Wyatt's MOGAD Journey

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Wyatt's MOGAD Journey

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Wyatt's journey started mid March with just a simple headache and watering of the eye. March 20th he was having pain in his right eye and blurred vision. We took him to the local ER and a stye was located and medicated gel was given to help with the stye. March 24th he told Nikole and I that his vision was completely black and it had happened sometime the day before. We instantly took him to the local ER, and they sent us to Dr. Deshon at Olney Eyecare. They did imaging and Deshon looked in his eye a few times and realized something was possibly compressing his optical nerve and put a call into an ER instantly. We traveled to Children's in STL. While at Children's Wyatt had multiple MRIs, CT scans, blood test, and even a spinal tap done. They sent off over 30+ test. We started a round of high dose steroids to attempt to start trying to fight off whatever was happening. March 28th he ended up getting a central line inserted and started plasmapheresis. After his first treatment the doctors came into see us before leaving for the day and told us we had a positive diagnosis. Wyatt was diagnosed with Myelin Oligodendrocyte Glycoprotein (MOG) Antibody Disease (MOGAD). This is a rare inflammatory autoimmune disease that affects the central nervous system. After looking into this disease we have came to conclusion that it is a life long journey that will consist of multiple visits to Children's after being released.

We are not the people to ask for donations or help, but we have been asked by multiple people on how they can donate to help us along this journey. Whatever donation we make will go toward gas, food, and stays if needed for the time we are still here at the Children's and in the future. Thank you in advance to anyone that is able to help.

Organizer

Megan Steber
Organizer
Olney, IL
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