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Help Annie Fight a Rare Cancer

$45,343 of $50,000 goal

Raised by 351 people in 13 months
It is with a terrible sadness that I (Patricia Boissevain) share the news that my sister, Annie Boissevain, has been diagnosed with Stage 4 Sézary Syndrome, an extremely rare form of cancer involving her blood cells, lymphatic system, and skin cells.

Countless people know and love her and ask the question, “What can I do?". This donation page has been established to help Annie with her long road ahead. Annie would never ask for anything like this, but her dearest friends and I have set up this campaign to assist with expenses and to keep you updated on how she is doing. Funds raised will be used for uncovered medical bills, travel expenses and housing during treatments.

She is now facing a long and complicated treatment plan that includes Campath injections three times a week, followed by TSEB (Total Skin Electron Beam Therapy) and then Stem Cell Transplants – a very long haul and one that we intend to take with her. Mass General Hospital in Boston is one of the few hospitals where she can receive the Campath. It is essential for Annie to stay close to the hospital even though it’s far from her home, family, friends and her beloved dog, Miles.

Annie has uplifted many lives through her generous and hilarious spirit. She has volunteered as a Coastguard Auxiliary, ESL teacher, Triathlon for YMCA, Run for Safe Passage, and she and her therapy dog, Miles, provide affection and comfort to children and adults in hospitals and nursing homes. This is who she is – a woman who wants to be part of the solution and who brings hope into the hearts of others.

Annie’s mission now is to help raise awareness of Sézary Syndrome which will undoubtedly lead to quicker diagnoses, less suffering, and better outcomes for others in the future. Our main goal is to bring her home safe and sound. We need your help to make this possible.

With all my heart, I thank you.
- Patricia Bossevain

ANY AMOUNT DONATED WILL BE GREATLY APPRECIATED! PLEASE CONTINUE TO SHARE ANNIE’S STORY!
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Hi All --- it's Beth here... I wanted to give a shout out to all of those who have donated in the last few days. THANK YOU so much for your generosity and kind words of love and encouragement. I feel like this is the time Annie really needs it more than ever! She is struggling with a deep sadness from the loss of her past way of life. Her body is still very weak. The little things that we sometimes take for granted, like going to the bathroom can be challenging for her.
Annie has been away from home for almost 8 months!! When she gets home, she will not only have to completely adjust her lifestyle, she will need to make adjustments to her house, like installing railings in the bathroom. She will need to be extremely diligent about staying healthy. It will be full time job. I can imagine that the thought of going home for Annie is unbelievable overwhelming!! I am pretty sure she has to revaccinate with all the standard childhood vaccines!! When I heard this it really drove home the idea of the new life Annie will be creating when she gets home.
As I am writing this, my heart breaks for her. I have known Annie since we were 21! We grew up together and will grow old together... just not the way we thought we might. Life has a way of doing that.
As always loving you all so very much and.. thank you. Thank you. Thank you.
xxoo
Beth
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Happy New Year everyone!!
From my understanding all of Annie' s blood counts are where they should be. She is recovering , but very slowly. She told me that she had no idea how shitty she would feel and it's frustrating. She is exhausted and very weak. All to be expected as doctors say. She still has a very long recovery ahead of her. Every day is a challenge as it come with ups, downs and with unknown territory.
Patricia is taking excellent care of her daily needs. She is the cook, the cleaner, the line flusher, the CNA, you name it - she does it. Such a blessing to have a wonderful sister. Love you with all my heart Patti!!!

This update from Patricia (Dec 31)--

"Annie's recovery is very up and down and it is never possible to detect how she will be. For example - today is not a good day.
There are some days she has no energy at all and can't make it to the bed from the shower without leaning on me. Other days she seems much better. But always vulnerable.
She needs help on a daily basis and because of this, we have cancelled any visitors and caregivers till the end of January.
Also - Annie cannot have any surprise visits from anyone at this time. She rarely texts anymore in order to reserve energy.
She is still very susceptible to infection and has to take precautions."

As always Annie has such deep gratitude for ALL of you!! She feels your support daily and it lifts her spirit.

2018 will be a challenge. We are up for it!!
Love you all!
xo
Beth

PICTURE FROM DEC 17 photo credit: Karen S








PICTURE FROM DEC 17 photo credit: Karen
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LONG OVERDUE update!!
I was at MGH Dec 18/19. Annie was tired but in fairly good spirits. Doctors and nurses felt that the stem cell engraftment was occurring at that time. So far everything is moving forward as it should be.

With Karen's help Annie moved to Hope Lodge on Friday (12/15). The transition has been extremely difficult for Annie, she is emotionally and physically drained. She has lost all of her hair now :-( and that really sucks!! She said that she was shocked at how bad she felt. It's making her sad and frustrated. All the physical agony is normal as her blood counts are returning to normal.

A note from Karen S:
Hope Lodge is amazing. A caring, helpful staff...beautiful common spaces. Fantastic kitchens (yes there are 4 and each person is assigned to one) with every pan and kitchen gadget you may need. Laundry and laundry detergent on every floor at no cost They have shuttles to hospitals and food markets. They have an art room, game, movie and yoga room. And Annie loves her bed! She is now getting real sleep without being woken for any number of things during the night at the hospital.
She was quite pale when she got here and her color has improved already.
Annie is still overwhelmed by all the support you are giving her. It really makes her emotional.

NOW BEAUTIFUL PEOPLE--- We still need more donations!!
Please remember Annie at Christmas time because bills need to be paid at home, she has plowing and heat.. and the need for healthy food from Whole foods. Her disability has not been approved yet though we don't think she will be denied again.

HAPPY HOLIDAYS TO ALL OF YOU!!! CHEERS TO GOOD HEALTH AND FAMILY!!

MUCH LOVE xxoo

Beth
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FROM PATTI:

The stem cell infusion went very well. It was actually a beautiful experience with the blessing and then the music therapist came afterward and we all played music together.

THE SCARY PART STARTS NOW... a stem cell transplant is a very complicated procedure and the chemo Annie had a few days ago will hit her around this Friday. She will decline and become exhausted. Her new cells will take weeks to engraft and during this time she is extremely prone to infection, so we are not out of the woods yet.

Annie had us all laughing so hard during the infusion.

She is amazing but we still need all the prayers, love, and support we can get.
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$45,343 of $50,000 goal

Raised by 351 people in 13 months
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