William Chester Riley III

On January 17, 2018 at 9:50 am, William Chester Riley III was born. He was a perfect, healthy baby through the entire pregnancy as the doctors said through all routine ultrasounds and anatomy scans, and after the birth. Less than 24 hrs later our perfectly healthy happy baby that we were so happy to be able to take home the next day, was not perfectly healthy. Through x-rays appeared the malrotation volvulus (twist in the small intestine which caused a complete cut off of blood supply to the intestine following the twist.) he was then rushed to emergency surgery to try and untwist the malrotation to attempt to reverse the cut off blood supply, but it failed. The intestine was too far deceased. He was then rushed back to an emergency surgery to remove the deceased intestine to prevent more complications such as internal bleeding and blood infection. A total length of a newborn is 5-8 feet, he had all but 10cm removed. Another difficultly arose, his veins were not lasting because they were too weak. In one afternoon he had to have 4 IV relocations. Doctors then attempted a PICC (peripherally inserted central catheter) 4x which failed due to too small of veins/possible blockage. Therefore arose another surgery to insert a broviac catheter into his jugular vein in order to supply his TPN. He is now surviving in an NICU off of TPN (total parental nutrition) injection through the broviac catheter as we and the physicians search for a donor facility that will accept him and transfer him there to await a viable small intestine donor. This go fund me is for our travel, hospital bills not covered, food, and hotel stays. Anything given will be greatfully appreciated and will not go unnoticed. He is the sweetest, most loving and strongest babies I’ve ever experienced, please help us be there for our son.
Thank you.