Help Brain cancer Zamora fight4life
The update on this journey since July 2015:
We are reseting our goal back to Zero because we have spent her funds for this year and last. We have traveled to Germany to get immunotherapy five times this year, went to Bristol England to place a CED catherder in her brain to put chemo directly on the brain inoperable brain tumor, spend three months in Europe, and flying back to USA to get immunotherapy, and now flying back to London to get chemo again via CED to her brain tumor. She has to go back every 4 weeks and stay a week in London. This will potentially save her life and she is a pioneer for other children with DIPG. The estimated costs will be $15,000 a month with airplane tickets, accomadations, and hospital bills which are not covered by our insurance. This is ONLY done in England at the Harely Hospital for Children. in London.
So after some set-backs earlier this year, we think Zamora’s situation has stabilized enough that she is able to travel.
Typically with cancer, the survival chances are good when it can surgically been cut out. Chemotherapy works somewhat, but when surgery is not an option, like with Leukemia, Chemotherapy can bring up the survival chances up to about 80%.
Unfortunately for Zamora and all the kids afflicted with DIPG, surgery is not an option due to the location of the tumor and its diffuse nature.
Chemotherapy is not an option either as the drug are filtered out by the Blood-brain-barrier that protects our brain from harmful pollutent. That lives us to the unproven, avant-garde therapies like Viro-therapy and immunotherapy. We did that for Zamora, taking her to Germany 5 times to receive treatment at IOZK and it helped keeps her all these months. However, with the pioneering CED surgery she had in Bristol in the Spring to place a port directly into her tumor, we opened up for her a new delivery channel. Now she is finally able to receive Chemotherapy in a way that can make a difference.
She reacted very badly to the first drug we tried in May. But she has now recovered and we are in London trying a different drug.
This time, it looks like she is supporting it well and we are hopeful that it will make a difference.
Unfortunately, accessing her brain-port can only be done in London and we’ll have to be back for new infusion on a monthly basis. This means new expenses to pay for the flights, the living in London while there and the treatment itself. Overall, this will drive monthly expenses of about $15,000. These cost will be monthly.
We appreciate your love, friendship, strength, and support as we face the challenges ahead. Please help us help her live..no donation is too small.
Please if you can spread this around on your Facebook or email to your friends. I am in complete gratitude and humbled by everyones attempt to save our daughter. Much love to everyone..from the sea from the air from the love that warms the earth...
Check out Zamora's links she learn about her journey and treatment she is getting and other info.
Thank you all who keep us in your prayers who continue to support Zamora with funds that keep us helping her live. Every one of you have helped this little girl live, she is almost 23 months!!!!
We will continue the CED when two of her cysts go away which they are.
Please continue to help us by spreading her fundraiser around to friends and family, or contributing! Once we hit our goal , we will be set for at least 5 or six more months. We love you!! Thank you again for saving her life.
Love from London on some blue skies (even though its raining here).
I love you all lovelies and thank you for checking in and making sure she was ok. Please continue to share and help us help Zamora live. We could only do this from all your help, it humbles me everyday that this is all possible because of you. We are at 22 MONTHS past Diagnosis!!!!! With all my love,
Marisa Martinez and Zamora Moon
So the PET Scan results were inconclusive. It does not show dead spots that would indicate a dead tumor and it does not show either some abnormal activity that would mean a progressing tumor. The doctor is hopeful, but we stay cautious because DIPG is something that doesn't stop.
It seems that it means that whatever we are doing is working well enough to keep the tumor in check, but not well enough to actually kill it.
Since the tumor is in check, we are staying the course for a while and focusing on Zamora’s well being. She still has an infection in the lungs that apparently is stressing her immune system and making her symptoms worse.
We are still awaiting the green light to be able to start her on hyperbaric Oxygen treatment that might help shrink down the tumor and help her healthy tissue heal, unfortunately red-tape is still in the way.
One positive aspect of the PET Scan result though was that it confirmed that her spine is clear.Much love to everyone, we fight on. Doctor wants to put us on some different chemo which they will put through her body , infuse vitamin C and hyperbaric oxygen .
