Wayne Levin Spinal Cord - Paralysis Fund



Profile photo is of Wayne way back when Wayne opened his first Subway store in Fort Lauderdale, FL

Some of you already know what happened to Wayne just short year ago and life is just that way; we just never know what the next moment may bring.

Today I am reaching out to family and friends for your financial help in support of Wayne Levin and his family. Wayne sustained severe injuries to his spinal cord C2 through C7.  

Please, donate as each 5 or 20 will go long way. This is the hardest time in our lives and it is hard to ask as all of us are affected by this difficult time in COVID-19.

Please, donate as we were hit with new expenses. 

Wayne is still in hospital recovering from very bad case of UTI. Wayne is doing better as the white cells count went down but, still don't know when they discharge him.

Wayne and I had good life until the accident. Wayne loved to bake all sorts of sweets and visit with friends.
Wayne was Subway Sandwiches man. Wayne was selling Subway franchises and thought many franchisees how to successfully run Subway Stores.
Wayne purchased bus and converted it into Subway store on wheels that he used in fundraisers and other events locally.

In 1992 when hurricane Andrew struck and leveled city of Homestad, FL Wayne took the bus and gave away thousands of sandwiches for free to victims of this Category 5 hurricane.


49019582_1596658882248893_r.jpegThat's my big boy celebrating his birthday


In 2008-2009 when our economy failed and our country went into recession Wayne lost business and all his life savings trying to safe the business he owned.
As you know the bailout money went to bankers and many small business owners including Wayne lost it ALL. Wayne had to retire and reach for disability through Medicaid. That wasn't our plan for retirement. That was all was left after our country went into recession.
That's how Wayne supported himself and me, his also disabled partner.

In 2010 Wayne fell and broke his knee, relativity not a big deal. During surgery he has been infected and almost died. He had to have two more surgeries that left him disabled for life as the infection destroyed tissue in his knee.


The horrible accident took place on June 6th of 2019 at 1 am.  
49019582_1596681319240174_r.jpeg
This picture was taken before surgery when we were told that Wayne will not survive the surgery, you can see red bracelet on his right hand. This bracelet reds DNR (do not resuscitate)


49019582_1596659190355598_r.jpegThis picture was taken after discharge from hospital on August 14 2019. Wayne was in so much pain. I admire this man for his resilience.

Wayne was just walking to the kitchen to get a cup of ice tea as he has done hundreds of times in the past.

Not this time.  

Wayne tripped and fell hitting his favorite armed chair hitting his face/head on the edge of it.  Wayne became paralyzed in instant as he suffered Spinal Cord Injury.  

He was first transported to the JFK hospital in Atlantis, FL where the attending physician told Wayne that he is in shock and will be discharged following day.  

At 9 am another doctor came in, and told Wayne that he will be transported immediately to Trauma Unit in Delray Beach hospital as he has Spinal Cord Injury and needs to operate right away.  

The attending ER physicians in Trauma Unit at local hospital told Wayne that Wayne has spinal cord fluid leak and has to be operated right away.  Wayne was told that most likely he will not survive the surgery.  

Thank God, surgery was postponed and a few days later Wayne was accepted to Jackson Memorial Hospital in Miami.  

These unbelievable neurosurgeons in Jackson Memorial Hospital found the level of injury to be C2-C7 and laminectomy surgery on Wayne’s neck was successfully performed.  

After 6 hours of surgery Wayne was returned to recovery room with Level B-incomplete Spinal Cord Injury that left him paralyzed (quadriplegic).  

Due to nerve damage and surgery Wayne’s hands and legs are paralyzed (right hand and leg are more paralyzed) as well as lower body.  Wayne can not walk.

Wayne has to be transferred from bed to his wheelchair and back on transfer sheet. Bathing and physiological needs are tended to Wayne in bed.  

Wayne requires 24 hours a day 7 days a week assistance and I am here to fulfill Wayne’s needs.  After the surgery Wayne spent 6 weeks at Jackson Memorial Rehab in physical therapy and made small progress with hands.  

After discharge Wayne suffered speech decline due to spinal cord damage that affected his throat and lungs.  Initially Wayne went for Speech Therapy, Occupational Therapy and Physical Therapy but, in March the center was closed due to COVID-19 and everything stopped. No more PT or OT in proper rehab setting with trained physical therapists.

Wayne believes and hopes to walk again and to live his live as fully as possible and is working extremely hard every day in occupation therapy therapy provided by Miami Project via ZOOM.

Wayne is facing years of therapy ahead of him. Wayne’s goal is to walk again.  If you know Wayne, you know how persistent Wayne will be to make this happen.  

Wayne lives in mobile home (aka trailer) in a hurricane mandatory evacuation zone.  


49019582_1596661408672206_r.jpegThis is how we live today - in Living Room.


Wayne now lives in Living Room as the bedroom, bathroom and kitchen is too small and to narrow to navigate or push Hoyer lift for transfers.  

After return from hospital Medicaid refused to cover Wayne for 6 long months rejecting Wayne's application for various reasons so I was the care taker for Wayne.

Medicare refused to cover power wheelchair so I had to buy used one and they are very expensive, even the used one.

Medicare refused to pay for anything thus pushing me to use credit card to build access ramps for home, for alternating pressure mattress for over the counter medicine for AMT transport (over a one thousand dollars for one way trip) of Wayne from Delray hospital to Jackson Memorial Hospital in Miami and many other things. Though Medicare states that they cover things, they never refunded money I spent to buy all what was needed including bed liners or cream to prevent bed sores.

Today Medicaid gives Wayne 25.00 dollars a month to buy over the counter medicine or medical supplies.

I maxed out our credit cards very quickly and now our income barely covers payments to our creditors and cover all our home and living expenses.

Wayne needs your financial help. The funds raised will be put towards medical bills that are not covered by insurance, mobility equipment (i.e. standing frame that Medicare does not cover), family support, various ADA modifications and hopefully ADA adapted home with bedroom and shower) without mandatory evacuation during hurricane to enable Wayne to live a fulfilling life. 

For now Wayne doesn't have any quality life rolling around in Living Room that is our bedroom without access to shower, kitchen or master bedroom

A  little moment with a smile

49019582_1599699333689278_r.jpeg

We desperately need to replace our AC unit. The price tag is 4400.00. It is fixed for the moment but, the AC company said that this is old unit and there is leak on cooling component and it will brake again. So we need new one to save money on repairs and electric bill.

Thank you for your support, prayers and donation.

Please consider sharing Wayne’s story with your friends and family via email or social media.

Donations

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  • Anonymous 
    • $50 (Offline)
    • 2 mos
  • Khalid Malik 
    • $100 (Offline)
    • 2 mos
  • Anonymous 
    • $100 (Offline)
    • 2 mos
  • Peter DiPasqua 
    • $2,000 (Offline)
    • 2 mos
  • Rosalie Weaver  
    • $100 (Offline)
    • 3 mos
See all

Organizer

Kris Selka 
Organizer
Boynton Beach, FL

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