Lillian Grace Smith
Ben and Kathleen\'s 5 1/2 month old daughter, Lillian Grace, was admitted to Children\'s Hospital on March 7, 2012 due to concerns with her loss of mobility and muscle control. After extensive metabolic, neurologic, and genetic testing it was determined that Lily has a rare, degenerative genetic disorder called Krabbe disease. They have been told that she is only going to be with them for a short time. In that time her functions and mobility will steadily decline. There is very little that they can do except help Lily cope with the pain and surround her with love. Please continue to pray for comfort for Lily and strength for their family. Thank you all for your love, support, and friendship in this very difficult time.
For more information on Krabbe disease, please visit the following websites:
http://www.ninds.nih.gov/disorders/krabbe/krabbe.htm
www.caringbridge.org/visit/LillianGraceSmith
