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Give Vinnie his independence

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Vinnie is 2 and a half and has a rare genetic condition called spinal muscular atrophy type 1. This conditions means that from 4 weeks old Vinnie lost movement in his limbs as it weakens his muscles. Over time vinnie lost the ability to swallow and to breathe full time independently. SMA does not affect the brain so he is an extremely bright little boy who loves the TV and cuddles... He has his own Facebook page with over 2000 supporters and we constantly fundraise to support him with extra physio sessions, an amazing diet and any equipment that he needs. When he was first diagnosed we was told he wouldn't make 1 year and now he is almost 2 and thriving from a new treatment called Spinraza!
We are fundraising continuously to make sure Vinnie has all he needs to thrive and be independent. 
words cannot express how proud we are of Our BoyVinnie.

Organizer

Kelly Jones
Organizer

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