Help Brain cancer Zamora fight4life

$42,731 of $100k goal

Raised by 452 people in 1 month
MM
Marisa Martinez  REDWOOD CITY, CA
Please lend support to Zamora Moon in her fight against Pediatric Brainstem Glioma. DIPG. Brain cancer! ugh Our perfect, silly, and lovely, Zamora Moon was diagnosed with pediatric brainstem glioma on July 15th , 2015. This cancer is agressive, so our battle has been hard. "Diffuse Intrinsic Pontine Glioma", is a rare and aggressive brain cancer that affects the central nervous system. The diagnosis was sudden and the prognosis is terminal, there is a 0% surival rate.
The update on this journey since July 2015:

We are reseting our goal back to Zero because we have spent her funds for this year and last.  We have traveled to Germany to get immunotherapy five times this year, went to Bristol England to place a CED catherder in her brain to put chemo directly on the brain inoperable brain tumor, spend three months in Europe, and flying back to USA to get immunotherapy, and now flying back to London to get chemo again via CED to her brain tumor.  She has to go back every 4 weeks and stay a week in London.  This will potentially save her life and she is a pioneer for other children with DIPG.  The estimated costs will be $15,000 a month with airplane tickets, accomadations, and hospital bills which are not covered by our insurance. This is ONLY done in England at the Harely Hospital for Children. in London.

So after some set-backs earlier this year, we think Zamora’s situation has stabilized enough that she is able to travel.
Typically with cancer, the survival chances are good when it can surgically been cut out. Chemotherapy works somewhat, but when surgery is not an option, like with Leukemia, Chemotherapy can bring up the survival chances up to about 80%.
Unfortunately for Zamora and all the kids afflicted with DIPG, surgery is not an option due to the location of the tumor and its diffuse nature.
Chemotherapy is not an option either as the drug are filtered out by the Blood-brain-barrier that protects our brain from harmful pollutent. That lives us to the unproven, avant-garde therapies like Viro-therapy and immunotherapy. We did that for Zamora, taking her to Germany 5 times to receive treatment at IOZK and it helped keeps her all these months. However, with the pioneering CED surgery she had in Bristol in the Spring to place a port directly into her tumor, we opened up for her a new delivery channel. Now she is finally able to receive Chemotherapy in a way that can make a difference.
She reacted very badly to the first drug we tried in May. But she has now recovered and we are in London trying a different drug.
This time, it looks like she is supporting it well and we are hopeful that it will make a difference.
Unfortunately, accessing her brain-port can only be done in London and we’ll have to be back for new infusion on a monthly basis. This means new expenses to pay for the flights, the living in London while there and the treatment itself. Overall, this will drive monthly expenses of about $15,000. These cost will be monthly.




We appreciate your love, friendship, strength, and support as we face the challenges ahead. Please help us help her live..no donation is too small.
Please if you can spread this around on your Facebook or email to your friends. I am in complete gratitude and humbled by everyones attempt to save our daughter. Much love to everyone..from the sea from the air from the love that warms the earth...
Check out Zamora's links she learn about her journey and treatment she is getting and other info.

https://www.facebook.com/ZamoraMoon/
http://www.almanacnews.com/news/2016/03/11/mother-fights-to-save-daughter-with-brain-cancer
http://www.iozk.de/en/info/contact
http://www.ktvu.com/news/24371799-story
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Update 10
Posted by Marisa Martinez
6 days ago
MRI results today. I have slowed myself down and allowed myself to smile again. I have seen Zamora go from bed ridden to smile and talk again and now going back to school also ride a tricycle on her own. My skip in my step returned, my clandestine smile returned, my existential morose raven liking self was subdued by a sudden light that focused and hung around Zamoras existence. Her spirit returned, her voice muted, but I could hear her words. I felt the love from everyone surrounding me, the beautiful Doctor in London Dr. Stergios whose charm of cowboy renaissance and hope that resides with him like a sunset in a warm summer night with toes dipped in warm water eating buttered Nebraska corn with light salt. I allowed myself to feel again, to feel that Zamora will graduate from high school, that she too would be able to have a life beside a hospital room, wondering if perhaps her time was up. Was she to have a time just with her friends to gossip about perhaps her boyfriend her girlfriend? The love of her life? Would she? I sauntered the streets of decorated london with all its lights of festive lore, eating overprices warn crepes sprinkled with sugar, facing hospital room after hospital room laughing in the face of death.
Today. The news mimicked the rain that fell on this California storm that has turned trees down wiped mountains sans rain for years into mudslides of sorrow into under funded paved roads that my car bounces on. The tumor has reached into other areas
yearning for other areas
untouched. It has reached the spinal chord
where her precious mortal body, her body untouched by hate
has been introduced by an insidious cancer that now resides in her body. There is a bright spot in her spinal chord that indicates cancer has spread.
There is a bright spot in her cranial nerve #8 that indicates
cancer has spread.
There is the sun that shines so brightly in her eyes
that must not take my love away.
Heaven is not missing another star. She needs to stay here with me.
The rain poured as I drove to the hospital.
sin la cruz
no hay gloria
but the rain creeped in my car as my tears copied the poring forgotten drought water.
I ran to her infusion room and held her, and she said
mama, am I ok?
am I ok
why are you crying
I said
its the rain.
the rain,
that California has needed so long, all the lakes will now get to drink and all the animals so thirsty will live again.
And she said,
ok mama
So I made a plan to not give up, to go to London again, to put more chemo in her tumor, which in the PONS shows lots of necrosis,
We want to go to Koln Germany IOZK after CED, so we plan to pull both guns of a cowboy
killing it systemically
I know the oncologist in America think Im crazy. Loca
but, then again their child
doesn't have DIPG,
The fight continues, no matter what
the MRI
proclaims.
London calling to the underground,,,,,,,

