Cancer Treatment for Lenny Filth

$12,569 of $15,000 goal

Raised by 198 people in 22 months
Damon O'Manic
on behalf of Leonard Johnson
 AUSTIN, TX
I've been on the phone with Lenny for hours. It isn't good and I'm having a hard time typing this update thru the fucking tears. For the last 8 months, though he'd been told the cancer was gone, he'd been unable to eat, sleep was hard to find, and he remained unable to work, seemingly getting worse. Of course, he was told that was all part of the post-cancer process. However, upon a final, closer examination of his blood work it was discovered that he's had a fungal infection that had been responsible for the last several months of misery. They took care of that, and almost overnight he was eating, tasting what he was eating, sounding like himself, and most importantly - he was laughing again, pain free. Then I got a call the other night and he told me they found spots in his lungs and spine. Now, he says he's okay with lung surgery, but the prospect of losing his mobility and winding up in a wheelchair is more than he's willing to accept. He's tired, he's scared, and he's fallen into a state of depression that I've never seen him in before. In all the years I've known him I've NEVER heard him cry. And he's all alone up there. More testing is scheduled for Monday, March 5th, but until they come up with a prognosis, he needs to be reminded that he is, in fact, NOT alone in this fight; that we're still here for him. If you can help, even with $5, please do. Perhaps more important than monetary donations are words of love and devotion. He's afraid that his time is near, so if there's anything you want him to know, don't waste another day - tell him. Tell him he's loved, appreciated, and adored. Make sure he has these thoughts with him on this next part of his journey. And please copy/paste this link into your social media and email/texts to share with whoever else might wanna know the low, low, lowdown. I gotta go. Love you guys.

