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Gray’s Fight against Leukemia - help Lois Gilbert

$25,331 of $25,000 goal

Raised by 293 people in 6 months
Created December 22, 2018
Team Gilbert
on behalf of Lois R. Gilbert
Gray was a healthy, active 6-year-old boy until this week his life was changed forever. On 12/18/2018 he was given the devastating diagnosis of B-Cell Acute Lymphoblastic Leukemia.  Gray is currently admitted to the University of Virginia Children’s Hospital, where he will continue to be treated for cancer. Gray faces a lengthy treatment plan with many different chemotherapies and various medications.

Lois is doing her very best to cover a mortgage, bills, and the costs of living. She will not be able to work for the foreseeable future due to the complexity of the care needed to save his life. As taxing as the emotional toll is for her – and for us, her family and friends – there’s the economic reality of what is needed to give Gray the care that he needs in the coming years.  

But we are not powerless here. While we will continue to pray and send our love, there is more that we can do. We – her nieces Grace Merchlinski and Chrissy Kozloski -- are creating this campaign despite her pride and aversion to asking for any kind of help. We are asking for your help to fight this economic battle so that Lois can focus on helping Gray with his battle.
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it finally happened Gray lost his hair several weeks ago. It began to come out and convincing him to cut it short was successful . He has been sporting his baseball caps! we had a scare and stayed the weekend in the hospital due to a high fever which was possibility due to the chemo vs. a bacteria infection which is our biggest fear. His first Blood transfusion occurred last week to help him get through these next 2 weeks and with all positive energy coming our way the beginning of the 1st Maintenance phase. These phases last for at least 2 years and are grouped in approximately 90 day cycles. this will start the beginning of July with a lumbar puncture to administer medicines, IV through his port and pills at home.
He has missed a bunch of fun activities due to a compromised immune system but will now be able to get involved again with some of his friends in a public setting if he continues to tolerate as well as he has. My warmest thanks for everyones support and love as we trudge through this incredible learning experience called life. We can feel you support!
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The Easter sun shines though my window with the hope that I need for the next 8 weeks. Gray has persevered these last 4 months like the tough fella he has always been. The UVA pediatric oncology team has been very happy with his progress and tolerance of therapy so far. He begins the 4th phase on Friday. It is referred to as delayed intensification, this will be the toughest medicine regimate because the doses are given quickly with minimal time for his little body to recover. There is no reason to believe he will not tolerate this treatment well like he has with the other phases. He may need to be monitored with a hospital overnight stay due to the strong chemo and its side effects.
He has been riding his bike, playing with his RC truck. We talk openly with him regarding what is happening and he asks questions. He tolerates home school with his teacher but home work can be a struggle. Thank you everyone for your support. Nothing could have prepared us for this journey. Your support has made the road a little less bumpy. Much love to all !
Lois
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Gray continues with treatment tomorrow 3/11/19. #2 infusion of phase three. Treatment will continue in various phases for the next 2-3 years. Port access is scary! There are creams and sprays that help to numb the skins surface, however having a gloved, masked person coming at you with a needle attached to a tube can be frightening for anyone. Gray tolerates it like a champ because he knows these medicines will help him heal. He has been running around playing with nerf toys, RC cars and is eager to join his friends at school once the germ risk decreases. Thank you to all that are praying and sending their support. We feel it and are so very, very, grateful. The Drs at UVA say Gray is progressing through treatment as he should be.
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Hard to believe two months have just about gone by since my sweet perfect little guy was diagnosed with this stupid speed bump kind of irritant!!! The support I have gotten to help Gray will change the course of this whole experience. I am awestruck by the kindness of people from my home town of Harford county Maryland, My new town Crozet, Virginia, my college friends, extended family in California and England and amazing people that I have only briefly come to know or hopefully will know.
Gray is closing what is referred to as “consolidation” this coming Friday 2/22/19 at 9:30am! Gray will get the 3rd lumbar puncture in a series of three. These have been tough due to complications during sedations. He has been at home and returning to UVA for his treatments. He will then start the 3rd phase which is IV chemo drugs through his permanent port every 10 days for about 40 days with a lumbar puncture at the end administering more medications into his spinal fluid. He is tough and incredibly resilient, he wants to know what going on and tries to get me to promise certain fearful situations will not happen again. I tell him I want a crystal ball but they are hard to find. I tell him I will be there every step of the way and he will come out on the other side tougher and more amazing than ever!!! I am able to be there for Gray because of everyone’s support. For that I am grateful ! Thank you. Lois
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$25,331 of $25,000 goal

Raised by 293 people in 6 months
Created December 22, 2018
Team Gilbert
on behalf of Lois R. Gilbert
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