Nataliyah's New Ride
Donation protected
Thank you all for following the link, post, email or flier that brought you to our GoFundMe page!
As the saying goes, it takes a village and the Cronbach Family is so grateful for the village that has surrounded us over the years.
We are asking our village to embrace a friend in need and are asking for your help. We have never launched a campaign like this before or asked our friends directly for this kind of support.
I can say without reservation that this need is real, urgent and will be life-changing for Keely and Nataliyah.
Thank You all, Eli and Alicia Cronbach
This fundraiser is for Alicia’s childhood friend Keely and her daughter Nataliyah. Friends since before grade school, Alicia and Keely have stayed in touch over the years, keeping tabs on each other’s life events. Eventually, they reconnected over joining the warrior mom club as parents of children with unique needs. Alicia cheered Keely on as she fought hard through numerous health scares and misdiagnoses for her daughter Nataliyah, eventually landing on the correct diagnosis of Bainbridge-Ropers Syndrome after 8 years. Natty is 1 of approximately 150 people in the WORLD with this diagnosis, and with it comes with not only an extensive list of difficult medical issues but the village that Keely has built over the years – a village of nurses, medical equipment, specialists, round the clock caregivers and more.
As a result of her condition, Natty spends most of her time in a wheelchair, making weekly and at times multi-week trips to Stanford Children’s for medical care. Additionally, she has several weekly appointments for therapy. Every transport requires an in-home nurse to accompany her with a significant amount of medical equipment, while mom does the driving. What Keely really needs is the ability to have a proper mobility van for Natty. The van will provide safe transport to her medical appointments and therapies. At 9 years old, Natty has hit the 50lb mark in weight, it has become unsafe for her mom to transition her from wheelchair to vehicle as Natty can’t assist in her transfer.
A proper mobility van of their own would provide the freedom to go to more than just medical appointments - something most of us with kids, grandkids, nieces, and nephews take for granted. A trip to the zoo, to the ocean, anything other than the doctor is the freedom this van will provide for Natty and her family.
I sincerely hope you will join us to raise funds and get Nat her new ride. Our goal is $50,000.00 to buy a properly equipped mobility van. While there are less expensive (used) units available, Nataliyah’s need will never go away and we want the van to last 10-15years at minimum. With this in mind, we are shooting for a goal of a New unit vs Used. Any funds raised in excess of this amount will be used to pay for taxes, registration, auto insurance and the start of a maintenance fund.
For information on Bainbridge-Ropers Syndrome: https://en.wikipedia.org/wiki/Bainbridge-Ropers_Syndrome.
For information on the rare disease, community go to: https://globalgenes.org/
As the saying goes, it takes a village and the Cronbach Family is so grateful for the village that has surrounded us over the years.
We are asking our village to embrace a friend in need and are asking for your help. We have never launched a campaign like this before or asked our friends directly for this kind of support.
I can say without reservation that this need is real, urgent and will be life-changing for Keely and Nataliyah.
Thank You all, Eli and Alicia Cronbach
This fundraiser is for Alicia’s childhood friend Keely and her daughter Nataliyah. Friends since before grade school, Alicia and Keely have stayed in touch over the years, keeping tabs on each other’s life events. Eventually, they reconnected over joining the warrior mom club as parents of children with unique needs. Alicia cheered Keely on as she fought hard through numerous health scares and misdiagnoses for her daughter Nataliyah, eventually landing on the correct diagnosis of Bainbridge-Ropers Syndrome after 8 years. Natty is 1 of approximately 150 people in the WORLD with this diagnosis, and with it comes with not only an extensive list of difficult medical issues but the village that Keely has built over the years – a village of nurses, medical equipment, specialists, round the clock caregivers and more.
As a result of her condition, Natty spends most of her time in a wheelchair, making weekly and at times multi-week trips to Stanford Children’s for medical care. Additionally, she has several weekly appointments for therapy. Every transport requires an in-home nurse to accompany her with a significant amount of medical equipment, while mom does the driving. What Keely really needs is the ability to have a proper mobility van for Natty. The van will provide safe transport to her medical appointments and therapies. At 9 years old, Natty has hit the 50lb mark in weight, it has become unsafe for her mom to transition her from wheelchair to vehicle as Natty can’t assist in her transfer.
A proper mobility van of their own would provide the freedom to go to more than just medical appointments - something most of us with kids, grandkids, nieces, and nephews take for granted. A trip to the zoo, to the ocean, anything other than the doctor is the freedom this van will provide for Natty and her family.
I sincerely hope you will join us to raise funds and get Nat her new ride. Our goal is $50,000.00 to buy a properly equipped mobility van. While there are less expensive (used) units available, Nataliyah’s need will never go away and we want the van to last 10-15years at minimum. With this in mind, we are shooting for a goal of a New unit vs Used. Any funds raised in excess of this amount will be used to pay for taxes, registration, auto insurance and the start of a maintenance fund.
For information on Bainbridge-Ropers Syndrome: https://en.wikipedia.org/wiki/Bainbridge-Ropers_Syndrome.
For information on the rare disease, community go to: https://globalgenes.org/
Organizer
Eli Cronbach
Organizer
Napa, CA
