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Healing Hampton's Heart

$83,314 of $85,000 goal

Raised by 1,011 people in 23 months
On March 17, 2017  Jessica and I (Joe) just found out we were having another little boy in August. We were excitedly running through a list of boy names, laughing, and waiting to talk to the doctor. Our normally happy, upbeat doctor came in the room with a somber look on her face and shared with us some news that we never expected to hear. 

Fast forward through the next 5 months that were filled with endless appointments with maternal fetal medicine specialists, pediatric cardiologists, and a number of other doctors and nurses at the Medical University of South Carolina. 

On August 13th 2017 our baby boy, Hampton Richard McDevitt, was born weighing 6lbs 12oz. He was offically diagnosed with tricuspid atresia, hypoplastic aortic arch and right ventricle, transpositon of the great artieries, ventricular septal defect, and atrial septal defect. Needless to say he has multiple congenital heart defects and without medical intervention would not be with us for very long. He was immediatly stabilized and taken to the Pediatic Cardiology Intensive Care Unit (PCICU) where he will be closely monitored.

With Hampton's medical condition, he will require a series of open heart surgeries over the next three years with his first surgery happening on Thursday, August 17th, 2017. His condition is not curable but with these surgeries we hope he will live a fairly normal life. 

So many people have reached out to ask how they can help and we are grateful for all the support we have received so far. Our greatest need at this time will be financial and moral support as we will incur a large number of medical expenses through multiple surgeries, procedures, doctor visits, and a prolonged hosiptal stay at MUSC. 

Given our circumstance, we feel so blessed and thankful for our son and want nothing more than to see him pull through this and live a thriving life. We will rely on our faith in our loving Heavenly Father and know that He has a plan for our lives and our baby boy's life even though we may not see it yet. Lastly, we are incredibly thankful for the entire staff of knowledgable and experienced doctors, nurses, techs that will play a pivotal role in providing Hampton with an oppotunity to live and thrive. 

Thank you to all for your love and support. Our family will be forever grateful. God Bless.

Trust God... Period. 

Joe, Jess, Miller, and Hampton 
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Hi friends,

We have been home for almost a week now and our lives are back to normal for the most part. Although Hampton’s pulmonary vein disease has progressed and that third vein is almost gone, he shows no signs of it on the outside and for that we are thankful.

He is happy and energetic. He has a smile that will warm your heart and a laugh that will make you smile. He is constantly on the move trying his best to keep up with his older brother. He loves to play with trucks and trains. He loves to watch tractors and air planes. He is learning new words by the day and loves to clap his hands while he plays. He loves to give high fives and and with a huge grin on his face is fascinated with picking his nose even when I playfully tell him to not do it again. Yes, this disease may be progressing on the inside, but to the outside world he still remains full of life, laughter, and love. We are blessed beyond measure to be his parents.

Friends, Jess and I have considered our options and have made our decision as to the next steps and how we will move forward for now. We have had many extremely difficult conversations over the last week. Conversations and decisions that I would never wish upon any parent when talking about his or her own child. Ultimately though, we all want what is truly best for our children and for us that is to be home and happy.

While Hampton is still doing well, we are going to take our first true family vacation and will be going to the Florida Keys for a week. This is our first step in moving forward. Make some more lasting memories in the clear blue waters with our boys.

Friends, we will never give up or lose hope through all this chaos. Our God’s hands are bigger and far more capable than the most renowned and skilled surgeons. God has a masterful plan and as humans we are only capable of seeing the present. The here and the now. He knows the future. He knows how this will play out. He gives us true Hope.

“For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future. Then you will call on me and come and pray to me, and I will listen to you. You will seek me and find me when you seek me with all your heart.” Jeremiah 29:11-13.

Our greatest hope can be found in Christ and that is where we find out comfort and strength through this. Let’s also not forget this... Hampton has fooled us a few times already and that is why this boy will always be my wildcard.

Trust God... Period


Pictures by Taylor Lauren Barker
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Hi friends,

I dropped my phone for prob the five hundredth time and my screen shattered, so updates are difficult as I can’t really see my screen. With that being said this will be a short update until I have a new phone, in which I will share our thoughts on this week.

Hampton’s cath procedure was Tuesday morning and revealed that his pulmonary vein disease has progressed to the point where medical intervention is no longer an option. He came out of the procedure and it took around 36 hours for him to tbecover back to his normal self. We spent Tuesday and Wednesday in the hospital and will be discharged today/Thursday. We fly back to Charleston (home) tomorrow morning.

Jess and I are exploring some other options and will gather more info over the next week. We will not give up on Hampton or lose hope. It’s all in God’s hands now as it has been from the very beginning.

The outpouring of support over the last few days has been incredibly uplifting. We sincerely thank you all for the messages, prayer, and encouragement.

In closing, Hampton is back to his normal happy, smiley self and we are thankful for that. We are going to go back home, evalauate our remaining options, and enjoy every single day as if it were our last.

We love you all and are forever grateful for following our story. It’s not over and who knows what God still has in store and how this will all play out. He is in control.

Trust God...Period
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Hi friends,

After waiting for 3 hours in our pre-op room, we finally handed Hampton off to anesthesia at 1:30pm. This procedure should last around 3 hours. Will provide an update on how it went this evening.

Now the real waiting game begins.

Trust God... Period
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Hi friends,

We made it to Boston yesterday (Sunday) for our third cath procedure.

Today was a relatively easy day as far as testing days go. Hampton had his vitals checked, an EKG, chest x-ray, labs drawn, and an echo. We also met with Dr. Callahan and a handful of nurses and nurse practitioners.

He’s ready to go for tomorrow. We’ll arrive at 10am and his cath will start around 11am. It will be a long day of anxiously waiting during the procedure and recovery following the procedure. I will send out an update tomorrow night.

Thank you for your support and prayer.

Trust God... Period.
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Raised by 1,011 people in 23 months
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