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Hedda's Heart Transplant

$31,165 of $40,000 goal

Raised by 513 people in 3 months
Created November 24, 2018
34809994_1543091478798348_r.jpegThis is  Hedda.  She needs a new heart.  Hedda has severe life threatening Congestive Heart Failure induced by 2005 chemotherapy for aggressive breast cancer. The chemo damaged her heart beyond repair. Doxorubicin Cardiomyopathy. After many different heart treatments, in January 2017 she was forced onto disability and into the Meijer Heart Center Heart Failure Clinic. After many medications and treatments, her doctor referred her for a LVAD Left Ventricular Assist Device as a bridge while awaiting a new heart. Hedda is a young, 60, and has at least 20 more years of life in her...if she can get a new heart. She was an active dog walker and pet sitter locally, Urban Tails. 

Hedda's heart deteriorated to life threatening condition back in September 25, 2018. November 16 she was admitted to the Heart Center and started on a continuous Milrinone IV. This is only a very short term- life saving drug. On Tuesday, November 20, the heart transplant team met and decide Hedda needed to fund-raise $10,000 to be considered for placement on the transplant list. Anti rejection drugs are expensive in the USA.   See the attached letter.  This will cover the 20% copay needed for two years of anti rejection drugs.  The transplant team does not want to "waste" a vital organ if Hedda cannot afford heart rejection drugs. Understandably.  However, they were not willing to put her on the transplant list even knowing it would still give her time to raise money over a year or so through family and friends. Hedda has received a LVAD (left ventricular assist device) as a bridge to transplant. It is a temporary fix until she gets a new heart. Hedda will still needs more funding to get her thru the next months while awaiting a new heart.  We, Hedda's Care Team, are asking for anything you may be able to afford. We need to keep Hedda on the heart transplant list and the current out of pocket costs are several hundred dollars a month. Please help if you can.

Hedda was discharged home on December 18, however she has had to return several times to the Emergency Department for re-admission and observation due to VAD alarms. 

All goals are met. Hedda needs to build some strength and boost her diet. When a heart becomes available, Hedda will be ready and will persist. 

Love to you all. 

Hedda.Britt@gmail.com
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To you all. Your kindness will never be forgotten.
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This is what the implanted LVAD looks like.
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It’s been about 6 weeks since the lifesaving LVAD was implanted on my failing heart. Since my hospital discharge I’ve had to return several times for short visits due to low flow pressure and alarms. After some tweaking and adjustments to fluid levels and adjustments to medications looks like the slow flows are pretty much corrected. My fabulous medical team and my home care team are in the process of learning more about heart transplant. As we all know I was approved for the heart transplant list thanks to all of your generosity. No idea how long the wait will be. But the LVAD as a life-saving device has allowed me to be at home while awaiting a heart. I have a little more strength, I am breathing a bit better, I still lack a lot of energy but I can do more things for myself. I am still under 24 /7 care at home. I am forever grateful to my son Alexander and my dear friend Darcy for putting their lives on hold and making sure I get the care that I need.

I have been writing letters, emails, and making phone calls to state and federal representatives. I am working diligently to make my voice heard about the ridiculousness of lack of funding and assistance for a heart transplant patients. There was a story on the local WOOD TV 8 news yesterday morning that stated in America heart patients are paying more out-of-pocket costs than ever before which means many who cannot afford that are going with out Care. Love to you all. I will keep you updated on the heart transplant.
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Organ donation is an important decision.
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$31,165 of $40,000 goal

Raised by 513 people in 3 months
Created November 24, 2018
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