After birth, a procedure was performed to route the small section of esophagus on to William's neck. This allowed him to drain fluids from the mouth onto his neck. William receives nutrition through a tube placed into his stomach.
At age 3, William weighed only 16 pounds. He spent his days in a tiny crib, in a small corner room of a Bulgarian orphanage. During his first three years of life, he was provided a limited amount of nutrition.
After he met his mom, she worked with a missionary to locate and purchase formula. The process took nearly a month, until finally, the orphanage agreed to allow William the additional nutrition. In two months, William increased his body weight by nearly 40%.
When his mom was granted the opportunity to bring him home, he weighed 22 pounds. Since December, William has continued to gain weight and grow.
On June 14, 2018, William will undergo the Roux Y or Jejunal Interposition procedure at Boston Children's Hospital. Due to the high risk nature of this procedure, he is projected to be in recovery for 6 weeks following his surgery.
In the process of fighting for her child, William's mom, Lisa, will have to navigate the financial aspect of this life changing surgery. The traveling and living expenses, alone, can be very overwhelming. In addition to the cost of travel for herself and William, Lisa will take on the additional costs of travel and living accommodations for William's brother, Calvin, and a family caregiver.
While Lisa has never asked for help, her family and friends want to support her and our sweet little William in every aspect of this journey. Every monetary donation, prayer, and positive affirmation that can be sent their way would mean the world to them. Thank you and God bless you for your efforts.
*Please click the below link to Boston Children's Hospital's website, which includes a detailed description of Long-Gap Esophageal Atresia:
Long Gap Esophageal Atresia
Below are photos of our sweet William in chronological order, from the day Lisa first met him in the orphanage, until today.
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