Help Beth McNulty Battle Mitochondrial Disease
5/15/19: Today I start making appointments for some 'new' tests for a different direction in my "health journey' that may or may not have to do with the lesion and tumor - i'm not sure. We don't really understand where we are heading but the new Nuero is looking at something that none of the other three have mentioned EVER and it makes more sense - and when we have more definitive information I will put it out there but for now I do not want to cause undo alarm. It's not a direction we expected, its not the end of the world - information is key right - we can work with this.
Thank you to everyone who has donated - we really appreciate your help. Especially now more than ever.
I do want to take a second to pat myself on the back - today is the day I donated my Right Kidney Bean back in 2012 to a charming young man who is kind, funny, sweet and made the cutest little girl ever. And I'd give him the other one if i could. Check the box on your license - be a donor and for Pete's sake if you know someone that needs an organ - liver, kidney, marrow - step up and see if you're a match.
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*updated* Beth has always worked two jobs - however - in early December 2018 one of the attorneys at the lawfirm she worked at told her "if you're having seizures I can't have you here"... two weeks later she was let go - the Friday before Christmas. She was not told why. She was told only that she had 5 minutes to gather her things and leave and and never come back. She rarely ever took a sick day even with the diagnosis of a brain tumor and lesion, which causes her to have severe vertigo and balance issues, seizures, headaches and fatigue....
In 2012 she even donated one of her kidneys to someone who needed it! To hear her say it, "it was the right thing to do. And, I had an extra one anyway." She's always one to make people laugh. Beth also co-hosts a monthly open-mic called Nerdy By Nature at Amalgam Comics in Philadelphia.
She has been battling migraines since age six and was diagnosed with epilepsy a few years ago. Now she is facing a recent diagnosis of a CORTICAL DYSPLASIA LESION and a LOW GRADE GLIOMA (brain tumor). Which was actually discovered in 2014 on an MRI taken when she had a stroke. However it was not disclosed to her until June 2018 when she began having serious issues. Someone dropped the ball big time!
I really can't see a better option than to rely on the generosity of the many people who's lives she's touched to help her gain the hope she so desperately needs and deserves.
