Hi everyone thank you for taking the time to have a look at Olivia’s page. My name is Julie and l have the privilege of being the mother to a very special little girl Olivia. She is 9 years old has the most beautiful smile and loves singing and dancing when well.  I know all children are special and unique in their own way, however our Olivia is that wee bit more special.

Olivia has Doose Syndrome which is a very debilitating form of childhood epilepsy. On her worst days she can have up-to 300 seizures per day. The seizures can be of different types. They include jerks (myoclonic seizures), sudden falls to the ground (tonic or atonic seizures), or sometimes a jerk followed by a fall (myoclonic-astatic seizure), absence seizures (when consciousness is lost briefly). On some occasions she has seizures with stiffness and jerking of the whole body (generalised tonic-clonic seizure). Approximately one third of children with myoclonic-astatic epilepsy will have prolonged seizures at some time during childhood or adolescence. This can include non-convulsive status-epilepticus which can be life threatening and increase her risk from SUDEP (Sudden Unexpected Death in Epilepsy).  Unfortunately Olivia is one of the third and has been hospitalised numerous times in status.    In order to try and control her seizures, Olivia has over the past 7 years been on various groups of medications provided by the NHS, all of which have proven to be unsuccessful. She is also on a very strict Keto diet and had brain surgery in 2021, unfortunately that was also unsuccessful.

The only hope of trying to control her seizures and giving her a chance at a normal, healthy life is to have her prescribed a medication that is not currently funded by the NHS.
  Olivia is currently being prescribed this medication from a private clinic at the cost of £810 per month. Since commencing this medication Olivia’s quality of life has improved significantly, she is back at school for full days and engaging in learning. She has also joined the school choir and performed in the schools summer production of “FrAnnie” Albeit there has been significant improvement since Olivia started the non NHS medication she still faces significant challenges as she is not yet seizure free.  In order to maintain this quality of life for Olivia, that most people can take for granted for their kids, we literally have a huge price to pay every month. 

Maintaining this cost is very difficult, we have family support and organise fundraising events. I had to change my full time career to meet Olivia’s current needs and her dad now has to work two jobs.   I know financially things are difficult for everyone at present and that the rising cost of living is of concern for us all however, any donation that you can afford to make will be greatly appreciated. Thanks again for reading our page about our amazing girl.  Below is a link to Olivia’s story in a newspaper article. <a href="https://www.dailyrecord.co.uk/news/scottish-news/glasgow-girl-epilepsy-doose-syndrome-27132065.amp" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.dailyrecord.co.uk/news/scottish-news/glasgow-girl-epilepsy-doose-syndrome-27132065.amp</a>

Carla Pedro

Anonymous

David maclennan

David Rolleston

Peter McAninch

stephen martin

Ailsa Brown

Richard Cabrey

Shannon Ballantyne

Alison Macdonald

Moira Miller

David Beveridge

Jason Betteridge

Graham Tees

Sharon Wood

lAURA CABREY

Michael Gilliland

Jacqueline Auld

David Phinn

Olivia’s Medical Fund

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

proCampaignId

p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

currencyCode

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

writePath

Stream Notification

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

Native 11.3.0 and above

Influencer - Prod

US fundraisers and US users

ai_title_page

anyword

openai

control

manual_entry

userEmail

template_id

userId

fundUrl

isCharityCo

email

appVersion

shouldBucketIntoExperiment

partnerId

donationCadence

isActiveFundraiser

isPartner

isMobile

npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

isCampaignOwner

fundHasInstagramDeepLink

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

userCurrencyCode

Localized Currency

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Olivia’s Medical Fund

Still £5,758 to go. Help us build momentum.