Rallying for Ryder!
Donation protected
Meet Ryder Hall! Ryder was born along with his twin brother (Colton) on Monday, May 6th. Much to the Hall Family’s surprise - Ryder, unlike his twin brother, was born with a number of health complications that were not identified on any of the ultrasounds or prenatal tests.
Ryder’s Medical Story
First, Ryder was born with facial paralysis on the right side. He can open and close his eyes, but the right side of his mouth is stuck in place. MRIs revealed the nerve controlling facial function on the right side is not visible. As he grows he’ll likely need some reconstructive surgery in order to provide better functionality. However, the greater issue with this is that he has a much tougher time sucking and swallowing milk than a normal baby. Doctors and speech pathologists are helping to teach him how to breastfeed and drink from a bottle. They’re limiting him to 10 Ml (about ⅓ of an ounce) fed by bottle to mitigate the chances of aspiration and the rest of his milk is given to him through a feeding tube.
Second, Ryder was born with intestines that didn’t connect out to the end. Doctors have found a temporary solution to help him poop, but because the intestine ends about an inch before it should Ryder will need surgery in June to fix the problem for good.
Lastly, Ryder was born with an ear condition called Microtia where his right outer ear never fully formed. Ryder failed his hearing tests so some time in the near future he’ll be fitted with hearing aids that will be critical for his development. Cochlear implants are more expensive than hearing aids and require life-long maintenance.
Meet the Hall Family!
I started this fund as a family friend to help support the Hall Family in their time of need. This family is one of the most loving and kind hearted families I have had the pleasure of working with professionally and getting to know personally for over a decade. They are always willing to help others, they are active in their church, and have always dedicated their own time to worthy causes including a mission trip to Uganda. The Hall family would never want to burden anyone with an ask which is why when Ryder’s surprise health complications arose I knew we had to provide a platform for people to help this WONDERFUL family! The Hall parents have been spending nights in the hospital with the twin boys as their other two older kids (Everly and Jaxson) are being cared for at home by family members. I can’t imagine the burden they feel every day as they try to navigate the health of Ryder while also worrying about his infant twin brother and their two older kids. We are raising this fund to specifically pay for Ryder’s hearing implants and other medical costs including his surgery in June. Your donation will help cover the following expenses and I know this family will be so grateful for the outpouring of love and support for them! If you can’t provide a monetary donation please pray for Ryder on his road to recovery! Thank you so much!!!
The Estimated Costs
Insurance companies typically cover some of the cost of a cochlear implant. The average costs with insurance:
$1,600 for the device
$100 for external pieces including a transmitter
$9,000 for a speech processor
$1,710 for three pre-surgery office visits
$1,985 for after surgery reprogramming which is necessary at least five times in the first year
Total Out of Pocket Cost Estimate = $14,395 (with insurance)
The implant then usually has to be replaced every 3-5 years which means Ryder will likely need 3-4 implants by the time he is 18 years old for a total cost of $57,580 in anticipated out of pocket hearing expenses by the time he is going off to college.
The need is great when you also consider the unknown cost of the physical therapy he will need for his partial facial paralysis, feeding tube expenses and surgeries to address his intestine. Any amount you can donate is appreciated and I know the family will be overwhelmed by your support!
Hugs to All and let's Rally for Ryder!!!
Ryder’s Medical Story
First, Ryder was born with facial paralysis on the right side. He can open and close his eyes, but the right side of his mouth is stuck in place. MRIs revealed the nerve controlling facial function on the right side is not visible. As he grows he’ll likely need some reconstructive surgery in order to provide better functionality. However, the greater issue with this is that he has a much tougher time sucking and swallowing milk than a normal baby. Doctors and speech pathologists are helping to teach him how to breastfeed and drink from a bottle. They’re limiting him to 10 Ml (about ⅓ of an ounce) fed by bottle to mitigate the chances of aspiration and the rest of his milk is given to him through a feeding tube.
Second, Ryder was born with intestines that didn’t connect out to the end. Doctors have found a temporary solution to help him poop, but because the intestine ends about an inch before it should Ryder will need surgery in June to fix the problem for good.
Lastly, Ryder was born with an ear condition called Microtia where his right outer ear never fully formed. Ryder failed his hearing tests so some time in the near future he’ll be fitted with hearing aids that will be critical for his development. Cochlear implants are more expensive than hearing aids and require life-long maintenance.
Meet the Hall Family!
I started this fund as a family friend to help support the Hall Family in their time of need. This family is one of the most loving and kind hearted families I have had the pleasure of working with professionally and getting to know personally for over a decade. They are always willing to help others, they are active in their church, and have always dedicated their own time to worthy causes including a mission trip to Uganda. The Hall family would never want to burden anyone with an ask which is why when Ryder’s surprise health complications arose I knew we had to provide a platform for people to help this WONDERFUL family! The Hall parents have been spending nights in the hospital with the twin boys as their other two older kids (Everly and Jaxson) are being cared for at home by family members. I can’t imagine the burden they feel every day as they try to navigate the health of Ryder while also worrying about his infant twin brother and their two older kids. We are raising this fund to specifically pay for Ryder’s hearing implants and other medical costs including his surgery in June. Your donation will help cover the following expenses and I know this family will be so grateful for the outpouring of love and support for them! If you can’t provide a monetary donation please pray for Ryder on his road to recovery! Thank you so much!!!
The Estimated Costs
Insurance companies typically cover some of the cost of a cochlear implant. The average costs with insurance:
$1,600 for the device
$100 for external pieces including a transmitter
$9,000 for a speech processor
$1,710 for three pre-surgery office visits
$1,985 for after surgery reprogramming which is necessary at least five times in the first year
Total Out of Pocket Cost Estimate = $14,395 (with insurance)
The implant then usually has to be replaced every 3-5 years which means Ryder will likely need 3-4 implants by the time he is 18 years old for a total cost of $57,580 in anticipated out of pocket hearing expenses by the time he is going off to college.
The need is great when you also consider the unknown cost of the physical therapy he will need for his partial facial paralysis, feeding tube expenses and surgeries to address his intestine. Any amount you can donate is appreciated and I know the family will be overwhelmed by your support!
Hugs to All and let's Rally for Ryder!!!
Organizer and beneficiary
Stefanie Stewart
Organizer
Hinsdale, IL
Scott Hall
Beneficiary
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