Wheeling for Phelan

My son, Ted, was diagnosed with Phelan McDermid Syndrome when he was he was 2 years old. The doctors knew very little about this syndrome, in fact their advice to us was "Google it!".
Turns out there are only around 1400 cases worldwide and only 72 here in Australia.
Needless to say P-MS is classed as a 'rare' syndrome and as such has limited funding.
Essentially P-MS is the deletion of part of Chromosome 22. This means intellectual disability, delayed or absent speach, autism, heart problems, seizures and gastrointestinal problems are common place amongst sufferers.
Wheelin for Phelan is hoping to make a difference by raising funds for the Phelan-McDermid Syndrome Foundation of Australia. The foundation helps families with P-MS kids and young adults by providing family support, information and raising awareness.
A group of 5 friends will be riding from Sydney to Brisbane over a week in mid July. We are taking the hard route through the mountains, around 1100km and 15,000m of climbing!
Please join our journey through our Facebook page (Wheelin for Phelan) or our Instagram (@wheelinforphelan) and help us raise some much needed funds to help our P-MS families and promote the Foundations good work.