The Morse Miracle Fund
Jeff and Piper have elected to pursue the surgery for Grayson because it will extend his life to 10-15 years and it will be able to save, among numerous things, his vision, hearing, and hault the progression of this disease.
I am Meagan, Jeff's sister and the proud auntie of Grayson. Little Grayson was diagnosed with Krabbe Disease in May 2016. Krabbe disease (globoid cell leukodystrophy) is a rare neurological degenerative disorder that affects the myelin sheath of the nervous system. If untreated, those affected have a life expectancy of about two years. Unfortunately, there is no cure for Krabbe Disease at this point. More information on Krabbe Disease can be found here: http://www.mayoclinic.org/diseases-conditions/krabbe-disease/basics/definition/con-20029450
Jeff, Piper, and Grayson visited the Children's Hospital of Pittsburgh the week following Grayson's diagnosis to meet with highly specialized, Dr. Escolar. (More information on this amazing place can be found here: http://www.chp.edu/our-services/rare-disease-therapy/conditions-we-treat/krabbe-disease )
Grayson underwent countless tests to confirm the diagnosis and the progression of it. Dr. Escolar is confident that a cord blood transplant would benefit Grayson and extend his precious life.
Grayson will undergo a surgery for a feeding tube placement, a surgery for a central line placement, then will begin chemotherapy. Once all of that is done, the transfusion of cord blood will begin. All of this will take place at The Children's Hospital of Pittsburgh. Piper and Grayson will have to remain in Pittburgh for about 6 months for all of his treatment and recovery. Jeff will remain in Idaho to work, but will travel to Pittburgh as much as possible to be with Piper and Grayson.
Your donations will help with the extensive medical bills that Jeff and Piper will receive from Grayson's treatment, the family's travel expenses coming to and from Pittsburgh, lodging for Piper (The Ronald McDonald House currently has a waiting list), the cost of insurance, and any other expenses that may come up during this difficult time.
I, along with Jeff, Piper and all of our family, cannot thank you enough for the love, support, and prayers they have been receiving and are continuing to receive. Every dollar donated is a step in helping Jeff and Piper give Grayson the best life possible. Grayson is the luckiest little guy to have such amazing and loving parents and we are even luckier to be blessed with having Jeff, Piper, and Grayson in our lives.
Jeff and Piper have created a Facebook page to keep everyone updated on Grayson and his care. https://www.facebook.com/graysonssmile/?fref=ts
Dear Lord, Please help this family! Show them some comfort and grace during this difficult time! Open the hearts of the insurance company that would not cover the treatment that is so badly needed but most importantly - Lord- help make sure our frequent posts will get this family enough money to get their precious little one the medical care that is needed! In Jesus name I Pray! Amen! #SaveBabyGrayson
GRAYSON'S SMILE BENEFIT Sunday, July 10th at 6:30pm https://www.facebook.com/events/230157130701657/?ti=ia
Dear friends, we are praying for you daily and are so encouraged to hear that the insurance company has approved Grayson's treatment. Stay strong, and please know that showers of prayers are coming your way.