Help Brain cancer Zamora fight4life
The update on this journey since July 2015:
We are reseting our goal back to Zero because we have spent her funds for this year and last. We have traveled to Germany to get immunotherapy five times this year, went to Bristol England to place a CED catherder in her brain to put chemo directly on the brain inoperable brain tumor, spend three months in Europe, and flying back to USA to get immunotherapy, and now flying back to London to get chemo again via CED to her brain tumor. She has to go back every 4 weeks and stay a week in London. This will potentially save her life and she is a pioneer for other children with DIPG. The estimated costs will be $15,000 a month with airplane tickets, accomadations, and hospital bills which are not covered by our insurance. This is ONLY done in England at the Harely Hospital for Children. in London.
So after some set-backs earlier this year, we think Zamora’s situation has stabilized enough that she is able to travel.
Typically with cancer, the survival chances are good when it can surgically been cut out. Chemotherapy works somewhat, but when surgery is not an option, like with Leukemia, Chemotherapy can bring up the survival chances up to about 80%.
Unfortunately for Zamora and all the kids afflicted with DIPG, surgery is not an option due to the location of the tumor and its diffuse nature.
Chemotherapy is not an option either as the drug are filtered out by the Blood-brain-barrier that protects our brain from harmful pollutent. That lives us to the unproven, avant-garde therapies like Viro-therapy and immunotherapy. We did that for Zamora, taking her to Germany 5 times to receive treatment at IOZK and it helped keeps her all these months. However, with the pioneering CED surgery she had in Bristol in the Spring to place a port directly into her tumor, we opened up for her a new delivery channel. Now she is finally able to receive Chemotherapy in a way that can make a difference.
She reacted very badly to the first drug we tried in May. But she has now recovered and we are in London trying a different drug.
This time, it looks like she is supporting it well and we are hopeful that it will make a difference.
Unfortunately, accessing her brain-port can only be done in London and we’ll have to be back for new infusion on a monthly basis. This means new expenses to pay for the flights, the living in London while there and the treatment itself. Overall, this will drive monthly expenses of about $15,000. These cost will be monthly.
We appreciate your love, friendship, strength, and support as we face the challenges ahead. Please help us help her live..no donation is too small.
Please if you can spread this around on your Facebook or email to your friends. I am in complete gratitude and humbled by everyones attempt to save our daughter. Much love to everyone..from the sea from the air from the love that warms the earth...
Check out Zamora's links she learn about her journey and treatment she is getting and other info.
The affects Zamora is having now , could be immunotherapy taking its course on her tumor. But DIPG one never knows.
Here is also was an update from her father who reside with her in France now and will fly to London February 9, where myself and Xavia will meet them. If Zamora can fly, if she can. I'm beside myself with sadness, I know I must hit this tumor hard or surely death with follow, what choice do I have besides holding my breath and hope she will again play the violin again? Hope I will see her walk again?
Update from her dad, which he informs me is out of date , because her symptoms have become worse and she has slept all day with concerning Z is settled in France. She gets to rest and get spoiled by her Grand-parents.
From her dad Marc in Germany :
So far she is following the same cycle as her other rounds of immunotherapy at IOZK (this is her 6th). A few days after the inoculation of the Newcastle Disease Virus, her condition degrades as her body seems to be reacting to the invader. That does not last as NDV is lethal to poultry, but is pretty harmless to healthy human cells. The only cells in which it strives in humans are the tumor cells (which apparently taste just like chicken to it).
She is at that stage now and is feeling pretty good. Unfortunately, experience as shown us that once the vaccine induced immune reaction kicks in, the white cells will rush into the pons to clean-out all the infected cells, causing much inflammation. That reaction lasts between 1 and 3 weeks and during that time, her symptoms get much worse, before they get better.
This is the first time we go thru this with the extra punch of the PD-1 inhibitor.
Thank you all for your love and support, it has meant the world to us
But lets be honest, this nine year old girl is beat up. She is emotionally exhausted, her life lies on the line, and she so desperately wants to be normal. She texts me everyday and her little words like "mommy, I love you" "Mommy will help me do school work?" She loves to read and people send her books that a nine year old would want to read, and she reads them all.
I, Marisa her mommy, am back in the USA picking up her little sister Xavia who will turn 8 very soon. I have decided to take her back with me to London where we will live the next five months. I am enrolling Xavia into a school since Xavia is also a French citizen .
Zamoras next infusion of chemo into her tumor will be February 15, 16. She will then rest up and perhaps go back to Germany? We are making sure she can handle all of this. We are making it a very not nice environment for the tumor to live in.
Our accommodation in London will be almost 15,000pounds not dollars!!! for five months rent...eeesh. We are in central London, not in a posh part let me tell you, there are crack addicts right next to the alley, but then again this is London zone 1 and its unbearable expensive. But it is a 30 minute walking distance to the clinic and it is very central.
We are always on a fundraising campaign and are thankful for any amount. If you or your organization wants to do a bake sale and contribute these are some suggestions. People always ask how they can help, and this is an idea? My cousin in Madrid Spain, made pens with Zamoras name on it and she sells them at work...Thank you Mercedes!!
If you have more contact me,,we are grateful as this been a financial drain to save her, but thank to everyone of you it has been possible.
Zamora isn't feeling well today, as her ears are ringing and she is feeling very sad without just having a normal little life. I cry everyday, just being helpless, but trying to bring normalcy into her life.
