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Help Baby Zander and Family

$1,690 of $3,000 goal

Raised by 36 people in 6 months
Created January 22, 2018
Jeremy Hall
on behalf of Annastasia Despaw
I am starting this fund to help out my sister-in-law Anna and family with this very upsetting situation. Last Friday (1/19) she took our one-year old nephew Zander to the hospital due to a constant high fever. Come to find out after a multitude of test he has meningitis and an abscess on his brain. They are attempting to fight it with antibiotics, however if the abscess doesn't shrink on its own, they will have to drill into his skull to then drain the abscess manually.
     He is being kept in Burlington hospital which is over 3 hours away from their hometown. Due to the commute and having no family near the hospital, Anna has taken an extended absence from work. Baby Zander is expected to be admitted for several more weeks which means that is several more weeks that there will be no income coming into their household.  
     I am asking for your help so that during this trying time they are giving their full attention to our little Zander and are not having to stress too much on the financial side of the house.
     Even if you do not have the ability to donate right now, please keep Zander in your thoughts.
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Part II Saturday 1/20/18-Present

Zanders parents decided to share their story about their healthy little boy who had never had any serious illnesses except an ear infection around his 1st birthday. Here is their full account of the events from the beginning. Because of the length of this post I am have to split it in two parts.


Saturday 1/20/18 early morning: Our minds and hearts are being crushed by worry. One of the residents observing the MRI came and talked to us and told us it’s looking to me like an abscess with meningitis. Which instantly I googled brain abscesses and symptoms and bam all of Zander’s symptoms throughout the week clearly notated. So, our next question was how and wtf? So, as he was sedated from the MRI they did a lumbar puncture to test for any underlying issues that would cause a 1.5-year-old to develop an abscess on his brain in a spot that doesn’t make sense. And to see if it was a bacterial abscess or viral. Because they noticed the abscess was communicating with the ventricle which is big words for draining into the ventricle and then traveling through his spinal fluid and being fought by the body. They were successful with the lumbar puncture and found it was bacteria just didn’t know what kind, so they started him on big gun broad spectrum antibiotics until they figured out the species. Because the amount they got from the puncture was just too small to tell a species. Zander continued to be irritable but not lethargic in the hospital. He got a quick kid MRI to look at progress and Neuro said his ventricle is increasing in size because of the communication and is under a lot of pressure and fear it would rupture they suggested a ventricular catheter which will relieve the pressure and allow them to monitor his intercranial pressure and measure his brain fluid output. The amount of puss being displaced by the catheter to the gravity bag was incredible and mind blowing that his brain had this crap in it and how is he able to get rid of it. Zander instantly started feeling better the next day and the fluid kept draining. They took samples of the puss and fluid that came through his drain tube and were able to determine it was Strep bacteria which made it easier for them to give proper antibiotics to kill the bacteria. Two weeks of antibiotic therapy and the drain only helped part of the ventricle and allowed the abscess to wall itself off which they determined from a quick kid MRI. Common reaction with anything in the brain. The antibiotics were killing the bacteria in the ventricle it could get to it could not get into the abscess because it walled itself off which resulted in increasing the pressure on the part of the ventricle that the abscess was blocking.

Wednesday 2/17/18: Before it caused an issue Zanders Pediatric Neurologist decided to do a microscopic procedure which meant she went in and sucked out the puss from the abscess with a needle. His neurologist did an amazing job and was able to suck out almost 10 cc’s of puss. Zander woke up and you could tell he was feeling so much better already playing and hugging everyone. They did a quick kid MRI the next day and the results came back telling us his procedure was successful and his ventricle swelling had gone down and the fluid output from his drain had decreased which prompted them to start weening him off his drain tube because his brain and spinal cord were circulating the fluids properly.
Sunday 2/11/18: They were able to remove his drain tube. Much relief to us because we did not want him to have to have a permanent drain also known as a shunt.

Monday 2/12/18: We were moved out of ICU.

Tuesday 2/13/18: They did another full scale sedated MRI to see how the abscess was doing whether it was decreasing in size or not and to check swelling in his ventricles and brain tissue. To our relief the swelling had decreased, and the abscess had gotten smaller. This prompted them to talk about a discharge plan. Zander had to continue treatment with 2 antibiotics one through his PICC line IV and one orally for the next 4 weeks. We could go home with this if we were comfortable. They offered to train us on how to administer his antibiotics via IV if we were comfortable, so we could go home.

Thursday 2/15/18: We were discharged with training and all his oral medication for the next 4 weeks. They set up Lindcare to deliver his IV antibiotics and a machine to help administer them. They set up a home health care nurse to meet us and show us how to use the equipment. We have a nurse coming once a week for the next 4 weeks to change his PICC line dressing. The rest is all our responsibilities. Anna took the initiative to learn to do Zanders IV antibiotics twice a day for the next 4 weeks at home. Zander still has a lot of recovering to do and a lot of Follow up appointments for MRIs in Burlington for the next year to be sure the abscess is still disappearing, and his swelling is still subsiding.
As always we appreciate all of your prayers and support.

