Wessling- Bates Kids

My daughter has 4 children, about 5, or 6 years ago the eldest two boys were diagnosed with Sarcoglycan Autosomal Recessive Muscular Dystrophy. Within 2 years they were both in wheelchairs.  Since then the other two kids have also been diagnosed with the same disease. The girl is also in a wheelchair, but the youngest  is not yet in one. He does have the disease and has just started to show symptoms. So within the next couple of years we can also expect him to be wheelchair bound. The eldest ( Caiden) is awaiting surgery to straighten his back as he now also has severe Scoliosis. My daughter is their carer 24/7, she has to do everything for them, dress them, toilet them, etc. She gets up quite a few times through the night to roll them over as they are unable to do so by themselves. They cannot walk, run ,play etc and are dependant on their mum for everything.  Their muscles are so wasted they cannot hold a cup to have a drink and they have to use a straw. Kym has a pacemaker as her heart rate was only 30 beats a minute, so her health is not too good. . Lifting the kids as they get older is becoming harder all the time. They are Caiden 15, Rhylan 13, Shaelah 12 and Hudson 7.  We are trying to raise some money to purchase a van and have it fitted out to accommodate 4 chairs The car they have now  is far too small to take even 1 chair , let alone 3 ,and later on 4. They have motorised chairs and these can't be folded down. There is no cure and no treatment for Muscular Dystrophy. The type the kids have is rare, yet all four have it. How things stand at the moment, the children cannot go on any outings because their chairs do not fit. I know this is a lot of money , and I know there are people out there in similar circumstances but our family is the only one we have heard of with all four children afflicted by this disease. We thank you from the bottom of our hearts for any monies you can spare towards this van. I will keep you all in my prayers. Thankyou.