Hello! My name is William. I'm a 6-years-old french kid. I have a dream... Just like you!
As a newborn, I had heart surgery it's make me a fighter from day 1. Full of life and smiles, everyone says that I brighten the room and I think it's funny because so does the sun!
Since I was a baby, I’ve gone to an extra special hospital called "Necker" in Paris. I like it because there are lots of games and I know the place like the back of my hand. I see many doctors there regularly. I think I'm confusing them a little because they told Mom and Dad with a smile that I was a “walking mystery!”
Amongst all my unique features, I have what doctor call "Atresia, or bilateral Aplasia" it’s very rare and it’s basically means that I was born “without an auditory canal or eardrum” on both sides. For bathing or swimming in the sea, I've never gotten water in my ears. Pretty practical! And I can’t hear my baby sister scream her head off! Even more practical! But that’s about it, when night coming its make me feel alone and I’m afraid.
Once again, I am lucky because my little ears are still there and this rare malformation allowed the doctor to see that I was not hearing well at all. Since I was a baby I have worn many device, the doctors told my parents that I would wear devices my entire life and that later they might be attached to my skull...um gross! I’m not totally cool with that. In the meantime, to wear my devices there were strings that hurt me and were dangerous for me. As I was a baby they would end up in my mouth or around my neck, which was very scary for mom who had to find a solution (as always! She is like that my mom!). Thanks to her, I have been wearing cool baseball caps every single day since I was a baby with electronic devices attached to them. It helped me a lot!
... that's how since I was 2 years old I can manage on my own with my devices. When I was at "Turbul" my Montessori kindergarten, I even had other children who took hats to copy me and that was great! Now I have grown well, always in the kindness of the adults who accompany me, and until now I was Ok with my cap and I did not want anything else! ...
But in recent months my parents have discovered a specialist who operates children like me in the United States. I met Dr. Roberson (from the California Ear Institute) in Paris a few days ago and told us that he could make ducts and eardrums for me to hear like any other child ... without a device ...
Usually it takes two years to book a surgery but after meeting us he offered to operate this summer on my right ear. I met Elise and other children who had already been operated on and there, everything changed.
I’m super excited, I so wish I could go there... I can't help but dream!
So everything's fine, now, right?...... Uh... almost! The only problem is that we actually don't have the money for the operation. The doctors are asking for 40,000 dollars per ear, so 80,000 dollars total. I’m only just learning about math in school, but that’s a lot of zeros.
I told Mom and Dad to buy things and sell them for more money, but my Dad says it’s a bit more complicated than that. Unfortunately, we don’t have a lot of time. It must be tough for both of them.
That's why we need you! Not just for the money. Yes, it would really help us, that's for sure! But as my parents taught me, positive energy is important too. My parents really need it! Keeping us in your heart, with your help and support it will send us lots of positive energy And I’m certain that will help them!
Because as Mom always says, "Together we're stronger!”
Thank you so much!
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