*ORIGINAL STORY:
Our buddy Lenn Rokk has recently been diagnosed with Squamous Cell Carcinoma and an unspecified form of throat cancer. You may know Lenny from the East Bay Punk scene since way back when. He played guitar in ISOCRACY, FILTH, and STRYCHNINE, to name a few. He was my best friend for several years in the 90's until I moved away, and you know what they say about a friend in need. As most of you know, we lost Mike-O, Filth's bassist, to cancer just a couple years back. Lenny's currently undergoing radiation treatment and still feeling like the trooper he's always been. That's good. But medical bills...yeah, medical bills suck. And they can break your spirit faster than cancer. So it's back to our old values of dedication. I'm starting this thing to help our brother out while he walks through the filth  - you can fund him here. And remember: THIS IS WHY WE ARE THE PUNKS. WE ARE ONE.
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I've been on the phone with Lenny for hours. It isn't good and I'm having a hard time typing this update thru the fucking tears. For the last 8 months, though he'd been told the cancer was gone, he'd been unable to eat, sleep was hard to find, and he remained unable to work, seemingly getting worse. Of course, he was told that was all part of the post-cancer process. However, upon a final, closer examination of his blood work that he's had a fungal infection that had been responsible for the last several months of misery. They took care of that, and almost overnight he was eating, tasting what he was eating, sounding like himself, and most importantly - he was laughing again, pain free. Then I got a call the other night and he told me they found spots in his lungs and spine. Now, he says he's okay with lung surgery, but the prospect of losing his mobility and winding up in a wheelchair is more than he's willing to accept. He's tired, he's scared, and he's fallen into a state of depression that I've never seen him in before. In all the years I've known him I've NEVER heard him cry. And he's all alone up there. More testing is scheduled for Monday, March 5th, but until they come up with a prognosis, he needs to be reminded that he is, in fact, NOT alone in this fight; that we're still here for him. If you can help, even with $5, please do. Perhaps more important than monetary donations are words of love and devotion. He's afraid that his time is near, so if there's anything you want him to know, don't waste another day - tell him. Tell him he's loved, appreciated, and adored. Make sure he has these thoughts with him on this next part of his journey. And please copy/paste this link into your social media and email/texts to share with whoever else might wanna know the low, low, lowdown. I gotta go. Love you guys.
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Update from Lenn:
Well about time to hear from the horses mouth again .....for some good news and some possibly bad news, or could be possibly not news. Good news is I have bounced back from 117lbs up to 142lbs...damn if I know how I got that much and unfortunately I had to find out goin' in for a second round of biopsies of my cheeks, tongue ,nose and throat this mornin' at 5:30a.m......they knocked me out , did their stuff and kicked me out by 10:30a.m.... Insomnia and what I call a certain amount of narcolepsy seem to be the rule 'cept that my taste is still M.I.A., and the usual pain all thru my mouth and throat is relentless, but a lot of the other physical shit has leveled off and/or started to dissipate - hopefully for good. Had to drop me to strictly supervisory at work for the most part, which blows, but it got to the point that I was losing so much weight, couldn't concentrate, and frankly couldn't do my job more than 45 minutes at a time, without having to break wide and disappear for a while....next step is looking like one of the pot barns for some kinda oil for my mouth and such....gotta see what the pros gotta say i guess....and hopefully get my voice back and be back to work full time soon enuff..... I wont know the results of this last round of biopsies for about 5 days (next week sometime). Just gonna try not scratchin' the walls waitin' to hear the results. Although I didn't feel like it, today was the first day that my blood pressure was high all thru the procedure.....that's a new one..... Anyway as many of you know I'm holed up back in an SRO hotel, fairly inexpensive, though not cheap, but in a killer location for everything I need or want, which works well And with all that it is time to thank all y'all as usual. All your support, calls, messages, any way it comes means the world. I realized I was originally gonna try to conquer this shit alone...that was a bad plan for sure! I couldn't have made any of this work without ya....I had reached out to someone who, to the tee, has (or had, depending) the same disease and same circumstance as I do....so to you Richard, I cant thank you enuff for being there any time I call.....and there are the usual culprits who I have to mention by name: Damon for making me do this, Cyndy S. for putting me up thru the summer and giving a safe haven where I could straighten out my finances and weather thru some of the worst personal and medical shit of the treatment end of things, Dave and Deb, my employers for doing everything in their power to get me healthy, hold my job and push me to get healthy so i can get back to capacity at our shop, and my awesome crew for covering my ass and holding the shop above h2o. And of course my Ma, who won't leave me alone about taking coconut oil and is relentless in helping me dig thru the mountain of stupid ass paperwork that never seems to end and never seems to make sense! And if they have got it right and we are putting this shit to bed, all the Doc's and nurses who have done their best for me and also put up with me....some get my humor better than others. Certainly not least but to everyone I haven't reached out, texted or called personally, everybody that is out there or on these lists.....I can never repay your kindness, and you have my undying thanks. Other than that I will know more in a week or so but none of the docs seem to be alarmed(my dental hygeinist 'bout had a heart attack and jumped out of her shoes)I figure she hasn't had too much radiated mouth pass her way, after I finished freakin' out about her reaction..... That said much luv to all , with full knowledge that everyone has got their own shit goin' on...hope everyone is doin' good, kickin' ass in all that they do.....and workin' towords what they wanna kick ass about..... Again my undying thanks to all......cheers and till next time Lenn Rokk
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Just a quick update. Lenn's doing alright for the most part. He's in recovery, but there are still some issues. His body rejected the feeding tube in his stomach a couple weeks ago, but that's healed now. He says it just looks like he got shot with a .22. He's gotta see oncology tomorrow or the next day to address some kind of infection, but that shouldn't be a big deal either. The worst thing right now is that he still can't work his full schedule or even half of it. If he can pull 15-20 hours he's doing well. But that ain't enough to pay the bills and keep a roof over his head while he waits for unemployment to start rolling in, so I'm just gonna put this out there in case you can offer any more help. I just got off the phone with him and he told me he plans to get on here and give you all the lowdown himself later, as well as let you all know how much your help has meant to him over the last several months. Big thanks will no doubt be expressed. That is his main objective right now. I, myself, have a little thank you gift for anyone donating $25 or more: Monterey Mark still has a box of STRYCHNINE/WORKIN' STIFFS picture discs that I'll send you for kickin' in. I'll update you on that later. But for now, Lenn says, "Thank you and cheers," to everybody, and so do I. I fuckin' love that dude and I'm glad that what we've done here has helped to get him through the worst of it and keep him in our lives. Rock on, muthas.
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AN UPDATE FROM THE MAN HIMSELF:
Ok...so far overdue, but I want to thank everyone, and I mean EVERYONE, who has reached out,kicked down, well wished, and in any way helped with financial, moral, and in any other way contributed to getting me thru the last 3 months(and then some). Yall have made this process a lot less stressful and allowed me to concentrate just getting thru radiation and chemo treatments. There are no words to let all of you know how appreciative and grateful I am, both near and far.
A special shout out goes to Damon O, Kate K(k8), Cyndi S.(Skindogg), without whos help made it possible to get this far by doing for me what I, quite propably, would not have asked for myself!!!!!
And to Sean Juareguito (access to heathcare, NV) who navigated me thru the endless shitstorm of scams, bullshit plans,paperwork, etc and got me into the kind of insurance for my needs.
Last but absolutely not least, Deb and Dave(Heff) Heffern, and my crew at Hellfire Saloon,who have, more than anyone, watched, walked and helped me get thru this every single day since day 1!!!!!
I will in the coming days and weeks try to get to everyone personally that I can contact, but that will take a while.
For the record, my prognosis to date is good, but its far from over....but the total shitstorm of being poisoned to cure is now done as of last friday!!! Now time to recoup!
Finally a giant FUCK YOU to obama care and the American insurance establishment.....which ended up costing me a fortune, propably gave me an ulcer the size of jersey, financially hung me out, and delayed any kind of real treatment by at least 3 months.
I guess nuff said for now, again there arent words just how I feel, but yall KIK ASS seems to work as well as my undying thanx...........!!!!!!!
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Read a Previous Update
Lenn Rokk
14 months ago
1
1

