Fighting For AJ

Hello! Thank you for coming to read about our little boy. Unfortunately for us, history is repeating itself. Baby Alex was born at 37 weeks and 3 days via crash csection after a really tough and complicated pregnancy. We were told to prepare for a baby that was in respiratory distress and needed to be rushed off immediately. He was born at 1.44pm on the 6th of November 2018 after over 15 hours of labouring without any progression and he got distressed. His observations were great!! His APGAR was 9 at 1 minute, and 10 at 5 minutes. He had a really good first feed but after that it started to go downhill. Another one of my babies have been born with a tongue tie. Tongue ties can make it extremely hard and sometimes nearly impossible for babies to breastfeed. We had made sure we had saved some money for him to be able to immediately have his tongue tie cut should he have one like Wyatt did so we could avoid all the problems, even though that was money we were saving for the kids Christmas presents. This is because of the state our NHS is in right now. The current waiting list time for tongue ties is around 3 months. So at 4 days old we travelled with our tiny little newborn from our home in Middlesbrough to Milk Matters in Huddersfield. We also had osteopathy done, which is so important. AJ had so much tension in his face and neck he couldn’t latch properly or even turn his head. After, his tongue tie was snipped, and we went home. We saw a massive improvement! He has been amazing, and nothing has ever been a problem for him, he has a bit of jaundice but it went by 10 days and he was feeding well. He has been having some problems with trying to pass wind and poo, but I was so happy that was really all. He also has had rash flares etc, we found out he has a cows milk protein allergy, so I no longer have any dairy and have also cut out soya as a precaution. He has been so much happier, it’s been a dream! This has continued up until now. He is now the same as his brother was. He is crying all the time because the pain is so bad for him. He isn’t latching properly so he’s taking in so much air when he’s feeding, this means he has reflux too. I know what this means, this means he’s going to have extreme separation of his stomach muscles, called a recti-divide, which is really painful for babies, this is what Wyatt also had. His reflux is so bad, he’s projectile vomiting, he’s choking on his sick and stopping breathing. He is whimpering in his sleep, he is arching his back, he’s not turning his head properly. When the reflux is coming up, it gets stuck in his throat, he is gagging and coughing, then when it finally clears he’s screaming in pain because it burns. Having taken him to see numerous doctors to get some sort of help for him, we were wrongly prescribed gavascon first, which I told the doctor I knew it wouldn’t help as we already had experience with it with my other children. I was then informed by the doctor I went to see when it severely constipated him, that it shouldn’t be given under at least 8 weeks. So I was told to discontinue use immediately, and there’s nothing else they can do to help as they won’t consider it a problem until he loses weight. No one is understanding the absolute hell we are facing and because of all the cuts to funding our child is having to live in pain every day. I just wanted something to help him until I could possibly afford to take him back to have more body work done. This means we have now hit a wall. My only option is to take him back. Any parent will understand how distressing it is seeing baby in so much pain and not being able to make it better. The guilty feeling of not being able to afford to pay to make my own child better, it’s overwhelming. Because of this, my mental health is quickly declining. I’ll be honest, I spent all my night last night sat crying with him. I just want him to be okay, and out of pain. So I’m doing this so I can make my child better, out of pain. I’m hoping I can raise enough money to take him back. I’m aiming to raise £320. The appointments for osteopathy are £50 per appointment, and it’s £50 for a second tongue tie cut should we need it. We know he’s going to need at least 4 sessions of osteopathy, a possible second tongue tie snip, and the fuel to get from Middlesbrough to Huddersfield which is around £20 a visit. And £20 to cover the estimated fees from go fund me. I’m done seeing my baby in pain, and something needs to be done. Please help us by donating whatever you can! He doesn’t deserve this one bit. None of us do. If you have read all this but can’t donate, please help us by sharing as far and wide as you can. We WILL get him better ❤️ Thank you!