Help get Neil back on his Feet

£14,937 of £90k goal

Raised by 240 people in 7 months
Geraldine O'brien  Central Ward, ENG


We, Neils family and friends are trying to raise money to get Neil to The Shaarei Tzedek Medical Center, Israel.

Neil is 44, he is dad to Maggie, Dylan , Esme and Ewan.
Neil is the husband of Geraldine for 19 years and her soul mate for 29years. 

Neil has been diagnosed with Multiple Sclerosis, (primary progressive ms) for which there is no treatment here in the uk. 

Only 10% of people with MS have the primary progressive  type.

HSCT: Haematopeitic Stem Cell Treatment has shown to stop the progression of this debilitating disease and for  many patients who have travelled abroad they have not only seen the progression of their illness stopped but many symptoms reversed.

This treament itself is not new. It has been  used for many years in treating people suffering from cancer. In recent years its been used for the treatment of relapsing/ remitting MS and was highlighted on the bbc tv program Panorama aired in January 2016.

Simplified, the treatment involves, chemotherapy, removal of own stem cells, further chemotherapy after which the stem cells are injected back to reboot the immune system which will be free of MS due to the
chemotherapy.

Neils  own stem cells would be  used so there are no ethical issues.

The treatment cost for Isreal alone is £90,000. 

This is now the only place left that will treat Neil as a non walking MS patient.

As Neil has deteriorated so quickly in the past three years, and is  now a powerchair user, we need to get this treatment for him as soon as we can!

If Neils health deteroriates  before we can raise enough funds , as this is such a  massive amount, and it means that he no longer meets the required criteria to access the treatment in Israel or we simply cant raise enough, any funds raised will go towards ensuring Neil will live in the comfort of his own home with the best quality of life we can provide for him through palliative care. 

There are no words to describe how it would feel for us, his family or Neil himself  to be  able to get his life back as it was. MS has an overwhelming hold on him and we need to shake it off! 

Any donation no matter how big or small to get Neil on this road to treatment and then recovery  will  be so very gratefully recieved. 





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Update 25
Posted by Geraldine OBrien
5 days ago
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2
2
********G O O D****** N E W S ****** A L E R T ********

NEIL has received confirmation from Israel that

he has PRIMARY APPROVAL for treatment of

MS at The Shaarei Tzedek Medical Center

WOOHOOOOOOOO!!!!
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Update 24
Posted by Geraldine OBrien
11 days ago
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PAUL DID IT ... a fantastic morning spent with the Wood Family.

Paul had almost completed his Half Marathon in the time it took for Neil to get ready and get there...
but they both did it!

W E L L D O N E P A UL and thank you x
no time to stop paul!
he did it!!!!!
they did it!
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Update 23
Posted by Geraldine OBrien
12 days ago
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This is the link to listen to Caroline Wyatt, the BBC Correspondent who has undergone this same treatment Neil is after, talking on Radio 2.

She was forced to go abroad to get HSCT after being refused it here in the UK just like Neil.

In the world of MS this is big news that a public figure is sharing their experience to raise the much needed awareness of this treatment for MS sufferers .

Listen in from 1:10 onwards.

http://www.bbc.co.uk/programmes/b08hcg9t

Thank you again for all the donations so far, its been an incredible few days, maybe something to do with the luck of the Irish ?!



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Update 22
Posted by Geraldine OBrien
14 days ago
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Morning All,

Just found out this week that PAUL WOOD is going to run the Hastings Half Marathon for NEIL!

If Neil is up to it he will be at the finishing line (but cant promise anything)

Paul is the dad of one of Esmes very very good friends, Rose.

Please support Paul in supporting NEIL .

T H A N K Y O U !
Run PAUL Run !!
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Read a Previous Update
Theresa Cutmore James
1 month ago
1
1

Hope Neil hada good day on Sunday & managed to demolish the figs. Luv T xxx

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Theresa Cutmore James
2 months ago
1
1

The Caroline Wyatt report looks promising... All fingers & toes crossed for Neil for 2017.XXX

+ Read More
Theresa Cutmore James
4 months ago
1
1

Is there any way we could get a petition for everyone to sign up to contest this NHS funding for Neil?????

+ Read More
Theresa Cutmore James
6 months ago
1
1

GR8 to know you are back home NEIL (stay germ free) Luv T xx

+ Read More
Theresa Cutmore James
2 days ago

Wonderfull news for Mothers day wish for you all. Lots of love n'hugs T.XXX

+ Read More
Theresa Cutmore James
10 days ago

GR8 Well done to all.X

+ Read More
Theresa Cutmore James
1 month ago

GR8 news to get him on top form for the big 1. Sending you all lots of love n'hugs.XXX

+ Read More
Theresa Cutmore James
1 month ago

GR8 news Neil now lets build you up for the big 1. XXX

+ Read More
Theresa Cutmore James
1 month ago

Ahw I don't believe it! It,s disgusting how they give you hope & then just steal it away. How cruel. Keep your chin up Neil & family.XXX

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£14,937 of £90k goal

Raised by 240 people in 7 months
Created August 3, 2016
PW
£10
Phil from work
3 hours ago
CC
£25
Christopher Collins
1 day ago
MP
£6
Metta Pry
2 days ago
AC
£90
Anne Curtis
2 days ago
TF
£172
The Sendhilkarmaran Family
4 days ago(Offline Donation)

THANK YOU again to you all and the generous customers of the Londis shop, Staplecross for filling for a 3rd a collection tin for NEIL xx

£100
Anonymous
4 days ago
EF
£30
Esther Fuller
5 days ago
MW
£60
mark ward
6 days ago
CG
£10
Chris Garner
8 days ago

All the best Jo, ..enjoy draggin me round!! x

£10
Anonymous
9 days ago
Theresa Cutmore James
1 month ago
1
1

Hope Neil hada good day on Sunday & managed to demolish the figs. Luv T xxx

+ Read More
Theresa Cutmore James
2 months ago
1
1

The Caroline Wyatt report looks promising... All fingers & toes crossed for Neil for 2017.XXX

+ Read More
Theresa Cutmore James
4 months ago
1
1

Is there any way we could get a petition for everyone to sign up to contest this NHS funding for Neil?????

+ Read More
Theresa Cutmore James
6 months ago
1
1

GR8 to know you are back home NEIL (stay germ free) Luv T xx

+ Read More
Theresa Cutmore James
2 days ago

Wonderfull news for Mothers day wish for you all. Lots of love n'hugs T.XXX

+ Read More
Theresa Cutmore James
10 days ago

GR8 Well done to all.X

+ Read More
Theresa Cutmore James
1 month ago

GR8 news to get him on top form for the big 1. Sending you all lots of love n'hugs.XXX

+ Read More
Theresa Cutmore James
1 month ago

GR8 news Neil now lets build you up for the big 1. XXX

+ Read More
Theresa Cutmore James
1 month ago

Ahw I don't believe it! It,s disgusting how they give you hope & then just steal it away. How cruel. Keep your chin up Neil & family.XXX

+ Read More
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