Baby Jordan's Memorial Fund
Baby Jordan turned 1 on September 5, 2015. Within the last few weeks the baby grew weak and wasnt feeling well. Many Doctor visits later, he was just diagnosed with neuroblastoma (cancer) including an 11 cm tumor on his kidney, as well as a fractured femur. He is about to undergo a bone marrow biopsy and MIBG scan, followed by chemotherapy at Duke Medical Center.
Prior to this diagnosis Jordan was a happy, active baby boy. He has an older brother Jaeden who is just 3 years old.
Jordan's parents, Jasmine and Michael, were High School sweethearts. The met in Fayetteville, NC where Jasmine's family was (and is) stationed serving in the Army and Michael's family is in law enforcement. Both families have, and continue to serve. They are a beautiful young married couple with two beautiful boys.
Baby Jordan fought the good fight with multiple rounds of chemo, endless testing, and procedures. He gained his wings on May 18, 2016 and was laid to rest on Tuesday, May 24, 2016 on a gorgeous sunny day surrounded by friends and family. At this time his medical bills are rolling in to the tune of 10's of thousands. Any support you can give is greatly appreciated.
My name is Christine Schadler and I have know Jasmine, Jordan's mother, since she was born. I have watched her grow from a baby. I remember the day her father joined the Army 20+ years ago when Jasmine was just a toddler. Her childhood was spent on various Army bases, with her father being deployed the majority of the time. I watched her become a young woman, get married, and have 2 beautiful babies of her own. She and my oldest are just weeks apart in age, she is like another daughter to me.
Please join me helping this family who has dedicated their lives to helping others. Thanks in advance for your support.
The services were absolutely beautiful. I am absolutely blown away by the love and support that was in attendance today. I am even more blown away by the actions of Jasmine and Michael, who asked that we focus on all the happiness Jordan brought to everyone he met, and not the sadness of losing him at such a young age.
You're one of Heaven's angels now
A perfect little star,
And when you shine the world can see
How beautiful you are.
May you fly with magic wings
On clouds so soft and white,
May your heart be joyful
And your days be bathed in light.
And though our hearts are broken
And your life was far too short,
We thank you, sweetest angel,
For the happiness you brought.
"It's with a heavy heart that we let everyone know... Baby Jordan gained his angel wings at 0225 today... He was completely peaceful... Randomly smiling in his sleep... Letting us know he is okay... That he is not in pain anymore... He is free from suffering...
We love you so much baby boy!!!! And words will never express how much we miss you!!!!!!
I'm only posting because he was surrounded by so much support and faith... And we need time......"
As with all of you, I am without words. All I can do is send my love, thought, and prayers to this family. We all love you, we hope you feel our love, our endless support, and are forever here for you in any way. And we love Jordan. You are forever in our hearts.
Well... There's no easy way to say this... But I'm going to try my best because we want to be able to have time without leaving everyone with unanswered questions...
Jordan was taken to the ER last week because he was in a lot of pain... Well they found out that he had the C Diff. He also had bacteria in his port. And even after they found and were treating for all of this... He was still in a lot of pain... He started getting really high blood pressures... So they decided today to do a CT Scan...
The results showed... That the 2cm tumor that was found only a month ago... Has now metastasized... It has spread around his kidney and up his side of his ribs... There are tumors in his lungs... It has just spread everywhere in such a short period of time... It has become an extremely aggressive tumor... And it is resistant to any chemo that is available...
In other words... We're told there's not much more THEY can do to cure the Neuroblastoma...
We do appreciate the fact that people want to try and help and suggest so many things... And yes we do believe in miracles... And yes everything happens for a reason... And we will continue to pray harder than anything...
But over anything... Please respect our decisions and understand this is the hardest thing we have ever had to hear in our 22 years of life... There aren't words to express the hurt and pain... But we will not give up... It's not in us to...
Please keep praying for our baby boy...
With that said it is time to pray for a miracle. Today's picture is one of these adorable brothers BEFORE the news, before the tests and chemo and meds, before all of it. My heart and prayers go out to Jasmine and Mikey for having to deal with all or any of this. To Jaeden who although a "big" brother, is still very much a baby himself. To the grandparents, my good friends Tiezel and Chris and to Mikeys parents too. To the rest of the friends and family who are going through every step of this horrible situation right alongside. But most of all to gorgeous Baby Jordan, who has been through more than most people have to go through in a lifetime, all at the age of just 1 year old. We are still praying for you, and we love you, and you are and have been such a strong, strong, fighter. We love you all and our hearts break for you that you are even in this situation.
You can follow on Facebook here: https://www.facebook.com/Go-Gold-For-Jordan-1055104624556856/
Thanks to everyone who is still praying, still hoping, and still willing to help out with whatever they can. God bless all of you, and make sure to hug your babies.
Here is an update from Jasmine who is currently at Duke going through arguably the roughest part of the treatment so far:
So we were doing a whole week of tests to prepare us for transplant. The last thing on our list was the scans. In the scans, they found that there was a tumor in the same spot where the other one was taken from. When they did scans after the surgery, they thought that spot was just inflammation.
Well he had one cycle of chemo between the surgery and the new scans. And it has shown growth. They call this a refracted tumor, meaning it wasn't responding to chemo. It's only about 2 cm which is still better than what he came in with. Also, his bone marrow still had a lot of tumor in it.
So instead of going into transplant. They talked to those around the nation and have decided to do two new chemo medicines and antibodies. The antibodies will be used to clear his bone marrow, and the chemo will eradicate the tumor.
The antibodies are the hardest part of this treatment... He is immediately in pain. Tossing and turning. Crying out and groaning. I can only associate it with someone going thru labor, but it coming from a 1 year old... Who doesn't understand why he is being put thru so much pain... In order to keep him as comfortable as possible, they give him continuous morphine and a button for an extra dose of needed. Of course finding that first dose is hard... Hopefully now that we know how much he needs, he can be more comfortable.
We will still be doing transplant, just about 6-10 weeks from now... Please keep him in your prayers as he goes thru this difficult treatment. Please share with friends and families. He has gained so much support. Let's show him how much love and support he has!
Thank you so much to everyone who has donated!! Please feel free to share and put him on any prayer lists. This is my official page, and I post updates often too. You don't understand how much I appreciate everyone's donation. Thank you