Rhielle's Medical Fund

$26,962 of $25,000 goal

Raised by 280 people in 44 months
It is very difficult for us to write this story about our daughter because in our eyes, she is perfect in every way.  However, on August 11th, 2014, our lives changed forever.  I was changing Rhielle's diaper that morning and noticed that her tummy looked rather distended. I had never paid much attention to this before because all babies have rather full looking bellies.   But that day, it felt hard and looked to be an odd shape.  She had also been very fussy for the prior few weeks so I figured it was a dietary thing and that I should bring her to see her family doctor for a second opinion about maybe changing her formula.  The secretary fit us in that day and within five minutes of the doctor checking her over, he immediately told us to go down to MacMaster Hospital Emergency Department.  We did what we were told assuming it was maybe a bowel obstruction or something along those lines.  The ER doctor examined her and told us that her liver was enlarged and that everything was pushed to one side.  He sent us for an X-Ray, an ultrasound and blood work right away.   A few hours later he returned telling us that her blood results were extremely low and that she had a large mass on her left side.  He told us that it was most likely cancer.  We immediately broke down and I cannot describe the feeling that we felt that night.  It was the worst possible feeling and I could never exactly put it into words.  We were being told that our three month old daughter had cancer.

That night, she was admitted into hospital as an inpatient.  She was very pale and very weak.  They gave her constant blood transfusions, IV fluids, etc.  They did an MRI and told us that the mass was too large to safely remove by surgery and that they would have to do a biopsy of the mass first and send it for testing to confirm the type of cancer.  They confirmed it was Neuroblastoma, a solid tumour cancer that is commonly found in infants.  The tumour starts in the adrenal gland above the kidney and wraps around major organs and arteries.  They had to start immediate chemotherapy to shrink the tumour first before they could remove it.  By the time we brought her in, it had already spread to her liver and lymph nodes. 

The first cycle of chemo made her tummy shrink significantly.  Her own body was starting to produce red blood cells and platelets on its own so they were reducing the amount of blood transfusions.  We were thrilled that she was starting to feel better, her tummy was shrinking and she was beginning to eat well again.

However, by the end of August, the doctor called a meeting with my husband and I and told us that they found a tumour marker called an "N MYC" gene.   This makes her cancer even more aggressive and automatically put her as high risk.  The doctor told us that they would have to use high-risk chemotherapy and that her chances of survival were around 30%.  As a parent, the feeling of being told that your brand new baby has only  a 30% chance of survival is absolutely the worst feeling I could ever describe.

Since that day, she has underwent 4 rounds of chemotherapy.  She is currently six months old and is taking well to treatment.  We are so thankful for that.  She still has another 4 rounds or so of chemotherapy to go as well as a stem cell transplant that will be done in Toronto at Sick Kids Hospital.  Surgery to remove the main mass is currently scheduled for the end of December.

We are asking for any sort of help from anyone for her long list of medications that she gets now and that she will continue to need in the future.  Parking passes, transportation for clinic visits twice a week as well as hospital admissions, medical equipment that we have to purchase ourselves for at home care are also of great expense.  I am currently on maternity leave but will have to return to work before Rhielle is completely finished treatment.  We are asking for help so that I can stay with her for her care and hospital visits and be by her side for all of it.

We are so thankful to anyone who can donate towards Rhielle and her medical care.  Thank you in advance from the bottom of our hearts.
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Just wanted to post a recent update on Rhielle for those following her story..
She completed 6 days of targeted Radiation & 6 cycles of outpatient Chemotherapy since her last relapse in October '17. We got news today that she is back in remission with no evidence of disease on scans. The Pelvic spot (where she last relapsed) back in October was clear on scans today as well as all other areas. This will be her third time in remission after three times of relapse but we remain hopeful that this time will be for good!

She will still have to continue with many cycles of Chemo even though she is clear at the moment, to try and continue to keep disease away. Because she has relapsed a number of times, the Medical Team is no longer following any structured protocol. When we have stopped treatment in the past..disease has always reappeared so we will continue treatment for now unless her body gets to a point where it can no longer tolerate the side effects..

Greg & I are mostly in the position of deciding how much more Chemo to do and when or if to stop. Of course we have no way of knowing if any cells are hidden or if she is 100% clear so it is very difficult, as parents, to know the balance between too much treatment and trying to kill any hidden cells.

Please continue to keep her in your prayers as they have definitely been working! She just had her 4th Birthday and she is truly a miracle.
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After completing a second full course of treatment under a month ago.. we have just been told that Rhielle has relapsed a second time. The new spot was found in her leg and is now with bone involvement. The only options we really have now are to either leave it and not do any more treatment so that she can live the rest of the time free from any drug related sickness...or to try and do radiation again with a combination of some chemo with the small chance of cure anyway. We have decided to continue to fight this and not give up hope. I am updating on here to inform our family and friends as a whole. Our hearts are completely broken once again. Please continue to pray for our little girl.
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Just a little update for the ones who are following Rhielle's story.....

She has completed what needed to be done (treatment wise) in New York and after many discussions and decision making between all of the medical teams involved in her care, we are thankful to say that we are able to carryout the remainder of her treatment back at McMaster Hospital.

After receiving news that they had found a new spot on her liver and waiting for results, we are so very thankful that the results came back negative and that she remains clear for any evidence of disease.

