<div>Hey friends &amp; Family. If you have read our social media posts - the following paragraphs is what you have already read, if you’re new here please take your time to read about our Noah








</div>








<div>Thank you xx







</div> For quite a while now we have been pretty worried about Noah (our 6 year old). He was always pale, got regular infections (like, twice a month), was always tired, always had pains in his legs.. the list goes on. For about a year the GP fobbed us off even when we specifically asked for a blood test and pushed us away, saying ‘he’s fine, he’s a kid, they get sick all the time. He doesn’t need a blood test’. We were furious. We had just started getting his school involved to help us challenge the GP on his need for a blood test but we didn’t get that far… June 15th he woke up with a temperature of 39.9C (104F) and a rash all over his body. We called the GP who said she was worried about meningitis and to take him to A+E immediately. It wasn’t meningitis.
 After 7 hours of doctors and nurses literally swarming around him in a panic, putting cannulas in his arms, taking bloods and putting him on a drip, they pulled us aside, told us his blood results weren’t normal at all, and gave us an initial diagnosis of Leukaemia. Little did we know at the time though, it wasn’t Leukaemia either.

 The following day, after a full night of X-Rays, Organ scans, a blood transfusion and a platelet transfusion we were told his bloods had been sent to Great Ormond Street Hospital for Children (GOSH) and they found no cancer cells in his blood. He then stayed in hospital for IV antibiotics and regular monitoring but we still had no real idea what exactly was wrong with him.
 A week after first entering hospital we were able to leave but he was released and placed under the care of GOSH. We had a consultation with a Doctor who asked for more blood tests, organ scans, heart scans, skin biopsy and a bone marrow biopsy to be done (among many other tests) and the process began. Over the next few weeks he had all the tests and scans, multiple transfusions, and has also had a Hickman Line inserted directly into his chest and into his heart so that bloods can be taken and given without the need for any needles (cannulating him has been traumatic for him and everyone else).
 To cut a very long story as short as possible, we obtained some answers quite recently. Noah has an extremely rare disorder called Fanconi Anaemia (FA). In Lehman’s terms, a failure of the bone marrow caused by genetic condition. It only affects around 2 kids per million. His bone marrow doesn’t work as it should and isn’t able to produce the red cells, white cells and platelets it needs to keep his body going. The rash he had wasn’t a rash at all. They were tiny pin prick bleeds under his skin because his body didn’t have the platelets it needed to keep his blood in his body anymore. He was frightfully pale because he had half of the minimum amount of Haemoglobin (red cells) needed to get oxygen around his body efficiently. His neutrophils were 0.5 which means he is Neutropenic and is at a very high risk of bacterial infections. The condition also means he is highly susceptible to multiple cancers and will have to be regularly checked to ensure his health doesn’t deteriorate further. It’s extremely unlikely he will ever be able to have children and his life expectancy is limited. He will also very likely need chemotherapy and a bone marrow transplant as the months go on, which they will test his older brother Oliver to see if he is a match for bone marrow as a sibling match gives the best chance of success.
 We have a long road ahead of us here and the amount of money we have already spent on train tickets, car parks, petrol, medical supplies and everything else amidst a cost of living crisis has pushed us to bankruptcy in a matter of weeks.
 We want to fund raise the fuck out of everything where we can. Not only for us and Noah, but to raise awareness and change the system, because we’ve realised that he’s been let down since birth. Doctors should have known years ago and referred him straight after he was born. That isn’t my opinion. We have been told this by a top consultant at GOSH. The GP said to Steph ‘he doesn’t need a blood test!’ in a stern and undermining voice when he was presenting 8 of the main symptoms of cancer. We’re disgusted and furious and no one should have to experience the lack of care and attention we dealt with before we were referred to GOSH.
 I can’t explain to you all how difficult it is for me to ask for help like this but if any of you can, in any way at all, it’ll help more than I can say. It’ll help with train tickets, car parks, hospital food, petrol, medical supplies and a million other things that we are going to have to do and deal with together for quite a long time, and then any surplus we may be left with I will find families and deserving staff members and help them too. This isn’t only about us and Noah. We will bring a sense of purpose to this. We will start a movement. The teams of people we are already acquainted with at GOSH have been phenomenal and have made the hardest days of our lives so far ever so slightly easier. We genuinely don’t know exactly what the future holds, but for Noah’s legacy we will work together and raise both money and awareness. We will make the system better. We will look after and support others in similar positions, and we will honour the people who dedicate their lives to taking super sick kids under their wing and bringing hope to an otherwise dark and devastating situation.
 So if you can help, whether it’s financially or emotionally, brainstorming fundraising ideas or helping to run an event, shave your head, beard, balls… we don’t care. You don’t need to say anything and we may not immediately get back to everyone when you contact us, but action and support is what we need right now.
 And last but not least, here are the people we are doing it for.
 For Noahs consultants. Jack, Ahmed and Olivia. His haematology team. Izzy, Abi, Rochelle, Lisa and Sophie. His nurses on Safari Ward. Josh, Toby, Claire, Nicole (and many others).
 The nurses that looked after him on Butterfly Ward after his Hickman Line insertion. May and Husna. His anaesthetist Louise and his Surgeon Katie.
 The incredible Play Specialists Jenny and Claire who, without their training and kind hearts, would have made all of his procedures so much more traumatic for him. Any families out there, present or future, who are dealing with the same or a similar diagnosis whether it’s Aplastic Anaemia, Fanconi Anaemia, Leukaemia etc. We will stand with you.
 And finally, for our little Noah. The most resilient superhero we have ever known ❤️
For you we will bend until we break.

Anonymous

David Bryan

Sarah Mason-Turner

Ashutosh Pundir

Lisa Allard

Lionel Pacreau

Meryl Good

Terry Donnelly

Tara Campbell

Eric Weese

Jay Lee

Derik VanHoose

♥️ We Fight For Noah ♥️

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

proCampaignId

p2p legacy startfundraising page

be_supporter_comments_enabled_supported_funds

AMP24 New Funds Only PROD (DO NOT MODIFY)

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

currencyCode

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

writePath

Stream Notification

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

Native 11.3.0 and above

Influencer - Prod

US fundraisers and US users

userEmail

template_id

userId

fundUrl

isCharityCo

email

appVersion

shouldBucketIntoExperiment

partnerId

donationCadence

isActiveFundraiser

isPartner

isMobile

npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

isCampaignOwner

fundHasInstagramDeepLink

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

userCurrencyCode

Localized Currency

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

♥️ We Fight For Noah ♥️

Still £28,979 to go. Help us build momentum.