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Health Insurance For Angel

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Meet Angel, a 32-year-old legal professional with a beautiful smile and an awesome personality.  Angel graduated from Loyola University Law School and is currently studying for the bar exam.  She loves her dog (Jupiter) make-up and shoes.  She is a huge history buff and is a loyal New Orleans Saints fan.  All of these things make Angel your average hometown girl. But Angel's life is anything but ordinary.  Three years ago, Angel was diagnosed with Hereditary-Spastic-Paraplegia.

Hereditary spastic paraplegia (HSP), also called familial spastic paraparesis (FSP), refers to a group of inherited disorders that are characterized by progressive weakness and spasticity (stiffness) of the legs. Angel's symptoms started to present in her early 20s.

Early in the disease course, there may be mild gait difficulties and stiffness. These symptoms typically slowly progress so that eventually individuals with HSP may require the assistance of a cane, walker, or wheelchair. Angel now has as her constant companion, her pink wheelchair, Penelope.

Though the primary features of HSP are progressive lower limb spasticity and weakness, complicated forms may be accompanied by other symptoms. Angel is also plagued by ataxia (lack of muscle coordination) and epilepsy. She is in near constant pain and recently underwent surgery to have a pump implanted to distribute medication to help control her muscle spasms. There are no specific treatments to prevent, slow or reverse HSP.

Even while dealing with these issues, Angel maintains the attitude that she is not "disabled".  She has continued to work in order to pay for medical insurance and additional expenses not covered by insurance.  Her resilience is inspiring.

Recently, Angel was dealt a set-back when she was laid-off from her job.  She had hoped the lay-off would be temporary, but unfortunately that may not be the case.

This GoFundMe account is being set-up to help Angel cover the cost of her medical insurance and to help raise funds for a new wheelchair (which she will require soon).

Thank you for taking the time to read this.  And thank you in advance for donating to this worthwhile cause.  If you would like to learn more about HSP or donate to HSP research, please visit www.ninds.nih.gov/Disorders/All-Disorder/Hereditary-Spastic-Paraplegia-Information-Page.

Organizer

Lori Barnes
Organizer
Hahnville, LA

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