SIÚIL LE CHÉILE- JOSEPH'S JOURNEY
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JOSEPH'S STORY
JOSEPH WAS DIAGNOSED AT 18 MONTHS WITH CEREBRAL PALSY, SPASTIC DIPLEGIA.
THIS CONDITION PRIMARILY AFFECT'S JOSEPH'S LEGS, CAUSING TIGHTNESS[SPASTICITY] AND ONGOING PAIN. JOSEPH CANNOT STAND OR WALK WITHOUT SUPPORT. EVENTHOUGH JOSEPH HAS COMPLEX DAILY CHALLENGES, HE ALWAYS HAS A SMILE ON HIS FACE .
JOSEPH IS 6 YEARS OLD NOW. HE IS SO FULL OF LIFE AND EVERYONE THAT KNOWS HIM, ESPECIALLY THE STUDENTS AND STAFF IN GAELSCOIL CHALADH AN TREOIGH, WILL TELL YOU HOW HE LIGHTS UP EVERY ROOM WITH HIS WARM HEART AND LOVELY SMILE .
UPCOMING SURGERY 2016
ON THE 21ST OF MARCH 2016, AFTER 3 YEARS OF WAITING, WE GOT THE WONDERFUL NEWS THAT JOSEPH WAS ACCEPTED FOR SDR SURGERY-SELECTIVE DORSAL RHIZOTOMY. JOSEPH WILL TRAVEL TO LEEDS CHILDREN'S HOSPITAL IN APRIL/MAY 2016, FOR 4 WEEKS, FOR THIS LIFE CHANGING SPINAL SURGERY.
HOPES AND ASPIRATIONS AFTER SURGERY
JOSEPH TOLD DR GOODDEN AND HIS EXTRAORDINARY TEAM, WHEN ASKED WHAT WOULD HE LIKE FROM THE SURGERY, 'I WOULD LOVE TO WALK AFTER THE OPERATION'. AS JOSEPHS' PARENTS OUR HOPES ARE, FIRSTLY, THAT THE TIGHTNESS BE REMOVED, THIS MEANS JOSEPH WILL EXPERIENCE A DRAMATIC REDUCTION IN PAIN [WHICH WILL BE A MIRACLE IN ITSELF] AND THIS RELEASE OF PAIN WILL OPEN UP AN OPPORTUNITY FOR JOSEPH, THROUGH A LONG AND CHALLENGING REGIME OF PHYSIOTHERAPY AND STRENGHT BUILDING, TO REACH HIS FULL POTENTIAL OF INDEPENDENCE.
SINCERE THANKS
WE ARE VERY GRATEFUL TO THE HSE FOR FUNDING THE SDR OPERATION AND FOR THE SHORT TERM SUPPORT OFFERED FOR POST SURGERY.
JOE AND I ALSO WISH TO ACKNOWLEDGE AND SHOW OUR HEARTFELT GRATITUDE FOR THE €10,000 EURO THAT WAS RAISED IN 2011 BY OUR FAMILIES AND FRIENDS FOR TREATMENT FOR JOSEPH. THIS MONEY WAS ON HOLD IN THE HOPE THIS SDR SURGERY WOULD BECOME A REALITY AND NOW THANKS TO ALL OF YOU IT IS A FANTASTIC STARTING POINT FOR JOSEPH'S JOURNEY.
OUR GOAL
IT IS ESTIMIATED THAT THE COST OF THE TWO YEAR POST REHABILLATION TREATMENT PROGRAMME, FOR JOSEPH, RANGES BETWEEN €20,000 AND €30,000. THIS INCLUDES ADDITIONAL PHYSIOTHERAPY, INTENSIVE THERAPY PROGRAMMES, HORSERIDING, HYDROTHERAPY, AND EQUIPMENT.
WE WOULD BE SO GRATEFUL FOR ANY ASSISTANCE, BIG OR SMALL, TO ENSURE THAT JOSEPH IS GIVEN EVERY OPPORTUNITY OF REACHING HIS PERSONAL WISH TO WALK.