We need your help friends, please pass this around. We will now be going to LONDON for CED chemo directly into her brain, then Koln Germany to do immunotherapy. Each trip alone for medical will be 10,000 a month not counting the accommodations and airfare. Please pass this on. Please help us save Zamora. We are desperate. She has come so far.
New MRI showing tumor in Pons necrosis .
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Update 9
Posted by Marisa Martinez
9 days ago
Hello team Zamora moon people! Zamora had her MRI full brain and spine . We will get results on Monday. We will travel to London for a full chemo infusion next Saturday . Each chemo infusion will be 7000 US dollars , and we plan to go back for as long as it takes. Minimum at least will be the We will then start the immunotherapy because CED chemo into the brain tumor will not be enough . Please help us get to the next level. She is a pioneer . Her surviving this and doing drugs and multi system approach will change the way DIPG helps save these children's lives. Please view this video and remember every single one of you is responsible for helping us save Zamoras life. Thank you all of you, with my heart . Marisa her mommy. Zamora thanks you for helping her ride a bike again and perhaps dance and play the violin again. ... With love from the universe , stars and heaven above.. Zamora Moon
Zamora with her physical therapist riding a bike!!!!!!
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Update 8
Posted by Marisa Martinez
15 days ago
She should be running around celebrating the new year. The new sun. But with a flight from London we landed yesterday , and her body is tired and listless. Her grandparents from France are here, but she is jet lagged and sad. She makes a walking motion , like when will I walk? Her face is drained of essence and she seems tired . I try and remain optimistic in a world filled with sadness around me. I can't stand seeing perfect families with their children hoping along or look at her brand new baby cousin pictures because it reminds me of days when I held her in my arms and she didn't have a cancer that was killing her. I look away ... Block people and their perfect worlds out of my view. I can't look at anything the same. I can't be the same, smile or even play music like I did. Everyday I try and remain optimistic, but I have left my job, my norm and all I do is think of the next doctor appointment will be. Will 2017 be the year that heals Zamora or kills her. I'm afraid . I'm remaining positive but DIPG kills every child . Every statistic is lined up against me. She is nine. Why me why her??? There is no happiness of this day just stepping into the next day and her waking up and if she eats or smiles it's a good day. 2017 I fear you but remain hopeful. So don't take my Zamora 2017 keep her here with us .Thank you everyone of you for helping us get Zamora to London and Germany and receive ground breaking treatment . We go back to London January 15 for two more rounds of chemo. Please let this heal her... I love all of you for caring so much. It's a hard night to be a mom with a little girl with cancer.. Hope everyone had a beautiful 2017. Love to you all .
Sunset on 2016
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Update 7
Posted by Marisa Martinez
22 days ago
Merry Holidays. Merry Christmas and Happy Hannuka ... We love that you believe in us and you believe Zamora will live. Sending so much to you from London waiting for Santa tonight to bring us some magic .... But as you can see from this photo, there is magic. She is sitting up by herself now. Thank you everyone of you for helping us get here.
Love ,
Zamora team
Zamora just now opening up presents..miracle .
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 2.1K shares on Facebook
Read a Previous Update
Linda Bessette
24 days ago
1
1

Will keep praying for Zamora So happy that she liked the two foxes I sent received yesterday. Love - Linda Bessette

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Kelly Lott Mccallister
24 days ago
1
1

love you baby girl and your family hope all of you have an awesome Christmas david sarah and I love you all

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Robyn Freedman Cornyn
1 month ago
1
1

So happy to hear this amazing news and love the photo of Zamora. Stay strong as you are!!!! xoxoxo

+ Read More
Mac Choudhry
1 month ago
1
1

Amazing news! Great to hear! Love conquers all! :)

+ Read More
Leanne Francis
1 month ago
1
1

You are both my heroes! This is the best news. The most amazing news. I love you Zamora Moon and Mama

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Sean Cunningham
1 month ago
1
1

Wonderful news!