Her next and final treatments are called Antibodies or Immunotherapy, which she has had before. These cycles of treatment work by killing off any cancerous cells that may be lingering and that are undetectable by scans. They are very painful and very hard to put her through, especially a second time, but we know it will be worth it.

Thank you for the continued prayers for strength for her as she faces the next set of treatment challenges and thank you for your continued prayers that this disease stays away....this time for good. ✝
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Back in NYC for Rhielle's second treatment which is scheduled for tomorrow.
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Read a Previous Update
Marje Fidanza
3 months ago
1
1

I am Rhielle s Grammie and just want to let everyone know that we really appreciatiate all the donations , prayers and support from everyonr. We could not have made it this far without everyone s kindness and support. Thank You everyone and please continue to pray !! This little angel is a true blessing to all of us and a true gift from God.

+ Read More
Maggie Finch
7 months ago
1
1

I pray that your faith stay strong, I'm sorry you have this kind of trial in your life. Every moment is so very precious, I pray (in Jesus name) that you see the Lord in every minute, hour, day, week, year, and may His hands work through those Doctor's whom we put our complete trust in. I thank our Father for allowing us to witness His miracles from begging to end. I'll keep you all in my prayers and pray for the strength, courage, and faith that whatever the outcome this is God's plan. Love from an old friend, xoxox

+ Read More
Marje Fidanza
8 days ago

I am ever so grateful that Rhielle,my grandaughter ,received these good results,something I have been praying for since day one.With the help of the medical team and Divine Intervention I believe with her strong courage and our faith she will continue to thrive . I love you Rhi from Grammie

+ Read More
Beverley BRown
8 days ago

Delighted for you all. We get regular updates from Rosemary and our thoughts are always with you. She’s a wee star and we keep fingers x for her each and every day

+ Read More
Theresa D'Avella
8 days ago

Great News!....... thoughts & prayers to you all xo

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Annemarie Umm Yasmina
7 months ago

So sad to read this. My prayers and thoughts are with all of you. Much love from Holland

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GregandEva Hattie
17 months ago

Hugs Rhielle from Babba Love u to the moon and beyond

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Leigh Sebastian
19 months ago

So sorry to hear of this. Praying for your family! Have you heard of http://www.angelflight.com ? Maybe they can help! Best of luck Xo ❤️

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Jenelle MacLeod
20 months ago

Always have you guys in my prayers, hoping for this beautiful little girl to get better love you guys!

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$26,962 of $25,000 goal

Raised by 280 people in 44 months
Created November 9, 2014
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She is the most beautiful girl and very strong.

$20
Jenny Lo
6 months ago

Vesna Helene

$205
Jenny Lo
6 months ago

Behalf of all these wonderful souls : God Bless. Helene B W Brandi Sarah W Michelle DS Amy M Cassie Kerry M Helena R Lindsay M Lynn H Denise L K Kristina Tracy Tanya M Katelyn Debbie L Kathryn Jessica S Ash D Lyndsay G Nina K Ann G Melissa D Kat S Deanne R Deanne W Deanne F Deanna H Shawna L Maria G E Giovanna C Sandra P Jennifer K Christina F Tasha L Heather T Guia S Marita B G Judith L

$15
Anonymous
7 months ago
Marje Fidanza
3 months ago
1
1

I am Rhielle s Grammie and just want to let everyone know that we really appreciatiate all the donations , prayers and support from everyonr. We could not have made it this far without everyone s kindness and support. Thank You everyone and please continue to pray !! This little angel is a true blessing to all of us and a true gift from God.

+ Read More
Maggie Finch
7 months ago
1
1

I pray that your faith stay strong, I'm sorry you have this kind of trial in your life. Every moment is so very precious, I pray (in Jesus name) that you see the Lord in every minute, hour, day, week, year, and may His hands work through those Doctor's whom we put our complete trust in. I thank our Father for allowing us to witness His miracles from begging to end. I'll keep you all in my prayers and pray for the strength, courage, and faith that whatever the outcome this is God's plan. Love from an old friend, xoxox

+ Read More
Marje Fidanza
8 days ago

I am ever so grateful that Rhielle,my grandaughter ,received these good results,something I have been praying for since day one.With the help of the medical team and Divine Intervention I believe with her strong courage and our faith she will continue to thrive . I love you Rhi from Grammie

+ Read More
Beverley BRown
8 days ago

Delighted for you all. We get regular updates from Rosemary and our thoughts are always with you. She’s a wee star and we keep fingers x for her each and every day

+ Read More
Theresa D'Avella
8 days ago

Great News!....... thoughts & prayers to you all xo

+ Read More
Annemarie Umm Yasmina
7 months ago

So sad to read this. My prayers and thoughts are with all of you. Much love from Holland

+ Read More
GregandEva Hattie
17 months ago

Hugs Rhielle from Babba Love u to the moon and beyond

+ Read More
Leigh Sebastian
19 months ago

So sorry to hear of this. Praying for your family! Have you heard of http://www.angelflight.com ? Maybe they can help! Best of luck Xo ❤️

+ Read More
Jenelle MacLeod
20 months ago

Always have you guys in my prayers, hoping for this beautiful little girl to get better love you guys!

+ Read More
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