THANK YOU.
JOSEPH WAS DIAGNOSED AT 18 MONTHS WITH CEREBRAL PALSY, SPASTIC DIPLEGIA.
THIS CONDITION PRIMARILY AFFECT'S JOSEPH'S LEGS, CAUSING TIGHTNESS[SPASTICITY] AND ONGOING PAIN. JOSEPH CANNOT STAND OR WALK WITHOUT SUPPORT. EVENTHOUGH JOSEPH HAS COMPLEX DAILY CHALLENGES, HE ALWAYS HAS A SMILE ON HIS FACE .
JOSEPH IS 6 YEARS OLD NOW. HE IS SO FULL OF LIFE AND EVERYONE THAT KNOWS HIM, ESPECIALLY THE STUDENTS AND STAFF IN GAELSCOIL CHALADH AN TREOIGH, WILL TELL YOU HOW HE LIGHTS UP EVERY ROOM WITH HIS WARM HEART AND LOVELY SMILE .
UPCOMING SURGERY 2016
ON THE 21ST OF MARCH 2016, AFTER 3 YEARS OF WAITING, WE GOT THE WONDERFUL NEWS THAT JOSEPH WAS ACCEPTED FOR SDR SURGERY-SELECTIVE DORSAL RHIZOTOMY. JOSEPH WILL TRAVEL TO LEEDS CHILDREN'S HOSPITAL IN APRIL/MAY 2016, FOR 4 WEEKS, FOR THIS LIFE CHANGING SPINAL SURGERY.
HOPES AND ASPIRATIONS AFTER SURGERY
JOSEPH TOLD DR GOODDEN AND HIS EXTRAORDINARY TEAM, WHEN ASKED WHAT WOULD HE LIKE FROM THE SURGERY, 'I WOULD LOVE TO WALK AFTER THE OPERATION'. AS JOSEPHS' PARENTS OUR HOPES ARE, FIRSTLY, THAT THE TIGHTNESS BE REMOVED, THIS MEANS JOSEPH WILL EXPERIENCE A DRAMATIC REDUCTION IN PAIN [WHICH WILL BE A MIRACLE IN ITSELF] AND THIS RELEASE OF PAIN WILL OPEN UP AN OPPORTUNITY FOR JOSEPH, THROUGH A LONG AND CHALLENGING REGIME OF PHYSIOTHERAPY AND STRENGHT BUILDING, TO REACH HIS FULL POTENTIAL OF INDEPENDENCE.
SINCERE THANKS
WE ARE VERY GRATEFUL TO THE HSE FOR FUNDING THE SDR OPERATION AND FOR THE SHORT TERM SUPPORT OFFERED FOR POST SURGERY.
JOE AND I ALSO WISH TO ACKNOWLEDGE AND SHOW OUR HEARTFELT GRATITUDE FOR THE €10,000 EURO THAT WAS RAISED IN 2011 BY OUR FAMILIES AND FRIENDS FOR TREATMENT FOR JOSEPH. THIS MONEY WAS ON HOLD IN THE HOPE THIS SDR SURGERY WOULD BECOME A REALITY AND NOW THANKS TO ALL OF YOU IT IS A FANTASTIC STARTING POINT FOR JOSEPH'S JOURNEY.
OUR GOAL
IT IS ESTIMIATED THAT THE COST OF THE TWO YEAR POST REHABILLATION TREATMENT PROGRAMME, FOR JOSEPH, RANGES BETWEEN €20,000 AND €30,000. THIS INCLUDES ADDITIONAL PHYSIOTHERAPY, INTENSIVE THERAPY PROGRAMMES, HORSERIDING, HYDROTHERAPY, AND EQUIPMENT.
WE WOULD BE SO GRATEFUL FOR ANY ASSISTANCE, BIG OR SMALL, TO ENSURE THAT JOSEPH IS GIVEN EVERY OPPORTUNITY OF REACHING HIS PERSONAL WISH TO WALK.
THANK YOU.
Organizer
Joseph Monaghan
Organizer