A news paper is coming today to interview me about Zamora, as she is one of the pioneers in this DIPG fight against this childhood cancer that kills 300 kids alone in the USA. We always think ..it will always be someone else not my kid, well I am that someone else, and I tell you, I don't sleep, and my life will forever be shattered.
Please let Zamora live,,if I write these words hopefully she will be "that someone" that will endure this...
with ❤️ love ...thank you
God bless you all in this world. Always be kind to people, you never know their story....
marisa Zamoras mommy warrior.
( if I have a bunch of grammatical error its because when I write this tears always flow out and I get emotional)
Zamora will go to Germany for immunotherapy at IOZK. I have stopped my life , but my life has not stopped. I have to renew my National Boards as a teacher ( I want to keep up this honor), and there is a multitude of change and sadness in my life that is apart from Zamora. But, as Zamora has taught me, life is a very precarious thing, and the moment is now, not when I get "this age" or time. The past week, our USA oncologist was so convinced "Zamora is going to die", she read the MRI scans to me, and deemed Zamoras tumor had metastasized, and she was sure of it. However, when the tumor board looked at it five days later, after I had gone into a coma state of sadness , they proclaimed there was NO spread of the tumor. The impending doom tumor was given as a matter of fact thing, no social worker, just , yep tumor has spread. Period. Another day at the office, and maybe you can reradiate, but it won't buy you anymore time. I SAY before you deliver bad news double check it.
Zamora is on the edge. She is on the edge where in the next three to four months she will either survive this or not. Yesterday was her second consecutive infusion, where the first day they placed 4ml of carboplatin into her CED and the next day they had to stop at 3ml. Her body became ridged and postured, she began to cry and have pain, so they stopped. The chemo subsided a the pons deflated a bit and she went back to "norm" she was able to eat. She ate some more, then some more. She has gained ten pounds since November which fills me with happiness as she was weighing only about 41 pounds 4'8 height. She is back to her perky self watching "funny animal videos" and reading her book. Elizebeth took a night duty with her, and all Zamora wanted was to be with her anyways. I don't blame her.
She will be released from the hospital today, and then her papa will come Sunday and take her to Germany Monday. I fly back to San Francisco, and then come back February 13.
Zamora will stay in Europe and not come back for a long time.
I do not want her to take any flights, but to Germany for immunotherapy. Theses next months are crucial for her survival.
Xavia her baby sister will be joining us in March.
We will be 19 months past DX very soon.
She is still taking all her alternative meds, eating, drinking and still wanting to fight. We are expecting many bills as we move into a small one bedroom apartment in London, but there is no other place I want to be. I want to be near Harley street near her doctor, who believes in hope. Who believes in a chance. I know I am a fool crazy mom in the eyes of statistics, but then again, this is how airplanes fly and penicillin was invented, along with the internet and computer on which you are reading now.
We have a huge fight ahead of us. Huge. We will be getting her services that are NOT covered by insurance, living in another country, I have left my job as a teacher, and all the while, Im saving a little girl who could change so many views on how DIPG is looked upon and save many children lives.
I ask all of my sweet followers to spread this campaign around, what ever you send us we will be buying groceries, cabs, medicine, hospital care, and helping me pay for my time off as a teacher.
Even 5 dollars helps reach our goal. We are hoping to reach 100,000 that will help us with all airfares, accommodations in London, food and all the other expenses. Thank you each one of you, even if you can just share this page. Help us save Zamoras life, we have made it to this point, no turning around now.
Help save a nine year old who has brain cancer. DIPG, I cannot not even believe she has brain cancer...I just cannot.
Much love and light to everyone.
https://m.facebook.com/story.php?story_fbid=1319644931380396&id=997108126967413 Have you looked into Dr. Burzynski?
I was at my Vet today. My Doctor advised me of a tea that has helped cancer patients ; Cota tea aka " Navajo tea ". Love Craig
You continue to show love beyond boundaries. Zamora is one special baby. This world is full of special people. She is one. You are an amazing mother who will go to hell and back to save their child. My love and prayers hope to reach you. I love you Marisa I love Zamora. Always on my mind. With love, ~Anita
You are not alone. I agree many people forget when you have a child with chronic illness. Their lives keep moving forward because they are supposed to. It's very isolating and scary to have a child who's health is determined by doctors guessing at how to treat. Yet, it's all we have and for that, we are grateful. I will keep praying for your beautiful little girl. Know many care. I feel your pain. I'm so sorry. Know God loves you and is watching over you both.
I'm so sorry you, Zamora and the family are having to go through this. You are in my thoughts and prayers.
I am sending you an angel to hold your hand. You have been through a lot, Mama. I too had a sick child. Hold on to the angel's hand. It's my hand too. No matter what, that angel and I will never let go of you.
Zamora, Happy New Year from Polly and this is fantastic to see you riding a bike again!! You are such a Mighty Girl!!!!! xxxx Polly
I know that fear. It's horrible
Sorry to hear she wasn't feeling too well. Hope she'll feel better soon. With love..
Merry Christmas, Zamora and family! Polly has sent you a little present to your home in Woodside. Stay strong!! We are all praying and sending you healing light. We LOVE YOU!!!
So happy to see this! Have a joyous holiday. xo
Such great news! Go Go Go beautiful, strong Zamora Moon!
best best news ♥
That is one good news. I am cheering for your full recovery.