So we fight on with BIODYNAMIC CRANIOSACRAL THERAPY, which a lovely man name Steve Karle is doing at the Akasha wellness center. We are doing everything we can to help her fight the necrosis, bring down this dead tumor, and fight possible cancer cells from spreading else where. Know why we are here? Because of your support. We still need so much help, 92,000 is not what we have any kore, we have spent most of it, as we have so many hospital bills, physical therapy, hydro therapy and all the meds she takes on a daily basis. She is 21 months past diagnoses . The tumor has not spread, it quite possible be dead. We need to get her back to a clinical state where she feels she can live. We are trying everything from putting her in the pool everyday and trying everything we can to light her candle inside of herself.
Please help us, no matter how small and help us spread this campaign. We have come this far, and we wont stop. They Zamora is a pioneer, uncharted territory...she is making history. Help us save her. We love all of you in this way you'll never understand, every dollar pound rupee , euro, everything has made her come this far. Please help us with our mounting medical bills.
With love, and now evermore hope than ever.
Marisa her mommy, a force of nature not to be reckoned with.
Zamora Team, Rock on
So we had to take a break. I decided to get her into a pool as soon as possible and she is beginning to work with a cranial therapist who will work with her cranial nerves and align her spinal cord.
Her doctor has said her MRI is fine, stable, intact we are having a PET scan, because it is quite possible her tumor is dead, of course with DIPG , that means nothing, even NED is nothing to celebrate, because DIPG comes back almost all the time, all the time making its way into the medulla, the CNS, the spine, the cerebellum , and so forth..no DIPG doesn't sleep, and looks can be deceiving.
She does have Necrosis which has been caused by chemo therapy, which can also be dangerous, and we are afraid, if she does not show any clinical improvement, she will die, of just a heartbreak. She had an awful flu and went to the hospital, her breathing was irregular, I thought I wasn't going to be able to live in a world with Zamora in it. My heart broke, my spirit was down. I just wanted her to live, and there was nothing I could do expect wait...with the faces of the doctors less hopeful, I found the strength and yelled, she isn't going anywhere, so get your"quality of Life" talk away FROM ME!
Your body's tissues need an adequate supply of oxygen to function. When tissue is injured, it requires even more oxygen to survive. Hyperbaric oxygen therapy increases the amount of oxygen your blood can carry. An increase in blood oxygen temporarily restores normal levels of blood gases and tissue function to promote healing and fight infection. We thought this would be a way to start to help Zamora with her necrotic tissue and perhaps deflate the necrotic tumor so she can start to use her legs, arms and to talk again.
We start this therapy hopefully next week. She swims with her papa everyday in a warm pool and has cranial water therapy once a week. The fire inside of her, we want to keep it lit, to keep it from burning out.
We are here because of all of you believing in her. Her spirit, everyone of you has brought this little girl to this place. We are humbled by your love, your donation and prayers. July will be two years past diagnose. Two years because of you. We continue in London and believe in a month or so, she will resume panobinostat MTX-110 through her CED.
Love to all of you,,thank you for helping us.
Hi Marissa! I hope Zamora is well. My name is Rodolfo Garcia. We leave in San Jose,Ca. My daughter is been diagnos with DIPG last year Nov.1,2016. We're in a situation of finding a cure for my daughter Chloe. I would like to ask you about how's the treatment. If you can message me, it will be really helpfull. Thank you!
You are not alone. I agree many people forget when you have a child with chronic illness. Their lives keep moving forward because they are supposed to. It's very isolating and scary to have a child who's health is determined by doctors guessing at how to treat. Yet, it's all we have and for that, we are grateful. I will keep praying for your beautiful little girl. Know many care. I feel your pain. I'm so sorry. Know God loves you and is watching over you both.
Praying for Zamora daily! Hugs, sweet girl!
Praying for Zamora daily and hoping she is not in any pain! Hugs, sweet girl!