Willow my Angel
Donation protected
Willow my ANGEL
Willow Leigh Joy Beer was born at 33 weeks with a rare Genetic Disorder.
Just what that extract diagnostic is we need help to find out. What we do know is Willow was born with "Desbuquois Syndrome" a rare type of Osteochondrodysplasia. Aka a type of Dwafism. But this is only 1 part of and not 100% confirmed.
On the 31st May 2011 a man caught my eye , a man that accepted me for the person that stood in front of him and David then Asked me to marry him. We married in 20 September 2014 two people who vowed to love honour and obey for better or Worse. Two people in there 30's, with no reason to imagine that life could become heart breaking. My name is Cassie and I was born with Cerebral Palsy (born injury from birth) which the only hurdle that I haven't climbed over, was the ability to work a part time or full time job. For 8yrs I worked for 12 hrs a week or 2 hrs a day 6 days a week.
I was able to work up until February 2016 when I was 7 months pregnant with our daughter. We could pay our bills and private health insurance. Had private OBGYN as from when I was diagnosed I was told that I couldn't carry a baby, my muscles wouldn't hold. So I proved other doctors wrong with wanting to share our love.
Summer Louise Ellis Beer born 11 April 2016 birth weight 3360gms 50cm length 50% percentile. Our heart grow much bigger that day, our parenting instincts kick in. Ending up wrapping her fingers around dads heart. Summer was born having 2 cousins Deagan and Conner with Bentley to follow, we tried for another baby for a long while and Joy struck on the 15 July 17 confirmed we pregnant again hoping and wishing for a girl for summer to play with. My sister was so excited as she was pregnant with her first. Money become even tighter not being able to put food consistently on the table. Having family dinners to spend time with both sides of our family.
I kept seeing the same doctor I seen with Summer but money soo tight couldn't go every time I needed, I couldn't get scan between the right time frames. At my 20 weeks growth scan Dillon my sister first baby was born.
So At 30 weeks I seen my doctor and she decided to bulk bill me from then on, so that I could keep getting checked on and baby monitored. I found the money with help from family to get growth scan done, late but done it was there at Exact Radiology Ipswich where they seen abnormalities. The measurements then confirmed Willow had short arms, legs, large head, a normal size tummy and a SMALL CHEST. 3D scans showed that there was NO room for her lungs to form/inflate with her heart already formed and already BEATING. We were told then in the more unique scan that was paid for by my mum best friend, that Willow would not serve
On the 22nd of January 2017 at 0839 Willow Louise Joy Beer cried the once but with a beating heart got to meet and say Good Bye to her mum, dad and sister. Her Nanna, Grandma and Grand dad, 3 Aunty's, 2 Uncles and her cousins. 90mins is a long time but really not long enough.
To get genetic tests done to see if we can have another baby that we can see grow or if Summer and her cousins are carries of the gene. The core blood needs to be sent away to United States and to see specialist Doctor we need help with money. It now hurts every time we ask to borrow money from our families that don't have it to spare them self's, as paying back is harder then we could imagine.
Sullivan Nicolaides can only hold her core blood for a very short amount of time.
Could you please help by this gofundme page. "Willow my Angel"...
So the opportunity isn't missed with core blood from Willow to have more specialised genetic testing.
Willow Leigh Joy Beer was born at 33 weeks with a rare Genetic Disorder.
Just what that extract diagnostic is we need help to find out. What we do know is Willow was born with "Desbuquois Syndrome" a rare type of Osteochondrodysplasia. Aka a type of Dwafism. But this is only 1 part of and not 100% confirmed.
On the 31st May 2011 a man caught my eye , a man that accepted me for the person that stood in front of him and David then Asked me to marry him. We married in 20 September 2014 two people who vowed to love honour and obey for better or Worse. Two people in there 30's, with no reason to imagine that life could become heart breaking. My name is Cassie and I was born with Cerebral Palsy (born injury from birth) which the only hurdle that I haven't climbed over, was the ability to work a part time or full time job. For 8yrs I worked for 12 hrs a week or 2 hrs a day 6 days a week.
I was able to work up until February 2016 when I was 7 months pregnant with our daughter. We could pay our bills and private health insurance. Had private OBGYN as from when I was diagnosed I was told that I couldn't carry a baby, my muscles wouldn't hold. So I proved other doctors wrong with wanting to share our love.
Summer Louise Ellis Beer born 11 April 2016 birth weight 3360gms 50cm length 50% percentile. Our heart grow much bigger that day, our parenting instincts kick in. Ending up wrapping her fingers around dads heart. Summer was born having 2 cousins Deagan and Conner with Bentley to follow, we tried for another baby for a long while and Joy struck on the 15 July 17 confirmed we pregnant again hoping and wishing for a girl for summer to play with. My sister was so excited as she was pregnant with her first. Money become even tighter not being able to put food consistently on the table. Having family dinners to spend time with both sides of our family.
I kept seeing the same doctor I seen with Summer but money soo tight couldn't go every time I needed, I couldn't get scan between the right time frames. At my 20 weeks growth scan Dillon my sister first baby was born.
So At 30 weeks I seen my doctor and she decided to bulk bill me from then on, so that I could keep getting checked on and baby monitored. I found the money with help from family to get growth scan done, late but done it was there at Exact Radiology Ipswich where they seen abnormalities. The measurements then confirmed Willow had short arms, legs, large head, a normal size tummy and a SMALL CHEST. 3D scans showed that there was NO room for her lungs to form/inflate with her heart already formed and already BEATING. We were told then in the more unique scan that was paid for by my mum best friend, that Willow would not serve
On the 22nd of January 2017 at 0839 Willow Louise Joy Beer cried the once but with a beating heart got to meet and say Good Bye to her mum, dad and sister. Her Nanna, Grandma and Grand dad, 3 Aunty's, 2 Uncles and her cousins. 90mins is a long time but really not long enough.
To get genetic tests done to see if we can have another baby that we can see grow or if Summer and her cousins are carries of the gene. The core blood needs to be sent away to United States and to see specialist Doctor we need help with money. It now hurts every time we ask to borrow money from our families that don't have it to spare them self's, as paying back is harder then we could imagine.
Sullivan Nicolaides can only hold her core blood for a very short amount of time.
Could you please help by this gofundme page. "Willow my Angel"...
So the opportunity isn't missed with core blood from Willow to have more specialised genetic testing.
Organizer
Cassandra Cooper Beer
Organizer
Collingwood Park QLD