Well about time to hear from the horses mouth again .....for some good news and some possibly bad news,,,or could be possibly not news. Good news is I have bounced back from 117lbs up to 142lbs...damn if I know how I got that much and unfortunately I had to find out goin in for a second round of biopsies of my cheeks, tongue ,nose and throat this mornin at 530a.m......knocked me out , did there stuff and kiked me out by 1030a.m.... Insomnia and what I call a certain amount of narcalepsy seem to be the rule cept that my taste is still mia, and the usual pain all thru my mouth and throat is relentless, but a lot of the other physical shit has leveled off and/or started to dicepate hopefully for good. Had to drop me to strictly supervisory at work for the most part, which blows, but it got to the point that i was losing so much weight, couldn't concentrate, and frankly couldn't do my job more than 45 m at a time, without having to break wide and disapear for a while....next step is looking like one of the pot barns for some kinda oil for my mouth and such....gotta see what the pros gotta say i guess....and hopefully get my voice back and be back to work full time soon enuff..... I wont know the results of this last round f biobsies for about 5 days, next week sometime, just gonna try not scratchin the walls waitin to hear the results, although I didnt feel like it today was the first day that my blood pressure was high all thru the procedure.....thats a new one..... Anyway as many of you know im hold up back in a hotel, fairly inexpensive, but not cheap...but killer location to everything i need or want which works well....and with all that it is time to thank all yall as usual, all your support and calls ,messangers, any way it comes means the world I realized Ioriginally was gonna tryto conquer this shit alone...that was a bad plan for sure,,,,,couldnt have made any of this work without ya....I had reached out to someone who to the tee me and him have (or had depending) the same disease and same circumstance....so to you Richard, i cant thank you enuff for being there any time I call.....and there are the usual culprits who I have to mention by name, Damon for making me do this, Cyndy S. for putting me up thru the summer for giving a haven to straighten out my finances and weather thru some of the worst personal and medical shit of the treatment end of things, Dave and Deb, my employers for doing everything in there power to get me healthy, hold my job and push me to get healthy so i can get back to capacity at our shop, and of course my crew for covering my ass and holding the shop above h2o. And of course my Ma, who wont leave me alone about taking coconut oil and is relentsess in helping me dig thru the mountain of stupid ass paperwork that never seems to end and never seems to make since.! And if they have got it right and we are putting this shit to bed,,,,all the docs and nurses who have done there best for me and also put up with me....some get my humor better than others. Certainly not least but to everyone I haven't reached out, texted or called personally, everybody that is out there or on these lists.....i can never repay, and you have my undying thanks. Other than that I will know more in a week or so but none of the docs seem to be alarmed(my dental hygenest bout had a heart attack and jumped out of her shoes)I figure she hasnt had to much radiated mouth pass her way, after i finished freekin out about her reaction..... That said much luv to all , with full knowledge that everyone has got there own shit goin on...hope everyone is doin good, kikin ass in all that they do.....and workin twords what they wanna kik ass about..... Again my undying thanks to all......cheers and till next tome Lenn Rokk

