Ember was diagnosed with hypoxic ischemic encephalopathy (HIE) which is is caused by restricted blood and oxygen to the brain for a period of time. HIE is a traumatic brain injury.
As a result of her brain damage, she was likely completely blind and if not fully at least partially. A little before her passing we did get to see that she can hear a little! She was dependent on a feeding tube for the majority of her caloric needs and had just started really enjoying solids!
Embers was welcomed home by her loving father who passed away when her mom was 5 months pregnant with her. We held her hand and told her that she can go if she needs to and daddy is waiting for you. There was a flutter of an eyelash and we knew right then that she was home.
Ember passed away on December 5th,2020. Although her prognosis was unknown, we would have loved more time with her. Ember was an amazing baby who always brought light into the room she lived a short but an amazing live due to everyone who contributed to her upbringing.
We would like to take the burden off of her family by fully funding her funeral followed by cremation and celebration of life (date to be decided but will be after new year)
Please share ❤️
- Catherine Kay
- Carla Williams
- Gloria miller
- Brittany Antin
Organizer and beneficiary
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