<div>Hello, I am Angelica's Grandma, Annette, and I am fundraising funds to help her with her medical journey. Angelica was born April 16, 2023. Her parents are Brittany &amp; James Dobry, and she has a big sister named Cassidy who is 3 years old. They live in Abrams Wisconsin and are a part of the Pulaski Community School District.
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<div>Angelica was born with "Port Wine" birthmarks on the left side of her face, up the left side of her head, down her neck and upper shoulder, down her left arm and on her lower back. Twenty five percent of her body is covered with these port wine stain birthmarks (rare). Most babies born with these birthmarks, it is just a cosmetic issue and is limited to just the face, but Angelica has more of them. However, in rare cases, they can have Sturge-Weber Syndrome. This is what Angelica has been diagnosed with. She also has epilepsy. These birthmarks can be treated with laser surgery. She has had two treatments on her face so far, and the results are amazing. All of the birthmarks will have to be treated because over time, the skin will become bumpy and crusty. So, many treatments are in her future. Her eye will have to be done when she is a toddler because they will have to put her under, and put a contact in her eye to protect it.
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<div>Sturge-Weber syndrome (SWS) is a rare, neurological disorder present at birth and characterized by a port-wine stain birthmark on the forehead and upper eyelid on one side of the face. The birthmark can vary in color from light pink to deep purple and is caused by an overabundance of capillaries (small blood vessels) around the trigeminal nerve just beneath the surface of the face.
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<div>Sturge-Weber syndrome is also accompanied by abnormal blood vessels on the brain's surface and the loss of tissue (atrophy) with deposits of calcium (calcification) in the cerebral cortex of the brain on the same side as the birthmark. Sturge-Weber syndrome rarely affects other body organs.
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<div>Neurological symptoms may include: Seizures that begin in infancy and may worsen with age. Convulsions usually happen on the side of the body opposite the birthmark and vary in severity, Intermittent or permanent muscle weakness, Developmental delays and cognitive impairment, Glaucoma (increased pressure within the eye) at birth or later, and migraines.
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<div>A lot of testing, MRI's, and EEG's, and eye appointments were done early on. Their findings found the left side of her brain has tissue damage and she is high risk for seizures. At that time, they put her on seizure medications. On August 19th, 2023, our lives changed forever. Angelica began a series of seizures that could not be controlled with medication. She was at Childrens Hospital in Milwaukee for 6 days. In order to get the seizures under control, they had to do what is called a versed drip, which stops all brain activity. Then they administered a cocktail of medications to keep them from happening. She now has to take 3 viles of medications, twice daily. It is not a fun thing to do. The doctors informed her parents that this medication will fail too. The best option for her to live a normal life would be to disconnect the entire left side of her brain. She will lose the use of her right hand and ankle. A brace can be put on her ankle to help her walk. Of course, complications can arise. No guarantees. But the doctor said there is an 85 to 90 percent success rate. She may be able to come off from the seizure meds too. The right side of her brain is normal and healthy. The hope is the right side will compensate for the left side. She will have life long physical, occupational and speech therapy.
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<div>Her mother, Brittany, was off three months for maternity leave. Her father James, used his vacation for that time off too. Brittany is out of vacation days and FMLA. This surgery will be at least one week in the hospital, could be longer. It just depends on how things go. Plus there may be time to recover at home. There will be many trips to Childrens Hospital in Milwaukee and many appointments to follow. Not everything is covered by insurance. Being off without pay, is going to be a struggle for their family.
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<div>If you can help Angelica and her family along her medical journey, it would be so much appreciated. I am working on setting up a website for her and a Facebook page. Once they are available, I will put that information on here. A benefit for the family will be done at a later date, pending Angelica's surgery. Right now, the tentative date for surgery is January 15th, 2024.
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Anonymous

Catherine Taylir-Webb

Roxanne Higgins

Joyce Welch

Karen Wilcox

Timothy Daanen

Brock Penn

Tracy Ertl

David Osley

Simon Hermans

Monica Gollata

Angelica's Journey

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

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Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

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NextDoor Share Option Users

Fundraisers with Reactions feature capability

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US + Non-charity COs Only

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fund country is US and user language is English

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Poster share - new funds eligible (newest 9/18)

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3DS payment method

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GoFundMe Employees

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Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

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checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

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fallback mode accounts

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AMP24 New Funds Only PROD (DO NOT MODIFY)

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US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

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Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

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Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

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Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

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Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

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UC Tipping v20250115 International

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Android at or above 12.2.0

Profile photo entry point audience

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start gfm intl allowed locales

Platform is iOS v11.2.0 and above

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AI Chatbot Audience

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UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

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Custom users

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Android v11.0.0 and above

Users Receiving Payments Paused Notifications

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Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

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Native 11.3.0 and above

Influencer - Prod

US fundraisers and US users

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New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

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Is Recurring Friendly

Excluded funds - Video Sharing

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

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Localized Currency

v11.5.0 and above

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Survicate

appVersion is at or above 12.8.0

Non-charity fund

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Payment Identity Launch Verification - Production

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CAD Donation Upsell Audience

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NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Angelica's Journey

Still $21,125 to go. Help us build momentum.