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Tony Torres Granados
9 months ago

Hi Lenny it's great to meet you. I urge that you look up Dr. Burzynski in Texas he has a unique method of healing cancer patients from different walks of life

+ Read More
Jessica Shirk
18 months ago

Cannibas Oil

+ Read More

$12,569 of $15,000 goal

Raised by 198 people in 22 months
Created February 1, 2017
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9 months ago
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Adam Dove
9 months ago

from everyone at Carrie Dove Catering - remembering the good times!

Lenn Rokk
14 months ago
1
1

Well about time to hear from the horses mouth again .....for some good news and some possibly bad news,,,or could be possibly not news. Good news is I have bounced back from 117lbs up to 142lbs...damn if I know how I got that much and unfortunately I had to find out goin in for a second round of biopsies of my cheeks, tongue ,nose and throat this mornin at 530a.m......knocked me out , did there stuff and kiked me out by 1030a.m.... Insomnia and what I call a certain amount of narcalepsy seem to be the rule cept that my taste is still mia, and the usual pain all thru my mouth and throat is relentless, but a lot of the other physical shit has leveled off and/or started to dicepate hopefully for good. Had to drop me to strictly supervisory at work for the most part, which blows, but it got to the point that i was losing so much weight, couldn't concentrate, and frankly couldn't do my job more than 45 m at a time, without having to break wide and disapear for a while....next step is looking like one of the pot barns for some kinda oil for my mouth and such....gotta see what the pros gotta say i guess....and hopefully get my voice back and be back to work full time soon enuff..... I wont know the results of this last round f biobsies for about 5 days, next week sometime, just gonna try not scratchin the walls waitin to hear the results, although I didnt feel like it today was the first day that my blood pressure was high all thru the procedure.....thats a new one..... Anyway as many of you know im hold up back in a hotel, fairly inexpensive, but not cheap...but killer location to everything i need or want which works well....and with all that it is time to thank all yall as usual, all your support and calls ,messangers, any way it comes means the world I realized Ioriginally was gonna tryto conquer this shit alone...that was a bad plan for sure,,,,,couldnt have made any of this work without ya....I had reached out to someone who to the tee me and him have (or had depending) the same disease and same circumstance....so to you Richard, i cant thank you enuff for being there any time I call.....and there are the usual culprits who I have to mention by name, Damon for making me do this, Cyndy S. for putting me up thru the summer for giving a haven to straighten out my finances and weather thru some of the worst personal and medical shit of the treatment end of things, Dave and Deb, my employers for doing everything in there power to get me healthy, hold my job and push me to get healthy so i can get back to capacity at our shop, and of course my crew for covering my ass and holding the shop above h2o. And of course my Ma, who wont leave me alone about taking coconut oil and is relentsess in helping me dig thru the mountain of stupid ass paperwork that never seems to end and never seems to make since.! And if they have got it right and we are putting this shit to bed,,,,all the docs and nurses who have done there best for me and also put up with me....some get my humor better than others. Certainly not least but to everyone I haven't reached out, texted or called personally, everybody that is out there or on these lists.....i can never repay, and you have my undying thanks. Other than that I will know more in a week or so but none of the docs seem to be alarmed(my dental hygenest bout had a heart attack and jumped out of her shoes)I figure she hasnt had to much radiated mouth pass her way, after i finished freekin out about her reaction..... That said much luv to all , with full knowledge that everyone has got there own shit goin on...hope everyone is doin good, kikin ass in all that they do.....and workin twords what they wanna kik ass about..... Again my undying thanks to all......cheers and till next tome Lenn Rokk

+ Read More
Tony Torres Granados
9 months ago

Hi Lenny it's great to meet you. I urge that you look up Dr. Burzynski in Texas he has a unique method of healing cancer patients from different walks of life

+ Read More
Jessica Shirk
18 months ago

Cannibas Oil

+ Read More
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