Hi everyone,
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<div>This is <a href="https://www.facebook.com/Milothesoldier" style="letter-spacing:0.0085px;">MILO</a>
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<div>Milo was was born with a rare condition known as M3HBA (2-Methyl-3-Hydroxybutyric Acidemia) which has 10 cases ever recorded in the world. Most children with this condtion don't see past their 2nd Birthday. It is a degenerative condition and is life limiting.
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<div>Milo was also born blind (cerebral impairment) scoliosis (curvature of the spine) epilepsy, variable tone, no head control or any gross or fine motor skills (no control over any muscle) unable to talk or eat, sit or stand without being fully supported.
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<div>Despite the above as you can see,  our boy still has the strength to smile and fight on. Milo is the oldest known child with the condition that we are aware of and unlike others, Milo has been unable to hit any milestones and has the experts baffled and have time and time again said that eventually it could be named after him.
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<div>Milo requires 24 hour care and round the clock care and intervention.
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<div>Milo started his early life in hospital having tests and operations to try and find answers and help him see the next day. Milo needed a NG tube due to his failure to be able to take bottles. Then a PEG (tube fed into the stomach) sadly this was short lived and his stomach started to fail and required a JEJ (feeding tube that  bypasses the stomach and goes directly into the bowel) milo cannot talk, sign, eat or control his arms, hands which makes it difficult to communicate the only sense he has is his hearing and fixes on light and dark.
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<div><img src="https://d2kw0licpa1moo.cloudfront.net/62596007_1642081194202101_updates.jpg" width="100%" media_type="3" alt="62596007_1642081194202101_updates.jpg" /><br /><img src="https://d2kw0licpa1moo.cloudfront.net/62596007_1642092214280357_updates.jpg" width="100%" media_type="3" alt="62596007_1642092214280357_updates.jpg" /><br /><br />
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<div>After our first Christmas in Great North Children's Hospital we decided to do something and donated hundreds of presents to the children who were too ill to go home for Christmas. Which lead to a yearly tradition with support from the general public, friends and family.
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<div><img src="https://d2kw0licpa1moo.cloudfront.net/62596007_1642081195407379_updates.jpg" width="100%" media_type="3" alt="62596007_1642081195407379_updates.jpg" /><br /><img src="https://d2kw0licpa1moo.cloudfront.net/62596007_1642081196541899_updates.jpg" width="100%" media_type="3" alt="62596007_1642081196541899_updates.jpg" /><br /><br />
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<div>We raised money for a fully adapted sensory room where Milo spent most of his time.  This gave him <span style="letter-spacing:0.0085px;">a safe and educational space  aswell as giving him some sensations through the vibrations.</span>
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<div>We are just 2 parents and have had dreams, and in 2015 we wanted to buy an adapted caravan for families to use fitted with profile bed, hoist, storage for equipment. 
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<div>A caravan which met the needs of families. But due to Milo's health being at its worst, it  became a pipe dream and massively out of our reach...........
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<div>We turned our efforts and focus to what we could do. But we always feel that we should have never gave up on it as Milo has never gave up.
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<div>To date, we have donated thousands of presents expanding from Great North Children's to Cramlington Hospital, CHUF, St Oswalds and more recently, 2021 cash for kids appeal.
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<div>We have Helped local families with providing specialist seating, sensory packs and donating towards an epilepsy monitor. Trying to make a small difference.
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<div>The last 2 years with the current situation,  we have only been able to raise funds via selling our hand made crafts made by myself (Milos dad) , Laura (Milo's Mam) and Felix aged 10 (Milo's brother) we are at Tynemouth Market every Sunday heres our page <a href="https://www.facebook.com/ourmilo" style="letter-spacing:0.0085px;">Market</a>
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<div><img src="https://d2kw0licpa1moo.cloudfront.net/62596007_1642081202376060_updates.jpg" width="100%" media_type="3" alt="62596007_1642081202376060_updates.jpg" /><br /><img src="https://d2kw0licpa1moo.cloudfront.net/62596007_1642081203754991_updates.jpg" width="100%" media_type="3" alt="62596007_1642081203754991_updates.jpg" /><br /><br />
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<div>We are in desperate need of your help.......
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<div>Milo's health recently has started to deteriorate and his respiratory issues have gotten worse,  his seizures have heightened also which have required emergency rescue meds. 
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<div>We know Milo will lose his battle which kills us inside as we feel helpless.
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<div>We know our time is short and no matter what we do there is no cure or anything to stop him from being taken away. But what we can do is inspire others and leave a legacy by creating forever memories for families and sharing Milo's strength and determination with the world
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<div>Whether it is a bike ride, sponsored walk, run, obstacle course, sky dive, cake sale, collection bucket in your work place, we need your help.
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<div>Everyone who meets him  say his smile lights up a room.
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<div>EVERYONE needs a Milo day!!!!!!!!
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<div>He gives us strength and we try to make him proud of us.
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<div>It has been a forever dream and we have done every dream so far. It may seem so out of reach,and for just us 2 parents, it is. But we are hoping we are not going to do this alone and we will not give up on him.
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<div>If you want to help with Mission Milo please get in touch and help us.
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<div>From Our Milo
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<div>Thank you
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Anonymous

Sal De La Rosa

Maria Romby Poulsen

D A Arnold

Miss Rachael Lowery

Krystie Lennon

Jennifer Clarke

anita cawtherley

Alysia Jenkins

Ashleigh Laws

Naomi Scott

Rebecca Nash

MR A LOBBAN

MISSION MILO

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

currencyCode

Money Box Donation List Prompt Experiment Audience

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

proCampaignId

p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

writePath

Stream Notification

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

NPO upsell education category

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

NPO recommendations prod

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

ai_title_page

anyword

openai

control

manual_entry

userEmail

template_id

userId

fundUrl

isCharityCo

email

appVersion

shouldBucketIntoExperiment

partnerId

donationCadence

isActiveFundraiser

isPartner

isMobile

npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

categoryGroup

isCampaignOwner

fundHasInstagramDeepLink

Native 11.3.0 and above

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

NPO upsell animals category

NPO upsell disaster relief category

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

NPO upsell essential needs category

NPO upsell medical category

userCurrencyCode

Localized Currency

NPO upsell cancer category

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

MISSION MILO

Still £55,095 to go. Help us build momentum.