Occipital Neuralgia Surgery
Donation protected
In 2009 I started to experience unexplained facial pain. After seeing multiple doctors, they all suggested I have a deviated septum surgery to help the pain. They didn't know what was wrong with me, but they agreed this surgery should help .
The surgery helped, for a little while. In 2013 my pain came back with a vengeance. I found new doctors, and after almost a year of tests and treatment failures, I was formally diagnosed with Occipital Neuralgia. Occipital Neuralgia is a very rare neurological disease where the Occipital Nerves in your head are inflamed and damaged, causing debilitating pain.
There is no cure, but the closest thing to a cure is surgery. There are only a handful of surgeons in the country who do this surgery. I've selected one of the original surgeons who did this surgery (and one of the best), Dr. Peled (https://www.peledmigrainesurgery.com/).
Unfortunately, insurance doesn't cover the surgery, citing that it is experimental. The surgery has been around for 20+ years, and has an 85% success rate. However, because ON isn't a "popular" disease, the insurance companies won't touch the surgery.
My doctors all agree it's time for surgery.
The surgery costs (on average) $15,000, and then I have travel costs and 4-6 weeks out of work for recovery. I really hate asking for money, but unfortunately in this situation, I don't have much of a choice.
If you help me head towards surgery, I will try to find a way to return the favor, whether it is some financial assistance in the future, paying it forward, or helping in some other way.
I truly to appreciate those of you who help. It has been a long journey, and I appreciate your help getting me towards the finish line for treatment of this disease.
READ MORE ABOUT OCCIPITAL NEURALGIA
https://americanmigrainefoundation.org/understanding-migraine/occipital-neuralgia/
http://www.aans.org/Patients/Neurosurgical-Conditions-and-Treatments/Occipital-Neuralgia
https://www.hopkinsmedicine.org/healthlibrary/conditions/adult/nervous_system_disorders/Occipital_Neuralgia_22,OccipitalNeuralgia
https://www.peledmigrainesurgery.com/blog.html
The surgery helped, for a little while. In 2013 my pain came back with a vengeance. I found new doctors, and after almost a year of tests and treatment failures, I was formally diagnosed with Occipital Neuralgia. Occipital Neuralgia is a very rare neurological disease where the Occipital Nerves in your head are inflamed and damaged, causing debilitating pain.
There is no cure, but the closest thing to a cure is surgery. There are only a handful of surgeons in the country who do this surgery. I've selected one of the original surgeons who did this surgery (and one of the best), Dr. Peled (https://www.peledmigrainesurgery.com/).
Unfortunately, insurance doesn't cover the surgery, citing that it is experimental. The surgery has been around for 20+ years, and has an 85% success rate. However, because ON isn't a "popular" disease, the insurance companies won't touch the surgery.
My doctors all agree it's time for surgery.
The surgery costs (on average) $15,000, and then I have travel costs and 4-6 weeks out of work for recovery. I really hate asking for money, but unfortunately in this situation, I don't have much of a choice.
If you help me head towards surgery, I will try to find a way to return the favor, whether it is some financial assistance in the future, paying it forward, or helping in some other way.
I truly to appreciate those of you who help. It has been a long journey, and I appreciate your help getting me towards the finish line for treatment of this disease.
READ MORE ABOUT OCCIPITAL NEURALGIA
https://americanmigrainefoundation.org/understanding-migraine/occipital-neuralgia/
http://www.aans.org/Patients/Neurosurgical-Conditions-and-Treatments/Occipital-Neuralgia
https://www.hopkinsmedicine.org/healthlibrary/conditions/adult/nervous_system_disorders/Occipital_Neuralgia_22,OccipitalNeuralgia
https://www.peledmigrainesurgery.com/blog.html
Organizer
Talia Simonds
Organizer
Auburndale, MA
