Jasmi is ten years old and absolutely wonderful. She has overcome so much in her life so far and shown so much resilience that it is incredible. However, she is now facing a challenge that you can help with.
Jasmi has beaten leukaemia twice, undergone a bone marrow transplant and the treatment has destroyed her hip joints meaning that she can no longer walk and now needs to use a wheelchair. The chair that she has been given on the NHS she cannot push herself.
I am one of the paediatricians that has looked after Jasmi for many years and use a wheelchair myself. Jasmi has seen that I can be independent, active and achieving in the work environment. I arranged an appropriate assessment and fitting for a wheelchair which suits Jasmi’s needs for independence and she was flying, even on chairs which were not made to measure for her! Along with Dr. Piccinelli, Jasmi’s local paediatric oncologist, we are fundraising to buy Jasmi a wheelchair and Tri-ride so that she can access educational and social opportunities that every ten year old child should be able to access. Please help us to help the awesome Jasmi.
Jasmi’s mother Rowena writes:
Jasmi was diagnosed with ALL (acute lymphoblastic leukaemia) in 2014 just four years old. It was a complete shock and our world was turned on it’s head. The next year was spent in and out of hospital due to the effects of the chemotherapy. It started to become a strange sort of routine. But she managed major milestones, like starting her first day at school.
Then around a year into treatment we where told the cancer had returned. We where told she would need intense chemotherapy, radiotherapy and a stem cell transplant. For me it was worse to be told than the first time.
What followed was a 100 day stay in Addenbrooke’s Hospital, Cambridge. The intense chemotherapy made her really ill and on a few occasions we thought we would lose her. The search for a match donor found no matches. But the chemotherapy seemed to put her back into remission and at the very last moment the decision was made that she would not need the transplant. She went back into maintenance chemotherapy and finished treatment in January 2017.
Life slowly began to feel normal again. Jasmi went back to school, learned to ride her bike and enjoyed swimming.
Then in June 2017 we got the devastating news that the cancer had returned again. We where all so frightened; I remember crying with Jasmi in the hospital room when we where alone because we knew what lay ahead in the months to come. There were many dark scary moments in those months. But this time around a donor was found. So after chemotherapy and radiotherapy Jasmi had her bone marrow transplant in November 2017. She spent three months in isolation and suffered some terrible viruses on the way. But in January 2018 we where allowed home.
Within a week we where back in hospital and for many months Jasmi battled GvHD (graft versus host disease) that took a terrible toll on her body.
Then a couple of months after transplant she started complaining of pains in her legs and hip. The pain became excruciating and she could no longer walk. After months of investigation she was finally diagnosed with Avascular Necrosis. It was so bad both her femoral heads have collapsed and she can no longer walk and in terrible pain.
The wheelchair we currently have is not suitable for Jasmi’s needs. It is far too heavy for her to self-propel and she completely relies on me for everything. Our world has become so small as it is so difficult to go anywhere with her current chair.
She craves for her own independence and needs a chair that can help her to do this. With a new chair, and hopefully a Tri-ride, she can get back to doing the things she loves, like taking the dog for walks, trips to the beach, going to music festivals and being able to spend time independently with her friends.
We are immensely proud of how Jasmi has coped throughout the six years of treatment, with so much of it being spent in hospital. She now deserves to enjoy life to the full and gain the freedom a new chair could give her
All the money raised (up to £6750 and the necessary to cover GoFundMe fees) will be paid by Rachel to Draft Wheelchairs. Any excess raised beyond this will be transferred to Jasmi’s family to pay for insurance and upkeep of the chair, spare tyres, a special rain coat (from Kinetic Balance) from Jasmi and other equipment that she will need which is not covered by the wheelchair service as this is a chair not supplied by the NHS. Thank you so much for your help.