Today is day 7 of all being home but it feels like day 7,398.
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So far getting into a routine is only moderately successful since we are out almost every day at random times for various doctors' appointments, blood tests, ultrasounds and other things. So no one is sleeping well ever, day or night.
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Also found out Axel could have kidney problems and will need another kidney ultrasound. We were told in July the one he had in the NICU was fine, but it was not fine. They found something on it but we were never told. Our pediatrician has ordered another ultrasound. Just keeping track of our daily appointments, ordering medical supplies and returning phone calls feels overwhelming for me at this point. And keeping track of the medical problems the boys have; I often forget things.
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Yes, we are so happy the boys are finally home. But it's so hard. It's not normal to have IV pumps and feeding pumps in your living room. It feels like being back in the hospital, only able to hold your baby 2 feet from their crib due to being tethered by wires and cords. Our home life is far more medical than we thought it would be and it's still hard to accept, especially today when the differences between "us and normal" become more visible in our lives.
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News flash! Axel was discharged today and is finally home with his family! Although it will not be easy for Michelle and Chris to care for these medically-challenged twins, this at least eliminates the long drives to and from Children’s Hospital and they can now learn to be a family at home where they belong. Remember, they still need your help so please continue to share so the donations keep on coming!
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$12,955 of $30,000 goal

Raised by 90 people in 3 months
Created September 6, 2018
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CD
$125
Catherine Dixon
21 days ago
CD
$150
Catherine Dixon
21 days ago
LL
$200
Linh Lieu
22 days ago
$30
Amber Swanson
23 days ago
$100
Betty Ross
1 month ago
RG
$20
Rebecca Gorzynska
1 month ago
AK
$50
Allison Kraus
1 month ago
$75
Anonymous
1 month ago
DD
$50
Diana Dowell
1 month ago
CV
$30
Clara Valenstein
1 month ago
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