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Dorothy Gray Gurney
5 days ago

I am sending you an angel to hold your hand. You have been through a lot, Mama. I too had a sick child. Hold on to the angel's hand. It's my hand too. No matter what, that angel and I will never let go of you.

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Susan Wyle
9 days ago

Zamora, Happy New Year from Polly and this is fantastic to see you riding a bike again!! You are such a Mighty Girl!!!!! xxxx Polly

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Linda Bickston
14 days ago

I know that fear. It's horrible

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Rosen DA
15 days ago

Sorry to hear she wasn't feeling too well. Hope she'll feel better soon. With love..

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Susan Wyle
22 days ago

Merry Christmas, Zamora and family! Polly has sent you a little present to your home in Woodside. Stay strong!! We are all praying and sending you healing light. We LOVE YOU!!!

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Lisa Press
22 days ago

So happy to see this! Have a joyous holiday. xo

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Lara Hudson Press
1 month ago

Such great news! Go Go Go beautiful, strong Zamora Moon!

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June Hart
1 month ago

best best news ♥

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Nayda Klein
1 month ago

That is one good news. I am cheering for your full recovery.

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$42,731 of $100k goal

Raised by 452 people in 1 month
Created December 2, 2016
$40
Anonymous
1 day ago
JS
$25
Jen Schuster
2 days ago
EC
$50
emmeline craig
2 days ago

Explore... and follow your intuition more than anything else. HUGS... <3

$50
Anonymous
2 days ago
$30
Anonymous
3 days ago
AN
$20
Arun Natarajan
3 days ago
VS
$25
Viswanath Subramanian
3 days ago
$100
Anonymous
4 days ago
AM
$200
Amy Manning
4 days ago

Sending prayers for you in the name of Kira Spedale.

$25
Anonymous
4 days ago
Linda Bessette
24 days ago
1
1

Will keep praying for Zamora So happy that she liked the two foxes I sent received yesterday. Love - Linda Bessette

+ Read More
Kelly Lott Mccallister
24 days ago
1
1

love you baby girl and your family hope all of you have an awesome Christmas david sarah and I love you all

+ Read More
Robyn Freedman Cornyn
1 month ago
1
1

So happy to hear this amazing news and love the photo of Zamora. Stay strong as you are!!!! xoxoxo

+ Read More
Mac Choudhry
1 month ago
1
1

Amazing news! Great to hear! Love conquers all! :)

+ Read More
Leanne Francis
1 month ago
1
1

You are both my heroes! This is the best news. The most amazing news. I love you Zamora Moon and Mama

+ Read More
Sean Cunningham
1 month ago
1
1

Wonderful news!

+ Read More
Dorothy Gray Gurney
5 days ago

I am sending you an angel to hold your hand. You have been through a lot, Mama. I too had a sick child. Hold on to the angel's hand. It's my hand too. No matter what, that angel and I will never let go of you.

+ Read More
Susan Wyle
9 days ago

Zamora, Happy New Year from Polly and this is fantastic to see you riding a bike again!! You are such a Mighty Girl!!!!! xxxx Polly

+ Read More
Linda Bickston
14 days ago

I know that fear. It's horrible

+ Read More
Rosen DA
15 days ago

Sorry to hear she wasn't feeling too well. Hope she'll feel better soon. With love..

+ Read More
Susan Wyle
22 days ago

Merry Christmas, Zamora and family! Polly has sent you a little present to your home in Woodside. Stay strong!! We are all praying and sending you healing light. We LOVE YOU!!!

+ Read More
Lisa Press
22 days ago

So happy to see this! Have a joyous holiday. xo

+ Read More
Lara Hudson Press
1 month ago

Such great news! Go Go Go beautiful, strong Zamora Moon!

+ Read More
June Hart
1 month ago

best best news ♥

+ Read More
Nayda Klein
1 month ago

That is one good news. I am cheering for your full recovery.

+ Read More
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