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Part I Sunday 1/14/18-1/19/18

Zanders parents decided to share their story about their healthy little boy who had never had any serious illnesses except an ear infection around his 1st birthday. Here is their full account of the events from the beginning. Because of the length of this post I am have to split it in two parts.
Sunday 1/14/18: Zander woke up and ate breakfast he started acting like he was getting sick not acting like himself sleepy and a bit lethargic but no fevers or other symptoms. Ate all three meals and drank normal.
Monday 1/15/18: Zander continued to eat drink and be less active with a mild fever and we broke it with Tylenol. That night his temperature went to 102.4F and was screaming like he had a headache we broke it with Tylenol and gave him a cool bath until the Tylenol kicked in. Still drinking and eating not acting tired and no other symptoms other than the low-grade fever controllable with Tylenol and the spike at night. Mind you he was sleeping with us because he didn’t feel good.

Tuesday 1/16/18: Zander’s symptoms stayed the same. Low grade fever controlled with Tylenol every 4 hours and switching on and off with Motrin. Still eating and drinking fine and his only symptoms were the low-grade fever. At 2pm we went and picked up the girls from school and on the way home he had thrown up his milk he had before we left. Drank and eat when we got home fine. That night his temperature did the same thing got to 102.4F and we did the same thing got it broken in less than 6 minutes so our sleeping with him was attributed.

Wednesday 1/17/18: Zander’s symptoms did not change, and I made an appointment to make sure he didn’t have influenza because of the continued fevers and he was starting to act sleepy/mildly lethargic. 11am we had the visit with his pediatrician he was tested negative for influenza and were told it could possibly be a viral thing and to just keep an eye on his symptoms. We as parents relieved of course. Rest of the day he ate and drank great was advised to continue with hydration therapy like we have been and to keep watching his temperature was told if it gets above 103 to go directly to the ER or come back. That night same symptom of 102.4F temperature and screaming because of what we think was a headache. Broke with Motrin only this time no cool bath.

Thursday 1/18/18: Zander woke up no fever no symptoms at all, ate and drank all day happy playing with his toys not any signs of being lethargic. Happy baby all day. Seemed himself again like whatever bug was gone. Same symptom that night but this time it got to 103.7F we forgot to turn the heat down and it got very hot in our bedroom, so we accounted for that factor and gave Motrin for the fever and cool bath broke the temp in less than 6 minutes.

Friday 1/19/18: Zander woke up extremely thirsty but acting fine. I decided to give him a sippy cup of milk because he was feeling better and an hour after he vomited the milk fats and became tired it was nap time, so we laid down like normal and when he woke up he threw up the Gatorade and water I pushed on him after throwing up that morning I observed no fluid intake because what went down definitely came up. And he continued to be sleepy/ slowly getting lethargic I kept pushing just water this time and observed him getting more lethargic throughout the day. Still no temp as of Thursday other than at night when we slept. Zander ended up throwing up his water and going back to sleep I kept waking him up and pushing fluids and before anna got home from work I got him to eat some apple sauce awesome I said I got him to eat 5:30pm zander throw up the apple sauce and water intake and went back to extreme lethargic behavior anna also pushed water and tried to get him to nurse while he was being held. Mind you I kept taking his temperature all day to make sure he wasn’t too hot, and he did not have a temperature all day. 6:25pm I took his temperature because Anna said he feels so hot. And the thermometer read normal, so I felt him and said this is got to be wrong I checked myself anna my two girls and all read normal. Five minutes later zander began to have a seizure (Anna has had experience witnessing seizures with her mom, so she knew right away what was happening. If you ever experience seizures which we pray you don’t just remember stay calm do not panic watch their breathing and make sure their head is supported so they don’t choke on their vomit. Bring them to the ER yourself if able call it in it’s much quicker than an ambulance. STAY CALM). I ran out and started both vehicles and told Anna to drive her car because it’s already warm and sent Jayde with her to keep an eye on Zander’s breathing (she did amazing we are so proud). Zander was rushed into the ER where a team of nurses and a clear-headed DR pushed meds to stop his seizing and ordered a CT scan! We were told there was visible indifference on his right side of his brain (an unexplainable mass) and we were getting air lifted by life net to Burlington, VT (one of the best Neuro teams on the east coast) for better treatment and imaging. They got there and rushed him into MRI.

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Have another update from Anna for you guys. Zander is showing major improvements. The next four weeks he will be on antibiotics and the next 6-12 months will be lots of doctor appointments even after he leaves the hospital. Once again thank all of your for your support.
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Help Baby Zander and Family has reached 50% of its goal. Thanks to Grampa And, Karen & Jack and Johnna.
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$1,690 of $3,000 goal

Raised by 36 people in 6 months
Created January 22, 2018
Jeremy Hall
on behalf of Annastasia Despaw
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